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Forum: her2group 10-09-2009, 06:02 AM
Replies: 2
Views: 1,219
Posted By Paris
Re: Not enough....

I totally agree with you Jean. I just took the test and based my answers on my age just prior to diagnosis and had a five year risk of 1.1% and that was with one family member already having a breast...
Forum: her2group 10-03-2009, 05:51 PM
Replies: 9
Views: 1,708
Posted By Paris
Re: New figures (from one cancer center) of incidence of cardiomyopathy from hercepti

I hope that oncologists become more aware of this side effect as was not the case with mine. I think anyone who received a/c chemo and or herceptin should be seen by a cardiologist and followed...
Forum: her2group 04-01-2009, 06:18 AM
Replies: 3
Views: 1,838
Posted By Paris
Part of the problem is oncologists are not...

Part of the problem is oncologists are not cardiologists. I went through the ringer trying to get my oncologist to pay attention to my symptoms. Part of it is the percentage of patients who go on to...
Forum: her2group 03-12-2009, 12:29 PM
Replies: 12
Views: 2,307
Posted By Paris
The 25% number jumped out at me too. I am...

The 25% number jumped out at me too. I am assuming the 25% is in addition to the benefit derived from doing chemo which is 33%.

What I am extrapolating from this is that over time more people...
Forum: her2group 02-25-2009, 07:56 AM
Replies: 16
Views: 2,589
Posted By Paris
Hi Jean, Do you mean how long herceptin...

Hi Jean, Do you mean how long herceptin suppresses the Her2 oncogene? I'd be very interested to know that. The most I've found in that regard is that the more aggressive subtypes Her2 bc and triple...
Forum: her2group 02-25-2009, 07:48 AM
Replies: 11
Views: 2,213
Posted By Paris
I second the echocardiogram.

I second the echocardiogram.
Forum: her2group 01-14-2009, 07:23 AM
Replies: 22
Views: 2,470
Posted By Paris
The first round is the hardest just because you...

The first round is the hardest just because you don't know what to expect or how you are going to feel. Yes, it does seem surreal at times. I'm two years out and there are days where I can't believe...
Forum: her2group 01-05-2009, 07:58 AM
Replies: 18
Views: 2,875
Posted By Paris
This is a very thought provoking thread and I...

This is a very thought provoking thread and I think some very valid points have been made especially Alaska Angel's. I was in your shoes two years ago-no nodes, clean margins no vascular invasion...
Forum: her2group 12-16-2008, 07:41 AM
Replies: 23
Views: 5,170
Posted By Paris
Thanks for your kind replies ladies. I often find...

Thanks for your kind replies ladies. I often find when I read these studies that I have more questions than I did before reading. It would have been much more imformative if the researchers had split...
Forum: her2group 12-13-2008, 07:55 AM
Replies: 23
Views: 5,170
Posted By Paris
Anyone with tumors less than one centimeter?

Having read the latest research from this year's SABC about the high rate of recurrence for very small node negative HER2+ tumors I am thanking God I did herceptin but am wondering if there is any...
Forum: her2group 11-06-2008, 07:14 AM
Replies: 28
Views: 4,541
Posted By Paris
I'm glad you were able to come to a decision. It...

I'm glad you were able to come to a decision. It is so tough to come up with the "right" solution. We are making critical life decisions based on ever changing research. The best we can do is educate...
Forum: Herceptin / Tykerb 11-04-2008, 07:26 AM
Replies: 11
Views: 1,956
Posted By Paris
So what about those of us who received herceptin...

So what about those of us who received herceptin sequentially and had to end treatment early due to cardiotoxicity?

Paris
Forum: her2group 10-30-2008, 06:43 AM
Replies: 2
Views: 1,289
Posted By Paris
Thank you for posting this Elaine as I went...

Thank you for posting this Elaine as I went through something similar. You HAVE to be your own advocate. You can't expect your onc. to know everything and unfortunately mistakes can happen. If you...
Forum: her2group 10-27-2008, 06:29 AM
Replies: 13
Views: 2,221
Posted By Paris
Thanks, Harrie and Jean. I guess I'm looking for...

Thanks, Harrie and Jean. I guess I'm looking for that finish line where I can say I beat this thing and not have to worry about it anymore. I am doing my best to stay hopeful. I would assume that...
Forum: her2group 10-26-2008, 08:19 PM
Replies: 13
Views: 2,221
Posted By Paris
So when do we get to breathe?

I am coming up on the second anniversary of my bc diagnosis. While I did not worry much the first year about recurrence I find myself thinking about it more. I'm doing my best to take care of myself...
Forum: her2group 08-29-2008, 06:58 PM
Replies: 15
Views: 1,818
Posted By Paris
I think it boils down to what's comfortable for...

I think it boils down to what's comfortable for you. I got two opinions regarding chemo; one from my local cancer hospital and the second from leading cancer center. Both had the same recommendation...
Forum: her2group 08-17-2008, 06:42 PM
Replies: 20
Views: 2,797
Posted By Paris
Fired my onc. Got tired of the "I've never seen...

Fired my onc. Got tired of the "I've never seen that" response and seeing in his notes that he was "perplexed" regarding my symptoms after chemo. Idiot.
Forum: her2group 07-13-2008, 06:56 AM
Replies: 3
Views: 1,037
Posted By Paris
Hi Lani, Do you know if these side effects...

Hi Lani, Do you know if these side effects continued after treatment with herceptin ended? I'm curious because I had lots of gastro issues while on herceptin and even though I'm six months out from...
Forum: her2group 06-15-2008, 02:39 PM
Replies: 16
Views: 2,238
Posted By Paris
I was on taxotere and had really bad mood swings...

I was on taxotere and had really bad mood swings when I finished it. I would burst into tears several times a day at the littlest thing. I thought it was hormones but reading this study maybe it...
Forum: her2group 05-28-2008, 07:26 PM
Replies: 5
Views: 1,386
Posted By Paris
I do believe Katie Couric said that a portion...

I do believe Katie Couric said that a portion would be going to "out of the box" research which currently has a shortage of funding. I was shocked at the statistics of one of every two men and one of...
Forum: her2group 05-21-2008, 06:16 AM
Replies: 4
Views: 1,552
Posted By Paris
Hi Lani, Could you either post or link to figure...

Hi Lani, Could you either post or link to figure 3? I was able to find article on pubmed but not figure 3 (although it's the first time I've pulled something up on that site). Thanks!
Forum: her2group 04-18-2008, 06:28 AM
Replies: 10
Views: 1,590
Posted By Paris
None of my doctors suggested this. I have thought...

None of my doctors suggested this. I have thought about it though. Are the recommendations different for colon cancer screening if you've had breast cancer? Is there a link between the two? I had...
Forum: her2group 04-18-2008, 06:09 AM
Replies: 9
Views: 1,371
Posted By Paris
Having had a core needle biopsy but being node...

Having had a core needle biopsy but being node negative by sentinel node biopsy do I have nothing to worry about?

With each bit of research and information sometimes creating more confusion for me...
Forum: her2group 04-11-2008, 10:14 AM
Replies: 8
Views: 1,255
Posted By Paris
My red counts have always been mildly anemic so...

My red counts have always been mildly anemic so yes, I wonder about the recurrence too. Plus I had four shots of aranesp that I really shouldn't have gotten now that the latest studies have been...
Forum: her2group 04-08-2008, 07:57 AM
Replies: 11
Views: 1,873
Posted By Paris
Hi Sherry, I have something similar. It...

Hi Sherry,

I have something similar. It started between my second and third rounds of chemo. I would start scratching in one place and then my entire body would itch. The more I scratched the more...
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