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Search: Posts Made By: Cat
Forum: her2group 09-25-2014, 09:44 PM
Replies: 20
Views: 2,269
Posted By Cat
Re: End of my strength

What wise women on this board!
I am sorry you are dealing with all this. I too have my hands full right now and have wanted to find a tree to crawl under but I heard a saying " you never know how...
Forum: her2group 09-25-2014, 09:30 PM
Replies: 22
Views: 2,191
Posted By Cat
Re: Prayers needed... Scared

I have no input to your decision. You probably know all the pros and cons. All I can say is maybe try to quiet your mind so as not to block any signs from your prayers. I do not envy your decision...
Forum: her2group 09-14-2014, 06:51 PM
Replies: 11
Views: 1,909
Posted By Cat
Re: Chemo/GERD/ILD

What timing! I haven't posted for awhile as I've been struggling. One of my struggles is shortness of breath and diff swallowing. I've also had pleural effusion I've had drained twice. Likely many...
Forum: her2group 07-22-2014, 09:53 AM
Replies: 17
Views: 1,572
Posted By Cat
Re: Update on lymphedema ?

Hi Pray, I have never had lymphadema tho I wear a sleeve for lifting and flying. I have had infections in the skin at my nails that seems to cause a backup in lymph. I can actually see what looks...
Forum: her2group 07-04-2014, 08:59 AM
Replies: 27
Views: 3,590
Posted By Cat
Forum: her2group 07-02-2014, 03:26 PM
Replies: 2
Views: 1,197
Posted By Cat
Things I've learned

Just some things I've learned along this interesting journey I never wanted to go on...
1. drink more water than you think. It doesn't seem you can drink too much unless it's in one sitting. Drink...
Forum: her2group 07-02-2014, 02:48 PM
Replies: 7
Views: 1,496
Posted By Cat
Re: Anyone on abraxane please respond

Hi Adriana,
I missed this post.
I was on abraxane for about a year and it went well. It took care of my ascites almost immediately and kept things at bay. It was well tolerated and I think I...
Forum: her2group 06-17-2014, 06:06 PM
Replies: 17
Views: 2,261
Posted By Cat
Re: Newly diagnosed

I had chemo before bmx so my port was placed before surgery and reconstruction. My guess is reconstruction may wait for chemo due to decreased immune system thus increased chance of infection but...
Forum: her2group 06-17-2014, 05:52 PM
Replies: 58
Views: 7,142
Posted By Cat
Re: Significant Progression-Going On Doxil

No personal input on doxil but many wishes for some relief ftom the stress this all brings. I do know it was one of the options my onc talked about and I felt he was confident in it.
Best of luck...
Forum: her2group 06-02-2014, 04:02 PM
Replies: 6
Views: 1,193
Posted By Cat
Re: Anyone not done nipple reconstruction?

Never heard of "padiddle". Thanks for googling it crb. Lol
Forum: her2group 06-02-2014, 03:59 PM
Replies: 30
Views: 4,046
Posted By Cat
Re: Help, cancer has spread from bones to my lungs

Kristin, I don't have input on new drug but just wanted to send hugs and prayers for success with it. I too have some lung things never biopsied but shortness of breath came from kadcyla and...
Forum: her2group 06-01-2014, 08:20 PM
Replies: 6
Views: 1,193
Posted By Cat
Re: Anyone not done nipple reconstruction?

Did the nipple thing and at first they were huge and firm but did soften over time. Could go bra less without headlights. Areola tatoos never took. They faded and I never went back. I feel kind of...
Forum: Diet and Nutrition 06-01-2014, 07:49 PM
Replies: 12
Views: 5,201
Posted By Cat
Re: Tumeric

Republic of Tea makes a ginger turmeric green tea that sounds questionable in flavor but I like it a lot and comes in handy when I'm a little nauseaus too. Not cheap but I find it worth it for one...
Forum: her2group 05-31-2014, 08:38 AM
Replies: 37
Views: 3,227
Posted By Cat
Re: Update on Barb

Let me add my words of condolences to you and your family. I wish you all peace and love.
Cathy
Forum: her2group 05-06-2014, 07:23 PM
Replies: 16
Views: 956
Posted By Cat
Re: Final chemo!

So happy for you!!! Hoping it won't be long till the acuteness of tx is replaced by memory of it only. Wishing you well on this journey.
Hugs,
Cathy
Forum: her2group 05-06-2014, 07:18 PM
Replies: 14
Views: 1,032
Posted By Cat
Re: Help... I'm scared...

Thank you all. I'm using all areas. We submitted forms for patient assistance / compassionate care (? Same thing?). I've got the ins agent on my side and checking into it. Feel better about just...
Forum: her2group 05-06-2014, 01:36 PM
Replies: 1
Views: 835
Posted By Cat
Less scared. Breathing again...

At onc and reassured that gemzar alone is not a waste and paperwork in to gentech for patient assistance for herceptin and/ or perjeta. Sounds like it may take a bit if it goes through but I feel...
Forum: her2group 05-05-2014, 08:48 PM
Replies: 14
Views: 1,032
Posted By Cat
Re: Help... I'm scared...

Thank you all for your love, support and prayers. Will update when something is decided. Hugs to all,
Cathy
Forum: her2group 05-05-2014, 03:56 PM
Replies: 3
Views: 794
Posted By Cat
Re: Aromasin

I wish I could help. I have been hormone negative so know very little of what you are asking. I just wanted to send my support and good wishes for relief soon.
Hugs (gentle) Cathy
Forum: her2group 05-05-2014, 03:52 PM
Replies: 14
Views: 1,032
Posted By Cat
Re: Help... I'm scared...

Thank you Becky and Caroline. I see dr. tomoorow to discuss Treatment and at least receive gemzar. I have talked to insurance agent who has stood by us before against insurance and will appeal too....
Forum: her2group 05-05-2014, 02:48 PM
Replies: 14
Views: 1,032
Posted By Cat
Help... I'm scared...

My bc mets progressed in my liver and nodes apperared a little larger so we ablated the kidney again and have been trying to get approval for different chemo.
Perjeta and herceptin were denied last...
Forum: Herceptin / Tykerb 05-05-2014, 08:39 AM
Replies: 21
Views: 9,559
Posted By Cat
Re: Severe breathlessness - heart/herc. or lungs?

I am so glad you have found some support and you sound like you feel at least a little more comfortable. Hopefully now you can get treatment that will be more tolerated and work for you. Hugs
Cathy
Forum: Herceptin / Tykerb 05-04-2014, 12:18 PM
Replies: 21
Views: 9,559
Posted By Cat
Re: Severe breathlessness - heart/herc. or lungs?

I have no experience with this except shortness of breath from kadcyla and then switched chemo. Can't give any advice but sending support. Do you meditate? It sounds like something calming may help....
Forum: her2group 05-04-2014, 12:14 PM
Replies: 6
Views: 876
Posted By Cat
Re: Going Home Today

So thrilled. After what you've been through that sinus infection will be running scared in no time. So happy for you!!!
Cathy
Forum: her2group 05-03-2014, 10:25 AM
Replies: 17
Views: 1,385
Posted By Cat
Re: MRI TODAY 10am

I love the "sunrise" comment and grateful for lower bilirubin. Continue prayers and hugs. Cathy
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