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Search: Posts Made By: pwiswell
Forum: her2group 04-25-2013, 05:29 PM
Replies: 14
Views: 1,351
Posted By pwiswell
Re: Scans and update-

Also, I have been taking Cymbalta for 9 years and it has been a life saver. Not only does it help with the depression, it also helps with the bone pain from bone mets. If you feel you need an...
Forum: her2group 04-25-2013, 05:27 PM
Replies: 14
Views: 1,351
Posted By pwiswell
Re: Scans and update-

You may find Tykerb will take care of the brain mets. I don't have brain mets, but I did have a tumor on my sternum even while taking herceptin. Once I was started on tykerb and xeloda, the tumor...
Forum: her2group 04-25-2013, 05:23 PM
Replies: 62
Views: 3,946
Posted By pwiswell
Re: More Progression

I am so sorry about the progression. I feel for you and understand what you are feeling. I was first diagnosed with HER 2+ cancer in 2003 when I was 38. My children were 2 and 4. I have prayed...
Forum: Profiles In Courage 02-23-2013, 07:54 PM
Replies: 18
Views: 9,257
Posted By pwiswell
Re: Writer looking for participants to share stories

Dianne, I too think you have come to the wrong place to interview women. There is nothing "entertaining" or "humorous" about what we are going through. While I have a great sense of humor, it does...
Forum: Herceptin / Tykerb 12-17-2012, 05:57 PM
Replies: 8
Views: 6,191
Posted By pwiswell
Re: How many total Herceptin Infusions?

I had herceptin every week for three years and just recently changed to Tykerb and Xeloda. I think it depends on the oncologist.
Forum: her2group 11-14-2012, 11:39 AM
Replies: 384
Views: 94,704
Posted By pwiswell
Re: Calling all stage iv sisters

I've been stage IV since 2009 with bone mets and am doing fine. Currently on Xeloda and Tykerb and all is well. I have two pre-teens and plan to be around to raise them. Prayers to all my stage iv...
Forum: her2group 11-10-2012, 07:18 PM
Replies: 19
Views: 1,544
Posted By pwiswell
Re: ixempra is next chemo

I think most of us understand your fear that we may run out of chemo drugs that work for us. I know I've wondered that. I've gone through several and have just started my journey on Xeloda and...
Forum: Keeping Your Mind Off of BC 10-28-2012, 06:58 PM
Replies: 2,093
Views: 129,293
Posted By pwiswell
Re: SCRABBLE anyone?

tighter - fighter
Forum: Herceptin / Tykerb 10-24-2012, 10:12 AM
Replies: 32
Views: 18,263
Posted By pwiswell
Re: 3 years + on Herceptin, Why

I was given Herceptin weekly for over three years. Recently, my body became immune to it and my cancer counts started going back up and my Onc. took me off Herceptin and put me on Tykerb and Xeloda....
Forum: her2group 10-24-2012, 09:09 AM
Replies: 19
Views: 1,604
Posted By pwiswell
Re: Parenthood

Maybe it will bring some much needed recognition to this dreadful disease.
Forum: Profiles In Courage 10-16-2012, 07:40 PM
Replies: 6
Views: 10,520
Posted By pwiswell
Re: 11 Years bc, 10 Year with mets

I was originally diagnosed with b/c in 2003. I found out it had metastized to my bones in 2008. Since then I have undergone different forms of therapy including Herceptin, Taxol, radiation. ...
Forum: her2group 10-08-2012, 04:45 PM
Replies: 21
Views: 1,116
Posted By pwiswell
Re: Stage IV, One year anniversary!

