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Search took 0.01 seconds. Search: Posts Made By: MichelleMoon
Forum: Herceptin / Tykerb 04-30-2007, 01:44 PM
Replies: 6
Views: 2,390
Posted By MichelleMoon
No big Herceptin run for me either

I've been taking Herceptin since June '06. First with Taxol and now with Xeloda/Tykerb. I had about 4 months on Herceptin alone before my lung tumor woke up again. I hoped to get so much more. My...
Forum: her2group 04-30-2007, 07:55 AM
Replies: 10
Views: 1,750
Posted By MichelleMoon
Generic for Zofran

I use Zofran for nausea and, like you was trying to minimize my intake after the shock at the register! Well, now there is a generic for Zofran...ONDANSETRON HCL. My last monthly order was just a...
Forum: her2group 04-11-2007, 12:25 PM
Replies: 1
Views: 824
Posted By MichelleMoon
Not too much history

Hi Amy,

I finished WBR very recently, so my experience is limited to this year only. I would also like to hear from people who have been a year or more out from WBR.

During the 15 rad...
Forum: her2group 04-11-2007, 12:20 PM
Replies: 10
Views: 1,194
Posted By MichelleMoon
Everyone is different, but...

I kept working full time plus during my first episode of BC. I only missed time for chemo every 3 weeks and daily radiation. I scheduled all this to be as minimally invasive to my job/family as...
Forum: her2group 04-06-2007, 05:23 AM
Replies: 11
Views: 1,687
Posted By MichelleMoon
New to this

My brain mets were discovered in January. I had 7 small mets, all in the 2-4 mm range. The radiologist thought there was a strong liklihood there were more we couldn't see, so she recommended WBR. ...
Forum: her2group 04-05-2007, 03:50 AM
Replies: 21
Views: 2,818
Posted By MichelleMoon
Kids and BRCA

I was pretty sure I had one of the BRCA genes once BC started popping up all over the family, including my mom. Like you, I didn't see the point in getting tested but went ahead anyway, mostly to...
Forum: her2group 04-02-2007, 10:44 AM
Replies: 5
Views: 1,226
Posted By MichelleMoon
It stinks!

Hi Angela,

Just 2 weeks ago, I weaned myself off the decadron...alleluhia! Only very bland foods tasted good to me and, yes, my stomach was extended. As long as you're not having symptoms (i.e....
Forum: her2group 03-16-2007, 03:11 PM
Replies: 6
Views: 1,033
Posted By MichelleMoon
Sounds like great fun

I would really enjoy meeting others in the area (I'm in Naperville), but that's a big gardening weekend for me and I'm sure my kids will want me home to celebrate Mother's Day. Maybe we can hook up...
Forum: her2group 03-16-2007, 03:07 PM
Replies: 6
Views: 1,444
Posted By MichelleMoon
Higher rate of recurrence?

Have you been told that testing positive for BRCA 1/2 makes you more susceptable to recurrences? These cancers (at least BRCA 1) are more agressive, but I don't know if that means we have a higher...
Forum: her2group 03-16-2007, 04:59 AM
Replies: 7
Views: 1,660
Posted By MichelleMoon
My doc wants me on Tykerb ASAP...

...because there's evidence it crosses the blood/brain boundary and I just finished WBR treatment. The Tykerb won't blast existing tumor but can help prevent recurrence of brain mets. Last time I...
Forum: her2group 03-11-2007, 06:38 AM
Replies: 17
Views: 1,494
Posted By MichelleMoon
Yippee!

I was sending positive vibes your way all week! Wishing you a very quick recovery.
Forum: her2group 02-28-2007, 12:55 PM
Replies: 4
Views: 1,314
Posted By MichelleMoon
Can they really tell it's working?

Hi Angela,

I finished 15 WBRTs a month ago. I'll have a follow-up MRI after 6 weeks (so mid-March). My doctor implied there's not much they can know until then because the tumors are still...
Forum: her2group 02-28-2007, 08:23 AM
Replies: 11
Views: 2,395
Posted By MichelleMoon
A few weeks ahead of you...

