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Search took 0.01 seconds. Search: Posts Made By: miss di
Forum: Clinical Trials 06-25-2010, 06:40 AM
Replies: 5
Views: 5,854
Posted By miss di
Itching!!!

Can anyone help me with the itching. It is coming as my liver is failing and it is atrocious. I can not sleep at night, wake up clawing myself.
Some relief with Benadryl, Lidocaine/Prilocaine...
Forum: her2group 04-21-2009, 04:19 PM
Replies: 27
Views: 4,033
Posted By miss di
Two things I forgot, I went with Cyberknife as my...

Two things I forgot, I went with Cyberknife as my large tumor was too large for RFA.
My smaller tumors grew and I got 2 new ones in the mean time. So still battling those.

Be sure to check...
Forum: her2group 04-21-2009, 04:11 PM
Replies: 27
Views: 4,033
Posted By miss di
I had Cyberknife to liver in Nov. 08. The actual...

I had Cyberknife to liver in Nov. 08. The actual procedure is painless, there was some pain with the fiducials you have placed around the tumor, but that was it. lots of scans before for...
Forum: Herceptin / Tykerb 01-01-2009, 12:07 AM
Replies: 17
Views: 2,858
Posted By miss di
Everybody is different and everybody processes...

Everybody is different and everybody processes meds different. Your pancreititis could be from either or both meds. Have you ever had an attack before?
I had terrible gallbladder attacks when I...
Forum: Herceptin / Tykerb 12-31-2008, 11:51 PM
Replies: 2
Views: 1,306
Posted By miss di
Yep, watch it fall to the floor daily as I brush...

Yep, watch it fall to the floor daily as I brush my hair. The texture is also changing to dry and no curl. Trying to decide what to do, very short cut???
My drugs are Tykerb/Xeloda, started worse...
Forum: her2group 12-31-2008, 11:49 PM
Replies: 60
Views: 23,175
Posted By miss di
I was told the only thing I should stay away from...

I was told the only thing I should stay away from was soy. Soy contains estrogens, I'm estrogen positive.
I agree with Marejo, this is my second time around with this disease. I was healthy, as a...
Forum: her2group 04-05-2008, 06:18 AM
Replies: 18
Views: 2,957
Posted By miss di
Hazel, Can you tell me what kind of...

Hazel,

Can you tell me what kind of reaction?

Thanks in advance,
Di
Forum: her2group 04-03-2008, 06:06 AM
Replies: 18
Views: 2,957
Posted By miss di
I might have mislead you. I haven't stopped the...

I might have mislead you. I haven't stopped the Herceptin yet. I'm going to be stopping if all my tests, i.e. Pet, labs come back with no new spots in May, started last August. My onc wants me to...
Forum: her2group 04-02-2008, 07:19 PM
Replies: 18
Views: 2,957
Posted By miss di
T, Thanks, that is one of my biggest...

T,

Thanks, that is one of my biggest problems, nausea and abdominal pain. Nausea is almost constant. Not happy with weight loss either.
Went from every 3 weeks to weekly hoping would help. So...
Forum: her2group 04-02-2008, 09:29 AM
Replies: 18
Views: 2,957
Posted By miss di
Stopping Herceptin

Hello Ladies,

I was wondering if anyone had to stop Herceptin for any other reason than low MUGA scores or it stopped working.

Thank you in advance,
My best to all,

Di
Forum: her2group 03-21-2008, 08:53 AM
Replies: 23
Views: 2,656
Posted By miss di
I took survey also. easy. The only thing I...

I took survey also. easy. The only thing I wondered about was which cancer they were asking about, so I filled it out pertaining to this time. Most of answers were all the same anyway.
Forum: her2group 03-21-2008, 08:20 AM
Replies: 23
Views: 2,685
Posted By miss di
I have been asking about this since first go...

I have been asking about this since first go round. Always wondering why I have to take as much as someone with ovaries? (I had mine removed in 2000) obviously I would have less estrogen. When I...
Forum: Herceptin / Tykerb 03-20-2008, 04:33 AM
Replies: 689
Views: 291,040
Posted By miss di
Dear Debski and all, I totally agree with...

Dear Debski and all,

I totally agree with your onc. It took me almost three years after first go round with the beast to feel better. (chemo and rads after quadrantectomy) People do not...
Forum: her2group 03-06-2008, 03:06 PM
Replies: 4
Views: 1,219
Posted By miss di
Are you still looking for someone? I may be...

Are you still looking for someone? I may be interested. What do I need to qualify?
Forum: her2group 03-06-2008, 02:53 PM
Replies: 4
Views: 1,219
Posted By miss di
Is there moe info on this somewhere?

Is there moe info on this somewhere?
Forum: Herceptin / Tykerb 02-07-2008, 07:53 AM
Replies: 689
Views: 291,040
Posted By miss di
Hello to everyone, This is my first post,...

Hello to everyone,

This is my first post, 2nd round with the cancer beast. Was NED 5 years and then wham, stage IV.
Started Herceptin every 3 weeks in Aug 07. Had whole body rash with extreme...
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