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Search: Posts Made By: TiffanyS
Forum: her2group 06-18-2017, 05:40 PM
Replies: 56
Views: 13,173
Posted By TiffanyS
Re: Kadcyla - Scotland

That's great news Juls. On another note, I haven't been reacting that great to Kadcyla. Most people have no side-effects from this drug, but not me. Of course I'd have to be different!
Forum: her2group 06-18-2017, 05:33 PM
Replies: 28
Views: 7,337
Posted By TiffanyS
Re: Brief Update

Hello all, I thought I'd send a brief update since I haven't been online for a while. I've had family in town this weekend, and it's been crazy busy. As an update, I was sent home from the...
Forum: her2group 05-28-2017, 03:05 PM
Replies: 28
Views: 7,337
Posted By TiffanyS
Re: Brief Update

Hi Juls, I am back in the hospital regarding my back/side/stomach pain. I will explain more later when I have access to a keyboard, but please know that I am fine and getting to thé bottom of...
Forum: her2group 05-19-2017, 04:46 AM
Replies: 71
Views: 16,267
Posted By TiffanyS
Re: Back Pain

Hi Paul, I’m taking the time release Hydromorpone Contin (3 mg, was 6) for pain, with short term Hydromorpone (2 mg) for break through pain. These meds are helping with the pain, however, they are...
Forum: her2group 05-19-2017, 04:38 AM
Replies: 28
Views: 7,337
Posted By TiffanyS
Re: Brief Update

Thanks Spring. I’m glad to hear that you staying the course and doing 12 treatments of Taxol. I know it’s a lot, but, it’s worth it.

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12/15 – First...
Forum: her2group 05-19-2017, 04:35 AM
Replies: 28
Views: 7,337
Posted By TiffanyS
Re: Brief Update

Thanks Pam. I agree, and am going on another trip at the end of September, and am already planning two more for next year. Let’s hope the T-DM1 works so I’ll still be around and able to travel.
...
Forum: her2group 05-18-2017, 04:49 AM
Replies: 28
Views: 7,337
Posted By TiffanyS
Re: Brief Update

On another note, Thursdays are normally my worst days for chemo side-effects, however, so far, I don’t have any side-effects from the T-DM1. I’ll have to wait until tonight to see if I can get any...
Forum: her2group 05-18-2017, 04:47 AM
Replies: 56
Views: 13,173
Posted By TiffanyS
Re: Kadcyla - Scotland

Thanks Amy. Me too.
Forum: her2group 05-18-2017, 04:43 AM
Replies: 12
Views: 4,177
Posted By TiffanyS
Re: A Blessing From Cancer

Congratulations on your baby and on 5.5 years at NED. It’s great to hear some good news for a change.

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12/15 – First mammogram
01/16 – Second mammogram...
Forum: her2group 05-18-2017, 04:38 AM
Replies: 28
Views: 7,337
Posted By TiffanyS
Re: Brief Update

Thank Amy,

I learned after I had my recurrence that no one will advocate for me but me, and that I need to be on top of things. After finding out about my Atelectasis, I’ve decided that I need to...
Forum: her2group 05-17-2017, 05:16 AM
Replies: 11
Views: 5,835
Posted By TiffanyS
Re: What’s the next step once Perjeta/Herceptin and T-DM1 stop working?

I went for my first treatment of T-DM1 yesterday. This drug will be a lot easier for me to tolerate, and does not need any pre-drugs like steroids or Benadryl. It will also only take 30 minutes to...
Forum: her2group 05-17-2017, 05:10 AM
Replies: 28
Views: 7,337
Posted By TiffanyS
Brief Update

Hello all, I’m back from a great vacation, and was able to enjoy most of it because of the pain meds I was taking. Unfortunately, they did have some side-effects such as nausea, lack of appetite,...
Forum: her2group 04-27-2017, 04:49 AM
Replies: 71
Views: 16,267
Posted By TiffanyS
Re: Back Pain