I'm sorry you have to go through this, Darita. I had 7 small lesions (< 4mm) and had WBR in January. I held off taking decadron as long as possible during WBR since I had no symptoms prior to...
Forum: her2group 02-18-2007, 08:46 AM
Replies: 14
Views: 1,750
Posted By MichelleMoon
A few steps ahead of you...

Hi Angela,

I finished WBR in late January to treat multiple very small brain mets. This was after being treated for lung mets last year. So...I'll share my experience with WBR.

I had 15...
Forum: her2group 01-28-2007, 08:30 AM
Replies: 9
Views: 1,646
Posted By MichelleMoon
Yes, get a restest on mets!

YES, YES, get the mets boipsed! My original tumor was HER2- (IHC), but my lung mets tested by FISH were HER2+. It opens up Herceptin and hopefully Tykerb as treatment options!
Forum: her2group 01-28-2007, 08:27 AM
Replies: 6
Views: 1,928
Posted By MichelleMoon
This happened to me!

Thanks for sharing, Al.

My HER2 status did a flip upon mets! My primary BC tumor did not overexpress HER2neu, but my lung mets were slightly HER2+ by FISH.

Just reemphasizes the fact that...
Forum: her2group 01-25-2007, 03:06 AM
Replies: 6
Views: 1,574
Posted By MichelleMoon
Procrit OK

I received Procrit shots nearly every week when I was on chemo last year. The shot itself stings a bit. Like you, I wanted to avoid uneccessary medication, but getting my RBCs up was important to...
Forum: her2group 01-20-2007, 03:39 AM
Replies: 17
Views: 1,273
Posted By MichelleMoon
Happy b-day!

Have a great birthday and thanks for all the wonderful advice and support your provide me and other metsters!
Forum: her2group 01-12-2007, 05:35 AM
Replies: 24
Views: 2,152
Posted By MichelleMoon
Do it, girl!

Angela,

Just remember, the heavy duty stuff will give the Herceptin a power boost!

Go to Victoria's Secret afterward and indulge yourself with some awesome big girl panties!

We'll all be...
Forum: her2group 01-08-2007, 07:14 AM
Replies: 11
Views: 2,185
Posted By MichelleMoon
Why WBR?

I have 7 measurable tumors between 2 and 4.5 mm. The radiology oncologist is concerned there are more that can't be measured or seen yet.

Should I be challenging this treatment plan?
Forum: her2group 01-08-2007, 04:47 AM
Replies: 11
Views: 2,185
Posted By MichelleMoon
Sounds good!

My doctor left me with the impression these brain mets just don't pop up over night and start causing headaches.

With your recent tests, sounds like you should go back to dancing with NED (I hope...
Forum: her2group 01-07-2007, 08:04 PM
Replies: 11
Views: 2,185
Posted By MichelleMoon
Don't know if I'm a good example, but...

Hi Sherry,

I was diagnosed a week ago with brain mets (happy new year) after headaches prompted me to have an MRI. My oncologist has been very good to order tests when I freak out and did order...
Forum: her2group 01-06-2007, 08:56 AM
Replies: 10
Views: 1,547
Posted By MichelleMoon
Was HER-, now HER+

Hi Sandy,

I seem to be a unique case! I was triple negative upon my initial diagnosis in '99. My '06 lung mets had turned HER2+++, so that's why I'm on herceptin. This is why I encourage...
Forum: her2group 01-06-2007, 08:22 AM
Replies: 10
Views: 1,547
Posted By MichelleMoon
How brain mets found

I'm almost afraid to fess up about the brain met symptoms because I don't want to alarm all of you healthy people!

I began having mild intermittent headaches a couple months ago and initially...
Forum: her2group 01-05-2007, 06:46 PM
Replies: 5
Views: 1,222
Posted By MichelleMoon
Just finished Taxol/Herceptin -- my experience

Hi Angela,

I was successfully treated for lung mets with 18 rounds of weekly Taxol + Herceptin, ending in November. I felt really good up until the last few treatments. No nausea and only very...
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