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Search: Posts Made By: Roz
Forum: her2group 08-26-2008, 12:08 AM
Replies: 24
Views: 4,813
Posted By Roz
I had firstly a little bump on the scar line. It...

I had firstly a little bump on the scar line. It was like a cyst, but it didn't weep. I got antibiotics for it for 2 weeks, then my GP sent me back to surgeon who excised it in his rooms. Came back...
Forum: her2group 08-23-2008, 10:35 PM
Replies: 33
Views: 3,029
Posted By Roz
Smile Sheila, How lucky you were to get 12 months out...

Sheila,
How lucky you were to get 12 months out of Taxol! Give your body a bit of a rest from the big guns if you can so that your body has the strength to fight fight fight.
Forum: her2group 06-24-2008, 08:19 PM
Replies: 7
Views: 6,076
Posted By Roz
Jane McGrath

We are all feeling sad after Jane's death. It brings death so much closer to us as individuals. Becky, Jane was diagnosed in 1997, but did not have a recurrence until 2002. She and her well known...
Forum: Herceptin / Tykerb 06-08-2008, 07:34 PM
Replies: 2
Views: 1,515
Posted By Roz
Cool Progressed on Tykerb, now Taxotere/Herceptin

Hi, Just wanted to update my treatment regime. I had MRSA in early Feb 08 and dropped Xeloda to help me recover. I went to Venice and environs 3 weeks later and while I was away i started to get a...
Forum: Herceptin / Tykerb 04-20-2008, 08:30 PM
Replies: 5
Views: 1,444
Posted By Roz
Crusty nose with Tykerb

Has anyone else experienced a crusty nose while on Tykerb? It is similar to the Herceptin crusty nose, but didn't appear until I had been on Tykerb 6 months. This was the same with Herceptin.
Forum: her2group 04-17-2008, 06:25 PM
Replies: 26
Views: 3,757
Posted By Roz
I agree. I think maybe we suffer from a sort of...

I agree. I think maybe we suffer from a sort of Post Traumatic Stress Syndrome. As someone who has experienced several recurrences I find it gets worsw. At present, I am trying to deal with Social...
Forum: Herceptin / Tykerb 04-13-2008, 01:10 AM
Replies: 1
Views: 1,546
Posted By Roz
Tykerb and nothing else!

Hi, Just wanted to toss around my feelings about doing Tykerb without Xeloda. I was admitted to hospital at the beginning of February with MRSA (staph) infection kindly (?) given to me by the...
Forum: her2group 03-10-2008, 08:22 PM
Replies: 45
Views: 4,287
Posted By Roz
Ceesun, You didn't cause your cancer. There are...

Ceesun, You didn't cause your cancer. There are some things that we human beings haven't achieved yet, and there are a million things that we have no control over. At this stage in human evolution,...
Forum: Herceptin / Tykerb 01-18-2008, 08:35 PM
Replies: 4
Views: 1,586
Posted By Roz
Hi Kristi, You probably would find out a lot of...

Hi Kristi,
You probably would find out a lot of info by looking back at past posts on this subject. There are many!! I had to cease the combo for a week as my side effects were quite severe, but...
Forum: Herceptin / Tykerb 01-17-2008, 09:14 PM
Replies: 5
Views: 1,764
Posted By Roz
Hi Brenda, I'm not sure what is meant by the...

Hi Brenda,
I'm not sure what is meant by the cutaneous toxicity being a reflection of Erb1 inhibition as opposed to Erb2. I have still got a rash (quite pronounced) after reaching what I regard as...
Forum: her2group 01-15-2008, 10:27 PM
Replies: 31
Views: 2,336
Posted By Roz
Happy Birthday Jackie!! Here's to many more, with...

Happy Birthday Jackie!! Here's to many more, with the help of Herceptin~! Looking good!!
Forum: her2group 01-11-2008, 01:54 AM
Replies: 24
Views: 2,227
Posted By Roz
Hey Sheila! Keep on smilin'. Warm Regards Roz

Hey Sheila! Keep on smilin'.
Warm Regards
Roz
Forum: Herceptin / Tykerb 01-06-2008, 11:11 PM
Replies: 36
Views: 15,094
Posted By Roz
Hi, I have had my port in almost 3 years, and I...

