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Search took 0.01 seconds. Search: Posts Made By: Robyn
Forum: her2group 04-02-2007, 07:39 AM
Replies: 6
Views: 1,266
Posted By Robyn
Hi Lori!! It's Robyn, I was on the same...

Hi Lori!!


It's Robyn, I was on the same clincal trial as you, herceptin/omnitarg.

I am off it now, due to slight progession.

I am hoping to get on the tykerb/xeloda....it isn't approved...
Forum: her2group 03-30-2007, 06:45 AM
Replies: 5
Views: 1,261
Posted By Robyn
Thank you sooooooooo much!!!!!!! I called...

Thank you sooooooooo much!!!!!!!

I called the Oshawa line and I am 3 hours away, no big deal, but if my onc agrees, I can be referred to this!! God love the internet!!!!!!

Thank you all...
Forum: her2group 03-29-2007, 02:33 PM
Replies: 5
Views: 1,261
Posted By Robyn
Canada--tykerb?? Can we get it??

Does anyone know this information??

Since I failed herceptin and then the clinical drug omnitarg.....I think I would be eligible for tykerb and xeloda? I am trying to figure out how/if we can...
Forum: her2group 03-13-2007, 08:59 PM
Replies: 30
Views: 3,271
Posted By Robyn
Same question, but we need to know if this is...

Same question, but we need to know if this is going to be available in Canada, or how can we get access to it. I failed herceptin and omnitarg and they won't continue me on even herceptin alone...
Forum: her2group 03-08-2007, 11:00 AM
Replies: 14
Views: 1,875
Posted By Robyn
Kathy, Our situations sound similar.... ...

Kathy,


Our situations sound similar....

I did Herceptin alone, and the only definite thing I could say, was the first loading dosage made me fill like I had a fever, chills and was a bit...
Forum: her2group 03-07-2007, 05:54 PM
Replies: 4
Views: 931
Posted By Robyn
yea!!!! We were wondering where ya...

yea!!!!


We were wondering where ya went!!

Glad you had the chance to get away!!

Take care!
Robyn
Forum: Clinical Trials 03-05-2007, 09:16 PM
Replies: 3
Views: 2,439
Posted By Robyn
Thank you, I appreciate that! Robyn xx

Thank you, I appreciate that!


Robyn
xx
Forum: her2group 03-03-2007, 03:16 PM
Replies: 5
Views: 1,277
Posted By Robyn
Lightbulb Progression on Herceptin.....off it now what?

I was on Herceptin alone, progressed, then the trial herceptin/omnitarg and progessed....my thought is what IF, the herceptin is at least SLOWING down the cancer?? They consider it a failure....but...
Forum: her2group 03-02-2007, 06:58 PM
Replies: 3
Views: 1,234
Posted By Robyn
Calling out again for PattyZ...being asked for on other boards too?

If anyone knows???
She usually checks in?

pattyz, check in if you can?
Ali is asking for you!

Hope you are okay, worried.

Robyn
xx
Forum: Clinical Trials 03-02-2007, 06:54 PM
Replies: 3
Views: 2,439
Posted By Robyn
Off Omnitarg/Herceptin Trial...darn!

Progressed on this trial, minimally, but enough within the parameters. Darn, it was such an easy regime! I had a good 6 cycles and still have good QOL. Waiting patiently to see if Canada...
Forum: her2group 01-13-2007, 08:00 AM
Replies: 1
Views: 870
Posted By Robyn
Scans from drug study still stable!

Pretty pleased with that, considering this regime is so easy!!!



They said maybe a tiny amount of growth, but not enough to determine any real change...especially from CT to CT, and since this...
Forum: her2group 12-08-2006, 01:43 PM
Replies: 9
Views: 1,203
Posted By Robyn
Sounds like you have some great docs on your...

Sounds like you have some great docs on your team!

My original tumor was stage 2a, no nodes involved IDC, extensive DCIS and vascular invasion was present. (2002), in Canada at that time, they...
Forum: her2group 12-04-2006, 02:31 PM
Replies: 8
Views: 1,456
Posted By Robyn
Omnitarg is similar to Herceptin. It is a...

