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Search took 0.00 seconds. Search: Posts Made By: Rolepaul
Forum: her2group 01-24-2013, 12:50 PM
Replies: 67
Views: 29,231
Posted By Rolepaul
Re: Intrathecal Herceptin/Topotecan for Leptomeningeal Disease

Keep up the good news. Evlin, Please PM with the doctor treating Susan as Monica Botero wants to see the center and get similar treatment.
Forum: her2group 01-23-2013, 04:34 PM
Replies: 67
Views: 29,231
Posted By Rolepaul
Re: Intrathecal Herceptin/Topotecan for Leptomeningeal Disease

They should see improvement in the MRI scans in the next eight weeks. I would hope she is clear of lesions by mid-May. Have them make sure to give steroids if there is dizziness or nausea when they...
Forum: her2group 01-23-2013, 02:35 PM
Replies: 67
Views: 29,231
Posted By Rolepaul
Re: Intrathecal Herceptin/Topotecan for Leptomeningeal Disease

I have tears in my eyes. I was so frustrated with the doctor. The goal is 1.5 mg/kg of body weight. Your daughter is truly exceptional, as are you. Never give up. Hate to lose.
Forum: her2group 08-03-2012, 07:07 AM
Replies: 67
Views: 29,231
Posted By Rolepaul
Re: Intrathecal Herceptin/Topotecan for Leptomeningeal Disease

The is a likelihood that she will have nausea and vomiting with the first treatment. That would be the best indicator it is working as it means the cancer cells have been destroyed. First MRI from...
Forum: her2group 06-11-2012, 07:23 AM
Replies: 67
Views: 29,231
Posted By Rolepaul
Re: Intrathecal Herceptin/Topotecan for Leptomeningeal Disease

By the way, yes you can still wear an ATV helmet. I did not read that carefully. You probably need to give it a few days to heal up from surgery, maybe cut just a bit of padding if there is any...
Forum: her2group 06-10-2012, 07:56 PM
Replies: 67
Views: 29,231
Posted By Rolepaul
Re: Intrathecal Herceptin/Topotecan for Leptomeningeal Disease

Ommaya does not need any other protection than you normally do. They put the Ommaya into the head and it is just like a vaccine when they give the treatment. It is the same Herceptin as used via IV....
Forum: her2group 06-10-2012, 07:53 AM
Replies: 67
Views: 29,231
Posted By Rolepaul
Re: Intrathecal Herceptin/Topotecan for Leptomeningeal Disease

Lani,

So the clinical trial shows an overall survival of 3.8 months on average. That is unacceptable! Intrathecal Herceptin has been shown to eliminate the detectable presence of Leptomeningeal...
Forum: her2group 06-04-2012, 03:08 PM
Replies: 67
Views: 29,231
Posted By Rolepaul
Re: Intrathecal Herceptin/Topotecan for Leptomeningeal Disease

To all, there is hope with brain mets. Nina's MRIs show only normal background in the brain and spine. The PET scan came back as normal. The tumor markers are down to the normal population. There...
Forum: her2group 05-20-2012, 12:09 PM
Replies: 67
Views: 29,231
Posted By Rolepaul
Re: Intrathecal Herceptin/Topotecan for Leptomeningeal Disease

Alexandra1

Yes. Nina's was a left breast of 6.0 cm with 4 out 20 lymph nodes positive.

The 5% LMD is going to go up because of the Herceptin being able to get most everything other than brain...
Forum: her2group 05-17-2012, 12:19 PM
Replies: 67
Views: 29,231
Posted By Rolepaul
Re: Intrathecal Herceptin/Topotecan for Leptomeningeal Disease

Porta,
Good luck next week. We are at MD andsrson Houston. Nina is only one in this regimen. Keep pushing as she is doing really well. Monitor spinal prptein and glucose for dffectivendss. Mlre...
Forum: her2group 05-16-2012, 07:06 AM
Replies: 67
Views: 29,231
Posted By Rolepaul
Re: Intrathecal Herceptin/Topotecan for Leptomeningeal Disease

Potra,

Have them contact the main center in Houston Texas. Dr. Loghin is the neurooncologist and Dr. Melhem-Bertrandt is the breast oncologist. This was a compassionate care treatment, but I...
Forum: her2group 05-15-2012, 12:34 PM
Replies: 67
Views: 29,231
Posted By Rolepaul
Smile Re: Intrathecal Herceptin/Topotecan for Leptomeningeal Disease

Nina gets down at times, but is now looking to go back to giving therapeutic massages or being a clinic RN. The IT Herceptin with Methotrexate was a good first thought, but the darn stuff irritated...
Forum: her2group 05-14-2012, 12:56 PM
Replies: 67
Views: 29,231
Posted By Rolepaul
Re: Intrathecal Herceptin/Topotecan for Leptomeningeal Disease

Darita,

YOur progression is very similar to Nina's! She is being treated at MD Anderson in Houston Texas. I heard UCLA might also be treating patients with IT Herceptin. She is using an ommaya...
Forum: her2group 05-13-2012, 11:42 AM
Replies: 67
Views: 29,231
Posted By Rolepaul
Post Intrathecal Herceptin/Topotecan for Leptomeningeal Disease

My wife, Nina, was found to have Leptomeningeal Disease in the spine with too many spots to count and three active leasions in the brain Dec 15, 2011. With hard work by many people, she had ten rads...
Showing results 1 to 14 of 14

 
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