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Search: Posts Made By: Pamelamary
Forum: her2group 02-02-2016, 11:22 PM
Replies: 357
Views: 58,807
Posted By Pamelamary
Re: Calling all stage iv sisters

Sorry to hear this Jackie! However, as someone living well after 4 years with bone and liver mets, I am sure you can deal with what is in store. After so many health related problems, you certainly...
Forum: her2group 02-02-2016, 11:16 PM
Replies: 6
Views: 362
Posted By Pamelamary
Re: Small lumps found between neck and shoulders...

Diane, try not to panic. Your lymph nodes can and do enlarge due to infection, so don't assume the worst. However, I believe in seeing my doctor with any concerns I have. Your peace of mind is...
Forum: her2group 01-16-2016, 12:55 AM
Replies: 17
Views: 1,488
Posted By Pamelamary
Re: Weekly Taxol for Stage IV

Hi Tracy,
What about Abraxane? - I believe that it is the most tolerable taxane. I sympathise with your dread of weekly treatments, but have heard taxol is easier than taxotere (which I hated,...
Forum: her2group 01-12-2016, 11:38 PM
Replies: 20
Views: 1,859
Posted By Pamelamary
Re: Radiation 5 zaptrons tomorrow

Flori, when you have been living with cancer for so long, there are bound to be times it seems too much to bear. But we do go on, and stories like yours have been so helpful to many others. I wish...
Forum: her2group 01-12-2016, 11:31 PM
Replies: 20
Views: 1,806
Posted By Pamelamary
Re: Yan Yan is in heaven

More sad news - condolences to Yan Yan's family and friends. We will all miss her.... Pam
Forum: her2group 12-16-2015, 12:06 AM
Replies: 22
Views: 3,919
Posted By Pamelamary
Re: Approaching 5 yr cancerversary but running out of options

No advice either, but our hearts are with you now..... Pam
Forum: her2group 12-13-2015, 10:35 PM
Replies: 34
Views: 4,136
Posted By Pamelamary
Re: Karen has moved on

Very sad news - Karen has been an inspiration on this site since I first joined. So many of the dearest women have died since; it is sometimes difficult to check in, but the value of such support,...
Forum: her2group 12-10-2015, 06:59 PM
Replies: 12
Views: 1,612
Posted By Pamelamary
Re: 3 years ago today our Sheila earned her wings

Jen, this site and the wonderful support so many of us get from it are a tribute to your mother. Warm wishes to you and your family..... Pam
Forum: her2group 11-16-2015, 11:13 PM
Replies: 13
Views: 2,414
Posted By Pamelamary
Re: Redwolf, Penny has joined the Angels.

So sad to hear about Penny's death - she was such a presence here. Condolences to her family and friends..... Pam
Forum: her2group 11-11-2015, 10:48 PM
Replies: 8
Views: 1,584
Posted By Pamelamary
Re: Another Year On

Hi Marie,
Good to hear from you! I am sorry to hear about the lung met and hope the SBRT zaps it completely. In so many respects your story has been an inspiration to me - I hope to follow in your...
Forum: her2group 11-04-2015, 11:45 PM
Replies: 9
Views: 1,466
Posted By Pamelamary
Re: No wonder I feel so beat up...

Yes, at times even the "easy" drugs take their toll. I've forgotten what it feels like to feel normal and many of the side-effects you mention have just become part of my life. But we are resilient!...
Forum: her2group 11-01-2015, 11:40 PM
Replies: 12
Views: 1,810
Posted By Pamelamary
Re: calcium and Vit D supplements

I am happy with Vitamin D, but would prefer to have my calcium naturally, through my diet. Have heard there may be issues with Caltrates, relating to heart function.
Prolia (Denosumab) probably has...
Forum: General Cancer News 10-25-2015, 08:54 PM
Replies: 1
Views: 615
Posted By Pamelamary
Re: Blackwell Discusses Emerging HER2-Positive Breast Cancer Agents

Thanks for this. Oncologists at the CoBRA conference in Melbourne recently were talking about Margetuximab as having real future potential.
Forum: her2group 10-21-2015, 06:04 PM
Replies: 3
Views: 1,194
Posted By Pamelamary
CoBRA 2015

Interesting conference starts in Melbourne this afternoon, looking at controversies in breast cancer. The medical world so often presents itself as monolithic and beyond challenge, so this should be...
Forum: her2group 10-15-2015, 08:54 PM
Replies: 9
Views: 1,353
Posted By Pamelamary
Re: Anyone on Keytruda or Opdivo

There is a trial here in Melbourne, where one woman I know with Stage IV breast cancer has just begun treatment with Herceptin and Keytruda. I don't know much more than that though. Good luck with...
Forum: her2group 10-14-2015, 12:10 AM
Replies: 18
Views: 1,411
Posted By Pamelamary
Re: Saygoon is a Spirit

Very sad news - condolences to Paula's friends and family.... Pam
Forum: her2group 09-10-2015, 01:18 AM
Replies: 12
Views: 1,521
Posted By Pamelamary
Re: Do you ever feel like enough it enough

Dear Julie,
This is a hard topic, as evidenced by the lack of many responses. Even though I am doing well at the moment, there are days when i feel just so sick of having to live in...
Forum: her2group 09-10-2015, 01:04 AM
Replies: 8
Views: 1,064
Posted By Pamelamary
Re: Pertuzumab not "cost effective"?!

Thanks Debbie - things seem to be getting a bit hairy! Pertuzumab has just been approved for funding in Australia for ABC women, but only first line. If you have had more than 12 months of herceptin...
Forum: her2group 09-09-2015, 12:56 AM
Replies: 28
Views: 4,188
Posted By Pamelamary
Re: Hello from Colorado

Hope you settle both quickly and well, Amy.
Best wishes..... Pam
Forum: her2group 08-27-2015, 12:18 AM
Replies: 7
Views: 976
Posted By Pamelamary
Re: Saygoon IT Journey

Thinking of you - at least there was some improvement in the brain. Stay strong!
Forum: her2group 08-05-2015, 01:01 AM
Replies: 17
Views: 3,596
Posted By Pamelamary
Re: A Special Note on Christine's Birthday, From Her Daughter

Dear Danielle (and Debra),
Thank you for thinking of us on this special day. I am so grateful to your mother for founding this site, which has been such a wonderful source of support for me and so...
Forum: her2group 08-04-2015, 12:54 AM
Replies: 10
Views: 1,624
Posted By Pamelamary
Re: IT Herceptin needed in Canada

Can't help directly, but thinking of you and I am sure some of the veterans of IT Herceptin will chime in with more concrete suggestions. Living in Australia, I know the same problems would arise, so...
Forum: Keeping Your Mind Off of BC 07-23-2015, 12:59 AM
Replies: 6
Views: 1,262
Posted By Pamelamary
Re: Exercise

Well done, Colleen! I too try to keep fit, despite the stage IV diagnosis. Doubt that I am in your league though! Depending on your treatment and available support, you might think of getting a lift...
Forum: her2group 07-08-2015, 12:29 AM
Replies: 32
Views: 2,581
Posted By Pamelamary
Re: Going back on Abraxane

Good luck with the Abraxane, Amy!
Best wishes..... Pam
Forum: her2group 07-01-2015, 10:22 PM
Replies: 27
Views: 2,283
Posted By Pamelamary
Re: IT Hercepton and update on Saygoon

Wishing you the best of results, Saygoon! Keep us posted..... Pam
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