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Search: Posts Made By: chrisy
Forum: her2group 04-27-2013, 08:13 PM
Replies: 165
Views: 13,749
Posted By chrisy
Re: update I hate to give (with a little more positive spin)

Hi all,

This is Steph, Chris' sister and I am sad to tell you that Chris passed away late Thursday evening. Her husband was with her, holding her hand and she was not alone. And she is no longer...
Forum: her2group 04-19-2013, 06:24 PM
Replies: 165
Views: 13,749
Posted By chrisy
Re: update I hate to give (with a little more positive spin)

Hey guys, quick update still along growing. Tour posts - and suggestionsare much appreciated and on the radar should we accomplish the goal of keep ongoing my liver function while under such rudest....
Forum: her2group 04-05-2013, 02:59 PM
Replies: 165
Views: 13,749
Posted By chrisy
Re: update I hate to give (with a little more positive spin)

Just rereading my post...what a downer it was! So not my style. So I changed it a little.

Forgot to add...the eribulin also increases bilirubin. So although it's very precarious there's...
Forum: her2group 04-05-2013, 01:52 PM
Replies: 165
Views: 13,749
Posted By chrisy
Thumbs down update I hate to give (with a little more positive spin)

Well sisters, and brothers...

Looks like I'm teetering on the edge of acute liver failure. I'm still fighting and so far on the right side of the grass, but facing some very scary times.
...
Forum: her2group 04-01-2013, 08:17 PM
Replies: 23
Views: 4,239
Posted By chrisy
Re: "More than 20 lesions" - MRI report

Penny,
By definition herceptin alone doesn't work if you have had progression. It needs hep.

I asked the same question before I went on TDM1 - why would this work if herceptin.

My dr gave a...
Forum: her2group 03-29-2013, 03:37 PM
Replies: 9
Views: 808
Posted By chrisy
Re: Hitting the wall

Be gentle with yourself, chemo can be rough stuff, and it's physical impact is cumulative and will definitely take its toll. You can be grateful you have these powerful weapons to fight with, yet...
Forum: her2group 03-28-2013, 08:02 PM
Replies: 29
Views: 1,844
Posted By chrisy
Re: Scan tomorrow!

Not the news you were hoping for I know, but TDM1 is a great dreg, not quite as mich fun as no chemo, but light years better than taxotere!

All he best to you, penny

Oh I forgot to say, TDM1...
Forum: her2group 03-18-2013, 02:26 PM
Replies: 25
Views: 1,694
Posted By chrisy
Re: The Queen Of Weird Side Effects

Thanks for bringing this up in such a humorous fashion. I'll have to check out the rabbit thi, it is Easter after a all!

One question, what's a vagina? I think I used to know way back but have...
Forum: her2group 03-18-2013, 02:24 PM
Replies: 17
Views: 1,444
Posted By chrisy
Re: Need advice - warning - not pretty

Been there. The worst.
What was recommended to me and eventually worked the best was every a,m miealax and stool softener am and pm. I had to watch it and adjust as necessary. if no "progress",...
Forum: her2group 03-17-2013, 02:42 PM
Replies: 19
Views: 5,841
Posted By chrisy
Re: TDM1/Kadcyla Experiences

Anne, in the original Phase 1studies, patients had had a median of 7 prior therapies (I asse but do not remember if they all included chemo) with a rage is something like 3-12. Where I went on the...
Forum: her2group 03-15-2013, 05:31 PM
Replies: 113
Views: 8,454
Posted By chrisy
Re: Chemo Failure #3...now I'm doing what???

Ha ha.. I actually slept thru 3 Harry potter movies! I was out so fast on Tuesday I missed everything and forgot I had even missed it! I saw all movie 4 but maybe the skelegro kicked in and was a...
Forum: her2group 03-14-2013, 06:30 PM
Replies: 113
Views: 8,454
Posted By chrisy
Re: Chemo Failure #3...now I'm doing what???

The other part is, assuming I am doing well next week, ROUND 2 will be on the following Wednesday! Then hopefully a scan to see what's happening...then maybe round 3! The IR, Dr Kickass, called to...
Forum: her2group 03-14-2013, 03:30 PM
Replies: 113
Views: 8,454
Posted By chrisy
Re: Chemo Failure #3...now I'm doing what???