Hi, I have had my port in almost 3 years, and I don't get a blood return anymore.As I am now on Tykerb, I have the port flushed every 6 weeks. No problems. It took about 2-3 months for the site...
Forum: Herceptin / Tykerb 01-04-2008, 02:10 AM
Replies: 26
Views: 5,023
Posted By Roz
Smile Hi, While I am on the T/X combo, I am pleased to...

Hi, While I am on the T/X combo, I am pleased to announce NED scans today!! I am on 4 and a half Tykerb tabs and still have the rash on my arms. Adrien, I was interested that you are still...
Forum: her2group 12-21-2007, 09:04 PM
Replies: 37
Views: 3,210
Posted By Roz
Season's Greetings

Hi All,
We are enjoying a humid festive season. As I write the cicadas are outside thrumming up a storm. My daughter and her husband have gone to get prawns and oysters and other crustecans for Xmas...
Forum: her2group 12-13-2007, 03:18 AM
Replies: 29
Views: 2,842
Posted By Roz
Thinking of you Lolly, and I have got my fingers...

Thinking of you Lolly, and I have got my fingers crossed for you
Forum: Herceptin / Tykerb 12-09-2007, 06:11 PM
Replies: 29
Views: 6,805
Posted By Roz
Hi, I'm not sure where you are in Austalia, I...

Hi,
I'm not sure where you are in Austalia, I am in Sydney and had my first Herceptin injection (back in Jan 2005) at St Vincent's. They gave it to me over 1 and a half hours, and i had a severe...
Forum: Herceptin / Tykerb 12-08-2007, 02:40 AM
Replies: 35
Views: 4,986
Posted By Roz
Becca, I have been on Tykerb since 5th...

Becca, I have been on Tykerb since 5th October,and was off it for a week on week 4. Started back on a reduced dose of 3, then 3 and a half, then 4 then 4 and a half. Onc wants me to have CT scan next...
Forum: Herceptin / Tykerb 12-08-2007, 02:33 AM
Replies: 8
Views: 2,085
Posted By Roz
Hi Vanessa, I have a constant rash on my right...

Hi Vanessa,
I have a constant rash on my right arm (side of mastecotomy) and on the back of both of my hands. I put it down to slowly increasing the Tykerb. The body just gets ready to let the rash...
Forum: her2group 11-22-2007, 02:07 AM
Replies: 22
Views: 3,238
Posted By Roz
So sorry

We who have suffered sooo much--surely it is we who should be the most humble?? No one can speak for anyone else, they can ONLY talk about their own experiences. sorry it has come to this, marejo,...
Forum: Herceptin / Tykerb 11-20-2007, 10:25 PM
Replies: 35
Views: 4,986
Posted By Roz
re Xeloda

Sorry Elizabeth, I meant to type 2000mgm daily.!! of Xeloda.
Forum: Herceptin / Tykerb 11-20-2007, 02:02 AM
Replies: 35
Views: 4,986
Posted By Roz
update

Hi All,
I have upped my dose of Tykerb to 4 a day and reduced the Xeloda to 2000mgm a day. I notice in the trials it was 2000mgm per day, so why has it been upped to 3000mgm, can anyone tell me?
I...
Forum: Herceptin / Tykerb 11-07-2007, 11:04 PM
Replies: 5
Views: 1,722
Posted By Roz
I am sorry that I cannot help you, but I remember...

I am sorry that I cannot help you, but I remember Esther said that her liver enzymes went up, and I think a few others. Perhaps you can look back through the posts (or put in Tykerb liver enzymes in...
Forum: her2group 11-07-2007, 02:04 AM
Replies: 22
Views: 2,487
Posted By Roz
I am so happy for you Jackie. It must feel so...

I am so happy for you Jackie. It must feel so encouraging to know you have got so far. Keep up the good work.
Forum: Herceptin / Tykerb 11-07-2007, 01:55 AM
Replies: 35
Views: 4,986
Posted By Roz
side effects

Hi Vanessa,
My oncologist said that they are seeing it in almost everybody. As my hospital has only got to dispense the EAP in the last few months, they are able to keep tabs on how people are...
Showing results 1 to 25 of 104

 
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