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Search: Posts Made By: Eva Sophia
Forum: her2group 01-30-2013, 06:51 PM
Replies: 105
Views: 33,510
Posted By Eva Sophia
Re: TDM-1 side effects

Phil, my platelet count has actually remained normal - it was 195k last check. But when they did the advanced blood work, they found out it wasn't clotting correctly...so while there are a good...
Forum: her2group 01-30-2013, 04:46 PM
Replies: 389
Views: 157,467
Posted By Eva Sophia
Re: Calling all stage iv sisters

Kristin - Good luck to you! How is the Tykerb? Are they thinking it is going to stop working for you? And the Feb TDM1 date - is that because they except to get approved in Feb?
Forum: her2group 01-30-2013, 03:23 PM
Replies: 389
Views: 157,467
Posted By Eva Sophia
Re: Calling all stage iv sisters

Originally diagnosed in Jun 08 with stage IIb. Then Stage IV in Nov 2010. Been NED since Jun 2011 after starting TDM-1 Marianne study!
Forum: her2group 01-30-2013, 03:09 PM
Replies: 105
Views: 33,510
Posted By Eva Sophia
Smile Re: TDM-1 side effects

I have been on the Marianne study - TDM-1 plus/minus pertuzumab since April 2011 - 22months. I think that puts me at about 30 doses. Overall, I've been very good on it - with no nausea, hair loss...
Forum: her2group 12-12-2011, 11:08 PM
Replies: 13
Views: 3,769
Posted By Eva Sophia
Re: Need optimism on TDM-1 please

I have been on Tdm1 w or wo pertuzumab since April. I had two breast lumps w mets to spine and sternum. My breast recurrence disappeared at the time of my first petct scan at eight weeks and the bone...
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