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Search took 0.01 seconds. Search: Posts Made By: Myra Lynn
Forum: her2group 03-19-2012, 09:49 PM
Replies: 48
Views: 5,693
Posted By Myra Lynn
Re: Today I Celebrate 10 Years as a Survivor

WOW, Sheila! Does that cancer know who it's up against? I think it might as well just give up now. Given this long and bumpy road, I am so fortunate to be going it with the likes of you. Here's...
Forum: her2group 03-19-2012, 08:45 PM
Replies: 28
Views: 3,447
Posted By Myra Lynn
Re: bad news again..

I'm for the trip, the trial, and mainly behind you getting what you need to fight this. I am sending all of my positive thoughts and hopes to you.
Forum: her2group 02-28-2012, 08:49 PM
Replies: 12
Views: 2,266
Posted By Myra Lynn
Re: Is there anyone who could not take AI's?

Thanks so much to all of you. As always, you are the best support system and have given me food for thought. I feel in better shape now to make a decision. Will probably wait to speak with my...
Forum: her2group 02-28-2012, 07:16 AM
Replies: 12
Views: 2,266
Posted By Myra Lynn
Re: Is there anyone who could not take AI's?

What I like about my onc is that he does everything gradually. I've been taking Aromasin 3X wk, rather than 7X but it has already affected my liver. The Arimidex seemed the best. Just a permanently...
Forum: her2group 02-27-2012, 10:35 PM
Replies: 12
Views: 2,266
Posted By Myra Lynn
Re: Is there anyone who could not take AI's?

Thanks Dianne, reminds me that we are individuals within this group, much in common, but with unique differences and challenges. I so appreciate hearing from you and others as I try to sort this out....
Forum: her2group 02-27-2012, 03:56 PM
Replies: 12
Views: 2,266
Posted By Myra Lynn
Re: Is there anyone who could not take AI's?

Thanks Rhonda, interesting links. And Karen, I do hope I get more feedback.

I am frankly in a real quandary. When I developed trigger finger, I went to a hand surgeon who thought it could be...
Forum: her2group 02-26-2012, 09:53 PM
Replies: 12
Views: 2,266
Posted By Myra Lynn
Is there anyone who could not take AI's?

I had a shock last week when my doctor said that Aromasin was adversely affecting my liver. I thought that we had finally found an AI that I could tolerate. He said that I had tried all 3 and was...
Forum: Diet and Nutrition 01-20-2012, 06:26 AM
Replies: 14
Views: 15,174
Posted By Myra Lynn
Re: any help for vaginal dryness?

Many thanks, Becky, incredibly helpful. Gives me some hope.
Forum: Diet and Nutrition 01-19-2012, 09:17 PM
Replies: 14
Views: 15,174
Posted By Myra Lynn
any help for vaginal dryness?

I have been having painful dryness that is interfering with everyday functioning. It started after a year of taking aromatase inhibitors. Does anyone have experience or recommendations for what...
Forum: her2group 09-29-2011, 08:49 PM
Replies: 7
Views: 1,690
Posted By Myra Lynn
Re: It's Rosh Hashana - Happy New Year!

L'Shana Tova
May there be blessings for all in the new year!
Forum: her2group 09-29-2011, 08:31 PM
Replies: 5
Views: 3,026
Posted By Myra Lynn
Re: Anyone know about bullous pemphigoid?

Thanks, Joni, interesting to hear from someone who knows something about it. I'm doing fine now, but always nervous when I get any itchy spot. Just a little more anxiety to live with!
Forum: her2group 09-28-2011, 01:46 PM
Replies: 5
Views: 3,026
Posted By Myra Lynn
Re: Anyone know about bullous pemphigoid?

Thanks for sharing this. Hard to know what causes what. I even had cancer markers in blood tests that were off, maybe due to this condition. But, I am lucky now to feel fine without new eruptions....
Forum: her2group 08-15-2011, 08:15 PM
Replies: 5
Views: 1,925
Posted By Myra Lynn
Re: 'Cancer bone health' from Cure magazine

I enjoyed your father's story. Made me think of my own dad who did not have as dramatic a life (though he was a NYC fire capt.) & lived until age 96 with untreated prostate cancer. He went to the...
Forum: her2group 08-15-2011, 07:55 PM
Replies: 22
Views: 5,376
Posted By Myra Lynn
Re: Up at 5 am on my 5 year cancerversary

How wonderful! I could not be happier for you, Laureen.
Forum: her2group 08-15-2011, 10:35 AM
Replies: 37
Views: 5,977
Posted By Myra Lynn
Re: ca.2729 big jump

Just saw all the TDM-1 information. What a great group!
Forum: her2group 08-15-2011, 10:33 AM
Replies: 37
Views: 5,977
Posted By Myra Lynn
Re: ca.2729 big jump

Pam, I hate that you have to go through more of this. I am hoping for some good news along the way & sending good thoughts your way.
Forum: her2group 08-09-2011, 09:17 PM
Replies: 5
Views: 3,026
Posted By Myra Lynn
Re: Anyone know about bullous pemphigoid?

Thanks Tricia, how kind of you to research this! I am thinking more and more that I need a holistic doctor who looks at the whole person, focusing on health & supporting the immune system, as part...
Forum: her2group 08-09-2011, 09:04 PM
Replies: 19
Views: 8,271
Posted By Myra Lynn
Re: Spot on lungs found on PET - nurse says dont lose any sleep!!!

My heart goes out to you for the loss of your grandson. It must be very hard to take good care of yourself at a time like this. I hope you get the help and support you need.

I also think the...
Forum: her2group 08-08-2011, 09:25 PM
Replies: 5
Views: 3,026
Posted By Myra Lynn
Anyone know about bullous pemphigoid?

Has anyone had experience with bullous pemphigoid? I was recently diagnosed by a dermatologist who biopsied the skin under a large blister on my leg. Now there is a new blister in my mouth. It is...
Forum: her2group 08-08-2011, 09:08 PM
Replies: 25
Views: 4,639
Posted By Myra Lynn
Re: Also HER2 Site Founder Christine's birthday!

Happy Birthday, Christine, and many thanks for giving us such a wonderful, powerful support group.
Forum: her2group 08-05-2011, 10:35 PM
Replies: 23
Views: 5,101
Posted By Myra Lynn
Re: I might be in trouble.

I was away & just saw your post. Could not be happier for you!
Forum: her2group 07-29-2011, 05:33 PM
Replies: 14
Views: 3,274
Posted By Myra Lynn
Re: trigger finger

Thanks Tricia, I am sure it's the Arimidex and , armed with everyone's experience, will discuss options with my onc. He didn't believe that joint pain was a side effect of the AI's until I landed in...
Forum: her2group 07-29-2011, 10:56 AM
Replies: 14
Views: 3,274
Posted By Myra Lynn
Re: trigger finger

I thank you for this. It gives me more ammunition to ask the onc for a change. I will do it after my next blood test (since that seems to be an issue). You are another person who inspires me in...
Forum: her2group 07-29-2011, 05:21 AM
Replies: 14
Views: 3,274
Posted By Myra Lynn
Re: trigger finger

I will Bonnie. I could not do it without the rest of you. I have much more confidence in talking with my doctors when I can borrow from everyone's experience. They often have no clue about the...
Forum: her2group 07-28-2011, 09:16 PM
Replies: 14
Views: 3,274
Posted By Myra Lynn
Re: trigger finger

Tricia, I wish the same would happen to me, but it seems that every day it's getting worse. I am trying to reach the osteopath about acupuncture, but I also have to have a talk with my onc. I don't...
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