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Search: Posts Made By: dchips1
Forum: her2group 03-06-2013, 11:20 PM
Replies: 67
Views: 27,987
Posted By dchips1
Re: Intrathecal Herceptin/Topotecan for Leptomeningeal Disease

how long does the pain of the Ommaya surgery take to subside? bending over is not a good thing, neither is drinking to fast, coughing, blowing nose or messing with ears. Tommorow will be 8 days....
Forum: her2group 02-22-2013, 10:36 PM
Replies: 67
Views: 27,987
Posted By dchips1
Forum: her2group 06-11-2012, 11:36 PM
Replies: 67
Views: 27,987
Posted By dchips1
Re: Intrathecal Herceptin/Topotecan for Leptomeningeal Disease

Both of the lesions are inside the spinal canal and sitting on a nerve or two. In the thoracic area t3-4 and t-8. I have had 20 rounds of radiation to both the areas.

Darita
Forum: her2group 06-11-2012, 12:13 PM
Replies: 67
Views: 27,987
Posted By dchips1
Re: Intrathecal Herceptin/Topotecan for Leptomeningeal Disease

pertuzumub has the same molecular weight as herceptin, would be interesting if we could add or use this in altering treatments with herceptin intrathecal therapy?

Darita
Forum: her2group 06-10-2012, 06:10 PM
Replies: 67
Views: 27,987
Posted By dchips1
Re: Intrathecal Herceptin/Topotecan for Leptomeningeal Disease

my 6 week thoracic mri after 20 rounds of rads, showed slight reduction to my lesions. hurry up and wait for 7 more weeks for next Mri. Still on Tykerb 750mg and weekly Herceptin, tumor markers are...
Forum: her2group 05-14-2012, 12:48 PM
Replies: 67
Views: 27,987
Posted By dchips1
Re: Intrathecal Herceptin/Topotecan for Leptomeningeal Disease

I am so glad she is doing so well! where is she being treated, did she have an ommaya reservoir implanted?

Praying for my Mri in 2 weeks to look good with my 2 mets to be gone as well.

Darita
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