Hi

Just checking in to let you know I'm still here! The TACE procedure got done on Monday. True to the hype, the procedure itself was not painful but the aftermath is. I had the procedure done on...
Forum: her2group 03-11-2013, 07:04 AM
Replies: 113
Views: 8,454
Posted By chrisy
Re: Chemo Failure #3...now I'm doing what???

Leaning indeed, Denise!


Here I am, slamming down a banana and a chocolate protein Odwalla shake at 6:45 am (which of course feels like 5:45 because of daylight savings time) because I can't eat...
Forum: her2group 03-08-2013, 09:31 PM
Replies: 113
Views: 8,454
Posted By chrisy
Re: Chemo Failure #3...now I'm doing what???

Phil -TDM1 worked for me for 3 years, to NED. I've also been wondering if we might be able to rechallenge with tdm1 and go for a broader blockade.

Emy - I too was interested in the...
Forum: her2group 03-08-2013, 12:57 PM
Replies: 10
Views: 871
Posted By chrisy
Re: Metformin

Thanks Karen,

Keep us posted on this, I had another onc suggest this to me as well although he did not know my history very well.
Forum: her2group 03-08-2013, 12:51 PM
Replies: 113
Views: 8,454
Posted By chrisy
Chemo Failure #3...now I'm doing what???

You all know I'm notorious for not posting updates, particularly not-so-happy ones. I tend to sneak little hints in other posts...

But as my her2family, I know you want to hear what's going on,...
Forum: her2group 03-07-2013, 06:26 PM
Replies: 10
Views: 871
Posted By chrisy
Re: Metformin

KDR, gave you seen any data re networking with ER- / her2+ ? I seem to remember it mostly being of value in ER+.

I geeuss I'll have to summon the energy to google it:)
Forum: her2group 03-04-2013, 08:29 PM
Replies: 34
Views: 2,187
Posted By chrisy
Re: 17 years later...

I love to hear you In your full flori morning glory! Keep it up, sister, especially that beautiful spirit
Forum: her2group 02-25-2013, 06:26 PM
Replies: 30
Views: 4,285
Posted By chrisy
Re: Kadcyla/TDM1 CELEBRATION @ Genentech:)

Karen I've met Mark and he not only was part of Perjeta, bu t worked on herceptin and tdm1. A wonderful man with endless passion and determination.

Flori, Sonali from genentech called me with the...
Forum: her2group 02-25-2013, 06:21 PM
Replies: 13
Views: 1,639
Posted By chrisy
Re: Feel like a mac truck ran over me

Loading doses are , for me, more intense so I hope that will be easier next time. Also, remember that you've been on a bit of a chemo holiday-so it s a rude shock to hit it with taxotere.

Make...
Forum: her2group 02-25-2013, 04:23 PM
Replies: 105
Views: 15,589
Posted By chrisy
Re: Brain Mets - new or old?

Denise, add my special prayers for peace and healing. Don't get ahead of yourself until you know the results if the scam. Easy peasy, right:)

Ha ha iPhone callsds the scan a scam. Hoping it turns...
Forum: her2group 02-25-2013, 04:11 PM
Replies: 30
Views: 4,285
Posted By chrisy
Re: Kadcyla/TDM1 CELEBRATION @ Genentech:)

I also love genentech. And as I told a tdm1 team during a visit there a few years ago: now get back to work!

People will think what they will about big pharma and biotech, but the ont thing that...
Forum: her2group 02-25-2013, 10:11 AM
Replies: 24
Views: 1,605
Posted By chrisy
Re: just need encouragement

Tammi,
I've been thinking about you a lot, and am sorry to hear you had to be hospitalized again. Everyone who has posted is right. I could just say ditto but you know that's not my style!

TDM1...
Forum: her2group 02-23-2013, 10:52 PM
Replies: 54
Views: 3,671
Posted By chrisy
Re: T DM-1 Approved !!

My take on what Karen said: if you are Ned in the head, and have the rest of you below the head controlled, new baddies are less likely to wander north to your brain
Showing results 1 to 25 of 500

 
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