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Forum: her2group 12-09-2018, 02:29 PM
Replies: 124
Views: 26,419
Posted By Unclaimed
Re: Treatment after Kadcyla?

Hi Juls,
How have things been since the ablation? Any luck getting back on Herceptin?
Forum: her2group 10-21-2018, 05:57 PM
Replies: 389
Views: 154,665
Posted By Unclaimed
Re: Calling all stage iv sisters

This is wonderful. Thank you so much everyone. I'm one of the newbies. I started at Stage 4
Forum: her2group 10-17-2018, 06:46 PM
Replies: 15
Views: 4,647
Posted By Unclaimed
Re: 12 Years Out!

Happy "anniversary". Wishing you many more!
Forum: her2group 10-17-2018, 06:44 PM
Replies: 111
Views: 27,645
Posted By Unclaimed
Re: ZW25 clinical trial - day one

Wonderful news! So happy to hear the trial is working for you!
Forum: her2group 10-02-2018, 08:16 AM
Replies: 3
Views: 3,172
Posted By Unclaimed
Re: ? counteract hand-foot syndhrome from Xeloda

Hello,
When I was on Xeloda the skin on my hands and feet turned a dark purple! I used to tell people, "My skin is a color of skin that skin doesn't come in". They looked at me funny until I...
Forum: her2group 07-28-2018, 05:57 PM
Replies: 5
Views: 3,727
Posted By Unclaimed
Re: Seeking Whole Brain Radiation Info

Hi Katherine,
I don't know where you are so I don't know if this will be helpful, but Google Maryland Proton Treatment Center. They use a technique called Pencil Beam Therapy which is focused and...
Forum: her2group 06-19-2018, 04:56 PM
Replies: 17
Views: 5,468
Posted By Unclaimed
Re: hope for those with brain mets

Hi Lucy,
My biopsy report says I am estrogen and progesterone receptor negative. I bought Milk Thistle Extract from the Vitamin Shoppe. I hate to swallow pills, so I'll only take it once a day...
Forum: her2group 06-15-2018, 06:18 AM
Replies: 17
Views: 5,468
Posted By Unclaimed
Re: hope for those with brain mets

Hello Donocco,
Thank you for responding! I didn't think you were advocating or advising for the use of milk thistle. I thought it might be possible for something that may impact already present...
Forum: her2group 06-14-2018, 03:39 PM
Replies: 17
Views: 5,468
Posted By Unclaimed
Re: hope for those with brain mets

Hello Donocco,
Do you think taking Milk Thistle as a preventative measure is worthwhile?
Forum: her2group 05-09-2018, 06:48 PM
Replies: 34
Views: 18,586
Posted By Unclaimed
Re: Insurance Frustrations

Hello SoCalGal
Thank you for replying. I did add Perjeta to my last Herceptin infusion which was last Thursday. I had to go to the bathroom on Monday a few times more than normal, but other than...
Forum: her2group 05-03-2018, 03:46 PM
Replies: 34
Views: 18,586
Posted By Unclaimed
Re: Insurance Frustrations

Hello Tracy,
Does the switch to Medicare mean you'll receive your next H & P in August as planned? I think of you often. I joined this site because my MO wanted to add Perjeta to my treatment and I...
Forum: her2group 04-03-2018, 05:58 PM
Replies: 45
Views: 23,196
Posted By Unclaimed
Re: In Praise of Perjeta

Well hello Julie, I'm Ana. I had to Google bilirubin, I'd never heard that before. Google says caffeine lowers bilirubin so that's my cue to indulge my coffee addiction 😄☕☕ All these medications...
Forum: her2group 04-03-2018, 04:17 PM
Replies: 45
Views: 23,196
Posted By Unclaimed
Re: In Praise of Perjeta

Hello, sorry my phone changed your name last time, Juls!
I'm happy with Capecitabine. I wasn't willing to do IV Chemo, and had no idea there were pills as an option. I thought I was get a...
Forum: her2group 04-03-2018, 03:25 PM
Replies: 45
Views: 23,196
Posted By Unclaimed
Re: In Praise of Perjeta

Hi Julie
Thank you so much for responding! I'm sorry to hear about the bone Mets. I have that as well and also take Capecitabine for it. I'm relieved to hear people are doing well on Perjeta even...
Forum: her2group 04-03-2018, 12:46 PM
Replies: 45
Views: 23,196
Posted By Unclaimed
Re: In Praise of Perjeta

Hello. Is anyone still taking Perjeta and are you still happy with it? I was Stage 4 when diagnosed, and just started treatment Feb 2 with oral Chemo, Capecitabine. I had one Herceptin IV the end...
Showing results 1 to 15 of 15

 
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