Hi Vinatera, at my clinic, it takes about two weeks to get CT scan results back. That’s because the radiologists are behind. I usually get other test results within a couple of days. Of course, I...
Forum: her2group 04-27-2017, 04:37 AM
Replies: 71
Views: 16,267
Posted By TiffanyS
Re: Back Pain

Hi Paul, thanks for the suggestion, but I’m leaving for Europe tonight, so there’s no time for me to try homeopathic medicines before I leave. The Prochlorazine is helping with the nausea though, so...
Forum: her2group 04-26-2017, 04:52 AM
Replies: 20
Views: 6,714
Posted By TiffanyS
Re: New Plan

This is a hard decision to make, and only one that you can make Amy. I agree with Becky though. I would sign up for the trail, and, if it isn’t going well for you, you can always go back to...
Forum: her2group 04-26-2017, 04:48 AM
Replies: 11
Views: 4,617
Posted By TiffanyS
Re: Laurie7 has died

I didn’t know Laurie, but I’m very sorry to hear that she’s passed away at such a young age. My condolences go out to her family. It’s so sad.
Forum: her2group 04-26-2017, 04:46 AM
Replies: 56
Views: 13,173
Posted By TiffanyS
Re: Kadcyla - Scotland

Hi Juls, it looks like I’ll be joining you and trying T-DM1 when I get back from vacation in May. I discussed my future treatment plan with my doctor yesterday, and we decided, given everything that...
Forum: her2group 04-26-2017, 04:40 AM
Replies: 71
Views: 16,267
Posted By TiffanyS
Re: Back Pain

Paul, my doctor mentioned MS Contin to me right away, even before I had a chance to ask her about it, and that’s what I’m taking. I started it last night, and it made me very nauseous, even with...
Forum: her2group 04-24-2017, 12:25 PM
Replies: 71
Views: 16,267
Posted By TiffanyS
Re: Back Pain

Thanks Paul. I’ll mention it to my doctor when I see her tomorrow. I’ve been taking Percocet today with Advil, and the Percocet is making me feel a little be nauseous, even thought I took an...
Forum: her2group 04-24-2017, 04:52 AM
Replies: 71
Views: 16,267
Posted By TiffanyS
Re: Back Pain

Hi Paul, no one has mentioned a TEMS machine to me, so I’m not sure if it will help. I have a massage appointment tonight, so I can ask about it. I’m not sure if she will have one though. I went...
Forum: her2group 04-21-2017, 06:34 AM
Replies: 71
Views: 16,267
Posted By TiffanyS
Re: Back Pain

Hi Juls, so far, the breathing technique seems to be helping with my cough and chest congestion, but it’s not helping with the pain. I had to take two Percocet when I got home from work last night...
Forum: her2group 04-20-2017, 11:29 AM
Replies: 71
Views: 16,267
Posted By TiffanyS
Re: Back Pain

Thank Paul. So far, my white count has been normal, thanks to the Filgrastim. I haven’t had a fever from chemo yet, and I’ve been getting chemo on and off for over a year not. I’m not that...
Forum: her2group 04-20-2017, 11:09 AM
Replies: 71
Views: 16,267
Posted By TiffanyS
Re: Back Pain

Hi Paul, I’m currently taking Robax Platinum, which is Ibuprofen and Methocarbamol. My nurse practitioner recommended that I try them. They help a little bit with the pain, but it doesn’t...
Forum: her2group 04-20-2017, 04:32 AM
Replies: 71
Views: 16,267
Posted By TiffanyS
Re: Back Pain

I went for chest physio yesterday, and it was a good experience. My physiotherapist is new at my clinic, but that turns out to be an advantage to me because he’s fresh out of school and remembers...
Forum: her2group 04-19-2017, 10:39 AM
Replies: 56
Views: 13,173
Posted By TiffanyS
Re: Kadcyla - Scotland

Amy, for me, shortness of breath, cough and chest congestion have been my worst side-effects, and they are getting worse with each treatment. That’s why I want a longer chemo break, in order to get...
Showing results 1 to 25 of 411

 
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