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Search took 0.01 seconds. Search: Posts Made By: Raquel
Forum: her2group 10-09-2013, 06:00 PM
Replies: 29
Views: 5,624
Posted By Raquel
Re: How long Should I continue herceptin ?

Thanks for the info I will mention it to my onc and the fact that I know all of you who have been long time vitamin H users! I like that, had never heard of it referred to like that! I think my mind...
Forum: her2group 10-09-2013, 07:05 AM
Replies: 16
Views: 2,228
Posted By Raquel
Re: Metastatic Breast Cancer

I totally agree we stage 4 survivors lead very active and fulfilling lives! I do things now I never would have dreamed of before one of them being flyfishing! I ran my first 5k last year and enjoy...
Forum: her2group 10-08-2013, 07:39 PM
Replies: 16
Views: 2,228
Posted By Raquel
Talking Re: Metastatic Breast Cancer

I feel like once your done with the chemo treatments everyone just assumes that it's over and done and you can move on. I wish that was true, as others have said this is something we will deal with...
Forum: her2group 10-08-2013, 07:20 PM
Replies: 29
Views: 5,624
Posted By Raquel
Re: How long Should I continue herceptin ?

I agree, it does feel like a lottery! I wish there were more information about it. I agree with all of you, why stop when things are going so well! Going every three weeks is better than the...
Forum: her2group 10-04-2013, 06:55 PM
Replies: 29
Views: 5,624
Posted By Raquel
How long Should I continue herceptin ?

I haven't posted in a while, it's been two years I'm NED and onc. Is talking about stopping herceptin. I have been on herceptin on and off for about five+ years. Anyone else a long term herceptin...
Forum: her2group 01-04-2012, 06:43 AM
Replies: 27
Views: 5,063
Posted By Raquel
Re: Tamoxifen anxiety

I also am supposed to start taking tamoxifen or possibly lupron shots and an
Ai inhibitor. My question is which has less side effects? Can you take just tamoxifen and have the same results as doing...
Forum: her2group 12-29-2011, 08:12 PM
Replies: 28
Views: 5,028
Posted By Raquel
Thumbs up Re: Lung met question

Thanks! Any info I can gather is helpful! I learned on another thread that the trial with tykerb only was not as effective as herceptin and they recommend that I take only tykerb. I'm so glad to have...
Forum: Herceptin / Tykerb 12-28-2011, 05:40 PM
Replies: 20
Views: 6,921
Posted By Raquel
Re: Important re Tykerb alone in Adjuvant setting

Thank all of you for this life saving information! I was told by a major medical center that I should go on tykerb only and no herceptin. I wanted to continue on the herceptin because adding tykerb...
Forum: her2group 12-28-2011, 05:28 PM
Replies: 9
Views: 3,072
Posted By Raquel
Re: Scared of prognosis-stage IV liver mets

A good friend of mine has had liver mets over seven years now and she is Ned and has been for a few years! True, she may not be cured but her cancer has gone into remission and she's doing well! I am...
Forum: her2group 12-27-2011, 08:15 PM
Replies: 28
Views: 5,028
Posted By Raquel
Re: Lung met question

Let me know if you find the article about herceptin so I can show my onc! Thanks! Your inbox is full again!
Forum: her2group 12-23-2011, 04:45 PM
Replies: 6
Views: 1,658
Posted By Raquel
Re: Which hormonal therapy has least side effects?

Thanks for your input! I see a couple of you had to take zometa too,was it due to a lack of estrogen from the arimadex ? Oh, and I just read my post and am laughing at my typo, it was supposed to say...
Forum: her2group 12-20-2011, 06:36 PM
Replies: 6
Views: 1,658
Posted By Raquel
Which hormonal therapy has least side effects?

