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Forum: her2group 08-29-2014, 05:14 PM
Replies: 235
Views: 209,887
Posted By evlin75
Re: Intrathecal (IT) Herceptin (Trastuzumab) for brain mets (Leptomeningeal Metastase

Paul,

Best wishes to you and Nina. Susan is still doing the ommaya Herceptin every week. Just finished cyber knife to an enlarged subclavicle lymph node.

Her genome results indicate...
Forum: her2group 01-25-2014, 09:20 AM
Replies: 235
Views: 209,887
Posted By evlin75
Re: Intrathecal (IT) Herceptin (Trastuzumab) for brain mets (Leptomeningeal Metastase

I will be thinking of you on the 29th and am hoping you have great success with the surgery. Will be looking forward to your update.
My very best wishes !

Ev
Forum: her2group 01-24-2014, 01:03 AM
Replies: 235
Views: 209,887
Posted By evlin75
Re: Intrathecal (IT) Herceptin (Trastuzumab) for brain mets (Leptomeningeal Metastase

So glad to hear that Carol is still doing well and gaining strength.
Susan is still getting IT Herceptin 80 weekly. She is now on Abraxine also weekly IV for the enlarged clavicle lymph nodes. ...
Forum: her2group 03-04-2013, 02:02 PM
Replies: 235
Views: 209,887
Posted By evlin75
Re: Intrathecal (IT) Herceptin (Trastuzumab) for brain mets (Leptomeningeal Metastase

Hi Paul,
We sure did not want to go to this, but the doctor said it had increased along the spine all the way plus extra growths in the lumbar, thorax and several in the cerebellum. He said he was...
Forum: her2group 03-04-2013, 01:23 PM
Replies: 235
Views: 209,887
Posted By evlin75
Re: Intrathecal (IT) Herceptin (Trastuzumab) for brain mets (Leptomeningeal Metastase

Depocyt is what my daughter is receiving IT and it cannot be mixed with Herceptin. Dr wanted to take her off Herceptin, but I feel it still can work now since the ommaya is in place. Maybe the LP...
Forum: her2group 02-15-2013, 02:35 PM
Replies: 235
Views: 209,887
Posted By evlin75
Re: Intrathecal (IT) Herceptin (Trastuzumab) for brain mets (Leptomeningeal Metastase

Mario, Could I ask where Carol recived her IT treatments?
Forum: her2group 02-15-2013, 10:07 AM
Replies: 235
Views: 209,887
Posted By evlin75
Re: Intrathecal (IT) Herceptin (Trastuzumab) for brain mets (Leptomeningeal Metastase

She was at 40 mg several months. Then she rceived 60 mg x four and then 80 x one and this is not just the second MRI. I am just hoping against hope that this is just activity from destruction or...
Forum: her2group 02-15-2013, 09:23 AM
Replies: 235
Views: 209,887
Posted By evlin75
Re: Intrathecal (IT) Herceptin (Trastuzumab) for brain mets (Leptomeningeal Metastase

Susan's MRI is showing some type of increased activity. Could it be from the lumbar puncture truma? We were so hoping for some irradication signs in this last MRI.

At least the Ommaya is now in...
Forum: her2group 02-09-2013, 01:27 PM
Replies: 235
Views: 209,887
Posted By evlin75
Re: Intrathecal (IT) Herceptin (Trastuzumab) for brain mets (Leptomeningeal Metastase

Hope Carol has many more occasions to celebrate. My daughter felt she had accomplished something of importance when she made it to her 50th this last year. With this new IT treatment we have...
Forum: her2group 01-11-2013, 09:12 PM
Replies: 235
Views: 209,887
Posted By evlin75
Re: Intrathecal (IT) Herceptin (Trastuzumab) for brain mets (Leptomeningeal Metastase

Some were started at the lower dose without any hope of that dose escalating. My daughter was selected to stay on the lower dose and continuing that dose throughtout. That is the main reason we...
Forum: her2group 01-10-2013, 05:15 PM
Replies: 235
Views: 209,887
Posted By evlin75
Re: Intrathecal (IT) Herceptin (Trastuzumab) for brain mets (Leptomeningeal Metastase

I looked up the protocol at Sloan Kettering and it seems quite in line with the Chicago trial my daughter Susan was in for a short time.
Some get higher doses than others but go only to 40 mg.
The...
Forum: her2group 01-09-2013, 03:35 PM
Replies: 235
Views: 209,887
Posted By evlin75
Re: Intrathecal (IT) Herceptin (Trastuzumab) for brain mets (Leptomeningeal Metastase

Due to the atypical cells showing in the spinal fluid, the doctor set up the treatment for Herceptin IT 60 mg. instead of the 50 mg he had originally agreed was a next step. Not completely...
Forum: her2group 12-01-2012, 12:51 PM
Replies: 235
Views: 209,887
Posted By evlin75
Re: Intrathecal (IT) Herceptin (Trastuzumab) for brain mets (Leptomeningeal Metastase

My daughter took xeloda with herceptin and tykerb after brain surgery followed by WBR several years ago. There was no negative interaction in her case. The xeloda did not seem to do anything for...
Forum: her2group 10-16-2012, 07:48 PM
Replies: 235
Views: 209,887
Posted By evlin75
Re: Intrathecal (IT) Herceptin (Trastuzumab) for brain mets (Leptomeningeal Metastase

Wonderful! Great news.
Forum: her2group 10-14-2012, 01:15 PM
Replies: 235
Views: 209,887
Posted By evlin75
Re: Intrathecal (IT) Herceptin (Trastuzumab) for brain mets (Leptomeningeal Metastase

Glad to hear the IT treatments seem to be working for others. My daughter was infected with staph - either when the ommaya port was installed or when herceptin was instilled. Had to remove it in an...
Forum: her2group 09-21-2012, 03:13 PM
Replies: 235
Views: 209,887
Posted By evlin75
Re: Intrathecal (IT) Herceptin (Trastuzumab) for brain mets (Leptomeningeal Metastase

IT herceptin is available in Orlando at the MD Anderson facility there, if anyone needing this lives in this area.
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