Congratulations to you! You have reason to celebrate.
Forum: her2group 10-08-2012, 04:42 PM
Replies: 39
Views: 3,032
Posted By pwiswell
Re: Powerful Prayers Needed For Meredith

I just watched Meredith's videos, and I am crying as I type this. She certainly has my prayers and I hope she can somehow still beat this thing. Being a mom of two and having metastic breast...
Forum: Herceptin / Tykerb 10-06-2012, 02:17 PM
Replies: 12
Views: 6,474
Posted By pwiswell
Re: Start, stop, start, stop

I too am having a hard time adjusting to the x/t combination with the same side effects. My onc just lowered my dose of xeloda, and I just restarted it. The trots have been with me since I started...
Forum: her2group 10-05-2012, 06:48 PM
Replies: 18
Views: 815
Posted By pwiswell
Re: 2 year cancerversary today

Congrats to you. Prayers for many more cancer free years. Good luck to you.
Forum: her2group 10-05-2012, 06:47 PM
Replies: 18
Views: 804
Posted By pwiswell
Re: five year anniversary!!

Congratulations. This is a reason for celebration. I to have a 14 year old and a 12 year old. Looking at them everyday gives me reason to keep fighting. Yours will keep you well Stay positive and...
Forum: her2group 10-05-2012, 06:44 PM
Replies: 57
Views: 4,007
Posted By pwiswell
Re: Diagnosed this month

Raz and Ziggy- you are both in my prayers. I too am new to this forum, but not new to the cancer scene. I'm sure you will both do well with the current treatment options. Herceptin has proven to...
Forum: Keeping Your Mind Off of BC 09-27-2012, 04:43 PM
Replies: 40
Views: 14,925
Posted By pwiswell
Re: New Campfire

I just stumbled across this site, probably when I need it the most. I'd like to sit by the fire and just hang out for awhile. I recently found out that the Herceptin I'd been getting for the past...
Forum: her2group 09-27-2012, 04:27 PM
Replies: 35
Views: 1,672
Posted By pwiswell
Re: Scanxiety - Brain MRI & Full Body PET tomorrow~

You summed up my own feelings so adequately. I suspect many of us on here share the same feelings and fears. I have not experienced NED since 2006 but have just started on Xeloda and Tykerb and...
Forum: Herceptin / Tykerb 09-26-2012, 06:19 PM
Replies: 6
Views: 7,404
Posted By pwiswell
Xeloda and Tykerb

About two weeks ago, I found that Herceptin was no longer keeping my mets at bay. I had been getting Herceptin weekly for over three years. My oncologist switched me to Xeloda and Tykerb. After...
Forum: Herceptin / Tykerb 09-26-2012, 06:15 PM
Replies: 10
Views: 3,997
Posted By pwiswell
Re: Brain Rads Tykerb not feeling great

I admire your courage. This is a tough journey we are all on, but just being here, means we are winning. I took Zoloft for years, and then a few years ago it stopped working for me. My physician...
Forum: her2group 09-20-2012, 07:45 PM
Replies: 12
Views: 1,051
Posted By pwiswell
Re: New to stage 4, what do I do now?

Dearjilly, I am sorry to hear of your diagnosis. Try not to worry too much about the staging although I know how difficult that is. I started my journey with Her 2+ breast cancer when my children...
Forum: Profiles In Courage 09-17-2012, 12:23 PM
Replies: 1
Views: 8,809
Posted By pwiswell
Re: Three more Herceptins!

Why are they stopping the herceptin? I had herceptin therapy once a week for three years until it stopped working for me. I was then changed to xeloda and Tykerb.
Forum: Herceptin / Tykerb 09-16-2012, 10:03 PM
Replies: 17
Views: 7,109
Posted By pwiswell
Re: Anyone Get To NED On Tykerb/Xeloda/Herceptin?

My prayers are with you that you remain in NED. I hope i see that some day as well.
Forum: Herceptin / Tykerb 09-16-2012, 09:52 PM
Replies: 22
Views: 6,622
Posted By pwiswell
Re: Herceptin & Tykerb Together

I am stage IV mets and was receiving Herceptin once a week for the past three years. My cancer markers just started to go up, so my oncologist feels the cancer has become immune to it. He has...
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