My onc talked to me about shutting my ovaries down and putting me on arimadex. Another dr suggested tamoxifen . I've been on tamoxifen in the past and thought it was horrible, hot flashes mood swings...
Forum: her2group 12-20-2011, 06:20 PM
Replies: 28
Views: 5,028
Posted By Raquel
Smile Re: Lung met question

Just wanted to let everyone know I had my surgery and they took the lower lobe, all nodes are clear! Looks like they got it! So happy that's over! Thanks so much for all your help!
Forum: her2group 11-30-2011, 06:36 PM
Replies: 28
Views: 5,028
Posted By Raquel
Re: Lung met question

The tumor is located in the center lower lobe near the heart. I was not impressed with the radiation dr and went with my gut on that one,it seemed like he was over selling it to me. Also my onc...
Forum: her2group 11-08-2011, 06:28 PM
Replies: 28
Views: 5,028
Posted By Raquel
Re: Lung met question

Hi everyone! I'm back and I have some answers now,but alot of questions too! My biopsy came back that it is indeed cancer,that is it er+,pr-,waiting on the her2 but guessing it's still positive.Met...
Forum: her2group 10-25-2011, 06:35 AM
Replies: 28
Views: 5,028
Posted By Raquel
Re: Lung met question

Thanks for the replys!They have been a huge asset in my decisin making on this. I am waiting for a call for a biopsy and we'll go from there.This Dr wants to investigate how many scans ago this...
Forum: her2group 10-19-2011, 07:00 PM
Replies: 28
Views: 5,028
Posted By Raquel
Re: Lung met question

HI Everyone! Just checking in,I go Fri to meet with a surgical oncologist to see what he says. I want to meet with an rfa Dr too but they seem to want me to meet with the surgeon first.Joan,your...
Forum: her2group 09-26-2011, 08:09 PM
Replies: 28
Views: 5,028
Posted By Raquel
Re: Lung met question

I went for my second opinion and didn't find out much, he is sending my scans to a surgical board to review to see if a biopsy is possible or surgery.He suggested a brand new study too but I'd rather...
Forum: her2group 09-26-2011, 04:13 AM
Replies: 6
Views: 2,067
Posted By Raquel
Smile Re: Waht is TDM l?

Thanks for the advice, I was thinkng that it would be better to just be done with this annoying spot! It's so nice to have so many cancer sisters to call on!
Forum: her2group 09-24-2011, 05:22 PM
Replies: 6
Views: 2,067
Posted By Raquel
Re: Waht is TDM l?

Thanks! I did look up that petition and sign it, I hope it goes through fast, there are alot of people who need this new treatment and who don't qualify for the trial. I am one of them!
Forum: her2group 09-24-2011, 05:14 PM
Replies: 28
Views: 5,028
Posted By Raquel
Re: Lung met question

Thank you all for your input, now I have many good questions to ask Monday when I go for my second opinion. I asked my nurse how they knew for sure it was cancer and she said it showed a high...
Forum: her2group 09-21-2011, 06:24 PM
Replies: 6
Views: 2,067
Posted By Raquel
Waht is TDM l?

I'm new to this treament and wondered what it stood for? I was told I didn't meet the criteria for a trial that was a combo of herceptin and a new drug, is this it?
Forum: her2group 09-21-2011, 06:08 PM
Replies: 28
Views: 5,028
Posted By Raquel
Re: Lung met question

That's a good question.Have you gone for a second opinion?It doesn't hurt and maybe you'll get an answer.I think it's frustrating to know something is there but they just wait to see.Sorry your going...
Forum: her2group 09-21-2011, 05:44 PM
Replies: 28
Views: 5,028
Posted By Raquel
Re: Lung met question

Joan,
What is an RFA?Was the lung surgery painful?My tumor is deep in and they can't get to it to biopsy it.How did they know for sure what yours was,they told me that my tumor didn't light up til...
Forum: her2group 09-20-2011, 06:48 PM
Replies: 28
Views: 4,126
Posted By Raquel
Re: Need some advice

I have gone through similar feelings about my new body shape, I was not able tohave reconstruction and I chose not to wear the flasies either.I think we are our worst critics, I recentl had another...
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