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Search: Posts Made By: turbo
Forum: her2group 04-18-2013, 07:37 PM
Replies: 165
Views: 13,742
Posted By turbo
Re: update I hate to give (with a little more positive spin)

Thank you for being an inspiration and always positive ..you have inspired many. prayers are out for some more magic and time.
Forum: her2group 02-21-2012, 09:45 AM
Replies: 389
Views: 107,606
Posted By turbo
Thumbs up Re: Calling all stage iv sisters

stage !V lung mets 5years on Herception only NED
Forum: her2group 09-17-2010, 08:32 PM
Replies: 46
Views: 7,461
Posted By turbo
Re: Positive stories, please come out of the woods

I have not posted for quite awhile....want to spread hope with more positive stories. I was first diagnosed in '98
dcis ,then 2003 stage 3..then lung mets 2006.....stable 3yrs and now NED on...
Forum: Profiles In Courage 07-18-2010, 11:17 PM
Replies: 10
Views: 13,850
Posted By turbo
Re: Any lung mets survivors??

I am one that hasn't been online for awhile...too busy living active life! Lung mets for almost 4 years..er +...NED on herceptin for 1 +1/2 yrs
working part-time,healthy eating and excercise...
Forum: Herceptin / Tykerb 01-18-2009, 11:05 AM
Replies: 8
Views: 1,562
Posted By turbo
thanks sheila same regimen i am on only 3500...

thanks sheila same regimen i am on only 3500 xeloda a day ...seems high ,I weigh 137 , dose is supposed to correlate to. I Know my doc will reduce if I have side effects...I have been on 6 days and...
Forum: Herceptin / Tykerb 01-15-2009, 12:39 AM
Replies: 8
Views: 1,562
Posted By turbo
Thanks ...sounds encouraging!

Thanks ...sounds encouraging!
Forum: her2group 01-04-2009, 01:55 PM
Replies: 10
Views: 1,361
Posted By turbo
what dose of xeloda were you on...hoping to avoid...

what dose of xeloda were you on...hoping to avoid HFS due to walking being part of my work!
Forum: her2group 01-04-2009, 01:54 PM
Replies: 10
Views: 1,361
Posted By turbo
xeloda dose

starting xeloda and wondering what the lowest dose that is reccommended to avoid HFS is?
Forum: Herceptin / Tykerb 01-03-2009, 11:14 AM
Replies: 8
Views: 1,562
Posted By turbo
advice on herceptin/xeloda combo/

I will be going off a phase 1 trial of Tykerb escalated dose . I have done well on tykerb for almost 2 years...stable(first 16 mo. w/avastin) Any progression in phase one means need to go off and I...
Forum: Herceptin / Tykerb 12-27-2008, 12:15 PM
Replies: 17
Views: 2,130
Posted By turbo
I have been on Tykerb for 21 months and take an...

I have been on Tykerb for 21 months and take an hour after breakfast so less nausea also late right at bedtime. Have never had any illness from it . My diet affects mild nausea...keep something in...
Forum: Herceptin / Tykerb 07-29-2008, 11:44 PM
Replies: 18
Views: 1,838
Posted By turbo
Wink Sorry, I was vague on that posting...I do eat a...

Sorry, I was vague on that posting...I do eat a small amt. of Dark choc....Also I have organic yogurt every morning with fresh fruit!
Forum: Herceptin / Tykerb 07-29-2008, 11:40 PM
Replies: 18
Views: 1,838
Posted By turbo
I agree...My diet low sugar,dairy(dark choc. of...

I agree...My diet low sugar,dairy(dark choc. of course!) white flour, meat ..no processed foods! Also many small meals! So far doing well on Tykerb.
Forum: her2group 07-27-2008, 03:21 PM
Replies: 47
Views: 3,520
Posted By turbo
Thanks for passing that article on...I am...

Thanks for passing that article on...I am currently on Trial at UcSf ..targeted Therapy!
Forum: Herceptin / Tykerb 07-15-2008, 10:29 AM
Replies: 10
Views: 1,826
Posted By turbo
I have been on Tykerb 1 1/2 years...no skin...

I have been on Tykerb 1 1/2 years...no skin discoloration!
Forum: Herceptin / Tykerb 07-14-2008, 10:41 PM
Replies: 18
Views: 1,838
Posted By turbo
I wish I read your question sooner but have not...

I wish I read your question sooner but have not checked postings for a while. I have been on Tykerb for 18 months with very little side effects. No rashes and very infrequent diarrhea which I...
Forum: Herceptin / Tykerb 05-28-2008, 03:56 PM
Replies: 3
Views: 971
Posted By turbo
Thanks for your input...I have been on Arimidex...

Thanks for your input...I have been on Arimidex in the past with no side effects...does aromasin have any side effects due to being a steroid?
Forum: Herceptin / Tykerb 05-27-2008, 05:29 PM
Replies: 3
Views: 971
Posted By turbo
Question herceptin/aromasin

Has anyone been on this Herceptin?Aromisin combo? I am coming off a very good year+ on the tykerb/avastin trial ...stable. My Doc suggests this or a new trial for Accellerated dose Tykerb...
Forum: her2group 03-31-2008, 12:28 PM
Replies: 13
Views: 1,204
Posted By turbo
sounds crazy, but I got gel nails after a year of...

sounds crazy, but I got gel nails after a year of cracked sore nails and skin..completely against my purest philosophy of using only natural products, but so far no sore or cracked skin...the fake...
Forum: her2group 02-12-2008, 12:02 PM
Replies: 2
Views: 535
Posted By turbo
I have been on this Trial for since 3/07 with...

I have been on this Trial for since 3/07 with minor side effects and great energy...after the first 2 treatments 30%decrease in lung met....stable! good luck!
Forum: her2group 02-12-2008, 11:57 AM
Replies: 29
Views: 2,176
Posted By turbo
so glad to hear you started this trial...we are...

so glad to hear you started this trial...we are so lucky to be near UCSF...prayers for great results!
Forum: Herceptin / Tykerb 01-27-2008, 11:43 PM
Replies: 26
Views: 3,806
Posted By turbo
I am on the tykerb/ avastin trial and have no...

I am on the tykerb/ avastin trial and have no fatigue,occasional rash(rare) a little nausea after the pills for a short time...rare diarhea,nail cracking and sore. Is tykerb approved to be used alone?
Forum: her2group 01-22-2008, 10:51 AM
Replies: 47
Views: 3,520
Posted By turbo
chrisy, glad to hear about an exciting new...

chrisy, glad to hear about an exciting new treatment. I am still on The Tykerb/avastin trial...so far so good.I know that can change at any time so good to hear about this new trial!
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