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Search: Posts Made By: Nurse4u2day
Forum: her2group 02-20-2019, 06:07 PM
Replies: 16
Views: 890
Posted By Nurse4u2day
Re: 7 years stage IV

Great Ned Pam. I like you don’t get on here much but still check in and glad to see some familiar faces but sad to see new ones .
Forum: Inflammatory Breast Cancer 11-18-2018, 12:46 PM
Replies: 3
Views: 1,905
Posted By Nurse4u2day
Re: IBC ( inflammatory breast cancer)

This is very new and interesting information. I see my oncologist this January . Will have to ask her about this .
Thank you
Forum: Herceptin / Tykerb 11-18-2018, 12:37 PM
Replies: 4
Views: 2,694
Posted By Nurse4u2day
Re: Herceptin and Joint Stiffness

While on Herceptin alone I had tremendous bone and muscle pain. Crippling I would say. My doctors agreed it was most likely a combo of the previous treatments but that the herceptin was the straw...
Forum: her2group 11-18-2018, 12:28 PM
Replies: 12
Views: 2,594
Posted By Nurse4u2day
Re: 13 years!!!

Many Congrats to you !!!!!
Forum: her2group 09-06-2018, 05:10 PM
Replies: 111
Views: 14,264
Posted By Nurse4u2day
Re: ZW25 clinical trial - day one

Always saying prayers for you ladies. And yes may you get your horizon back
Forum: Inflammatory Breast Cancer 08-22-2018, 08:58 AM
Replies: 3
Views: 1,905
Posted By Nurse4u2day
IBC ( inflammatory breast cancer)

I was just going through some post and realized there’s not to much here about IBC . So just wanted to give those who have had the diagnosis and there heads are spinning as was mine when I received...
Forum: her2group 08-22-2018, 08:25 AM
Replies: 3
Views: 3,409
Posted By Nurse4u2day
Re: Cannabis anyone?

I’m just starting to do my own research in regards to cannabis to help in keeping cancer at bay. There is a Facebook group that really dives into this. It discusses the different ratios of the/cbd...
Forum: Profiles In Courage 04-14-2018, 04:50 PM
Replies: 51
Views: 30,005
Posted By Nurse4u2day
Re: How many years NED? Give others hope

I was dx Nov 2013 with IBC ..stage3c node positive. I had my last Pet/Ct Feb 20 ,2018 I still remain NED
Forum: her2group 11-26-2017, 12:50 PM
Replies: 6
Views: 3,451
Posted By Nurse4u2day
Re: 6 Years Out

Congrats on the 6 years .
Forum: her2group 11-22-2017, 09:03 AM
Replies: 3
Views: 3,163
Posted By Nurse4u2day
Re: Friend recently diagnosed with recurrence

Thank you Carol and Tricia. My friend is having her scan today so then we will know what she is up against soon. I so wish she would get a new oncologist. I personally have no faith in the...
Forum: her2group 11-19-2017, 04:03 PM
Replies: 15
Views: 6,282
Posted By Nurse4u2day
Re: Another year

As a fellow IBCer this is great news. May you continue to stay in this great place called remission.
Forum: her2group 11-19-2017, 03:40 PM
Replies: 3
Views: 3,163
Posted By Nurse4u2day
Friend recently diagnosed with recurrence

Hello everyone . It's been awhile but I still check up on everyone . The reason I'm here today is not for myself as I'm doing well, still NED . I'm inquiring regarding a friend. She was just...
Forum: Profiles In Courage 10-01-2017, 05:53 PM
Replies: 51
Views: 30,005
Posted By Nurse4u2day
Forum: her2group 10-01-2017, 05:48 PM
Replies: 27
Views: 7,834
Posted By Nurse4u2day
Re: Our Waterdreamer is Gone

I have not been on here for sometime and am very saddened to hear about waterdreamer.
Forum: her2group 07-11-2017, 02:14 PM
Replies: 31
Views: 14,403
Posted By Nurse4u2day
Re: 12 years, but who is counting?

Love to hear this news. It always gives hope to others just starting out and even for those of us that are years out
Forum: Herceptin / Tykerb 06-15-2017, 05:12 PM
Replies: 4
Views: 2,694
Posted By Nurse4u2day
Re: Herceptin and Joint Stiffness

I had severe stiffness, joint and muscle pain once I started on herceptin alone. When I say severe I mean in tears severe. I was seen by a rheumatologist and based on labs they stayed I had...
Forum: her2group 05-21-2017, 05:15 PM
Replies: 8
Views: 6,670
Posted By Nurse4u2day
Re: Lymphovascular invasion / survivors ?

Hello Lilneenz... I had a diagnosis that included lymph vascular invasion. Dx Nov 2013 with IBC and nodes involved as well. I remain NED 3 1/2 years later. Hope this gives you some hope.
Forum: her2group 12-23-2016, 08:43 PM
Replies: 40
Views: 13,259
Posted By Nurse4u2day
Forum: her2group 03-19-2016, 05:17 PM
Replies: 7
Views: 3,496
Posted By Nurse4u2day
Re: PET/CT vs CT only

I just had a pet/ct scan yesterday because of ongoing lower back/hip pain. They did an MRI 2 months ago and it was clear so my oncologist agreed it was time for a pet/ct.
Thankfully it came back...
Forum: her2group 01-24-2016, 05:47 PM
Replies: 8
Views: 2,834
Posted By Nurse4u2day
Re: 2 years since diagnoses, 1 year since last treatment

Agness I did get the brain scan and other then some calcifications ( which I had prior to cancer ) my brain scan was all clear. Just 2 weeks ago they also did an ex ray of my back and coccyx area as...
Forum: her2group 01-24-2016, 03:37 PM
Replies: 8
Views: 2,834
Posted By Nurse4u2day
2 years since diagnoses, 1 year since last treatment

Hello Ladies,
Just wanted to touch bases and say I'm still around. I don't post much these days but continue to follow the group. My update: as of yesterday I am one year from last Herceptin tx and...
Forum: her2group 12-31-2015, 08:21 PM
Replies: 19
Views: 5,914
Posted By Nurse4u2day
Re: Vitamin D Testing Frequency

3 months ago my vitamin d test was at 20.... Just got retested today, so let's see what the new year brings
Forum: her2group 12-04-2015, 03:44 PM
Replies: 9
Views: 3,817
Posted By Nurse4u2day
Re: 50 hours post TCH chemo and my body feels like going through withdrawals

This indeed sounds like a side effect of the steroids. I felt exactly what you are expressing. The only thing that helped me was at night I would at doctors orders take 2mg Ativan to help with sleep....
Forum: her2group 12-04-2015, 03:32 PM
Replies: 17
Views: 4,557
Posted By Nurse4u2day
Re: 6 Year Anniversary since dx :)

Congrats on the 6years and clean scans!!!
Forum: her2group 11-24-2015, 01:40 PM
Replies: 4
Views: 3,158
Posted By Nurse4u2day
Re: Retesting Brca 1,2

I was tested in 2013 for the Brca was negative. Then in 2015 I found out about this huge my risk panel that they can test for like 47 genes including the Brca again. It was called my risk. I think...
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