Omnitarg is similar to Herceptin. It is a targeted therapy. If you search this site, someone put a wonderful description of how it works. It is supposed work well along with Herceptin. So far, so...
Forum: her2group 12-02-2006, 11:58 AM
Replies: 4
Views: 1,324
Posted By Robyn
I have lung mets, but have no symptoms at the...

I have lung mets, but have no symptoms at the moment. At the present time, they are stable. They were found on a CT scan because I had a local recur. to mast. scar line. I am doing...
Forum: her2group 12-02-2006, 07:17 AM
Replies: 8
Views: 1,456
Posted By Robyn
Clincal trial is working!

Hi Ladies!

I am on a clincal trial herceptin/omnitarg. I completed two cycles and did a scan the tumor they were measuring for the study was stable! The other tumor not measuring for the study,...
Forum: her2group 10-19-2006, 11:09 AM
Replies: 6
Views: 1,230
Posted By Robyn
new trial Omnitarg and Herceptin (Canada)

I just got word I qualify for this study. I did a search on the board and read a few posts! Hoping this will be a good trial for me....It at least keeps me off the chemo wagon for at least 6 weeks,...
Forum: Clinical Trials 09-30-2006, 06:17 AM
Replies: 0
Views: 1,740
Posted By Robyn
I'm from Canada..hoping to get into Omnitarg/Herceptin Trial.

Anyone else in this trial or have heard of any promising results? It is a phase 2 trial, not randomized. I just have one more part of it to complete to get into the trial. Should be interesting. ...
Forum: Clinical Trials 09-24-2006, 10:11 AM
Replies: 2
Views: 2,438
Posted By Robyn
I am about to begin this trial in London, Ontario Canada!

If all checks out, I will begin this....my onc suggested it and I am will to try it....I am still recouping from septic shock and the least toxic therapy is all I can do at the moment, Herceptin...
Forum: her2group 09-10-2006, 06:13 AM
Replies: 9
Views: 1,796
Posted By Robyn
Cool Hi, I am back....question re:herceptin alone.

It's been a long time since I've posted here....

I had a port placed in April and started my chemo a week later Taxotere and Herceptin, while unknown to us, the port was infected and I developed...
Forum: her2group 04-28-2006, 05:31 PM
Replies: 107
Views: 11,535
Posted By Robyn
My deepest prayers to you and your Family. Thank...

My deepest prayers to you and your Family. Thank you for sharing in her last moments. I have read your posts many many times and have appreciated your advice. Again, I am saddened by this news.
...
Forum: her2group 03-23-2006, 04:51 PM
Replies: 8
Views: 2,680
Posted By Robyn
Going to be starting this regime...I already...

Going to be starting this regime...I already asked onc for the lower dosage...I want to be able to function...have two small kids, work etc....great advice Ladies....it helps to know what to expect....
Forum: her2group 03-23-2006, 04:50 PM
Replies: 4
Views: 1,399
Posted By Robyn
No symtoms either for me....had a CT scan when I...

No symtoms either for me....had a CT scan when I had a local recurrence and at first it should a small nodule, second CT revealed two more...that is what is scary....Glad I got that scan done, as...
Forum: her2group 03-21-2006, 05:39 AM
Replies: 9
Views: 1,442
Posted By Robyn
Need hope...now have lung mets...

Will start taxotere/herceptin....
I am finishing off my rads to chest wall as well....

I have a 8 and 6 year old and need to hear good stories! I have 3 small spots on lungs 1cm is the biggest,...
Forum: her2group 01-16-2006, 02:16 PM
Replies: 6
Views: 1,296
Posted By Robyn
Hi again...

I was orginally dx'd Sept 02. I had chemo shortly after. 6 rounds of FEC. Orginal dx's was T2N0M0. Recur. Oct 05. Tumor excised successfully, clear margins. Will start rads soon to scar line. ...
Forum: her2group 01-16-2006, 05:54 AM
Replies: 6
Views: 1,296
Posted By Robyn
Al...

Thanks for you response...

I don't have skin mets. There is a difference between the two. I have no skin involvement from the tumor the excised. The dermis from my path report is not involved....
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