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Search: Posts Made By: kiwigirl
Forum: her2group 04-15-2012, 10:24 PM
Replies: 39
Views: 2,639
Posted By kiwigirl
Re: Courtney

Courtney made a difference in my life and has taught me how to dell with this horrible disease. No more pain for a very brave lady. Thank you and peace to you. God bless.

Jacqui xxx
Forum: her2group 03-21-2012, 02:14 PM
Replies: 25
Views: 6,386
Posted By kiwigirl
Re: OH what to do???

thank you all for your support it seems to quite a tricky thing to get rid of. So far I'm having radiation which my onc said he could get a great result and get rid of this. I only have three rads...
Forum: her2group 02-28-2012, 02:23 PM
Replies: 25
Views: 6,386
Posted By kiwigirl
Re: OH what to do???

Hi all thank you all for your response it is a great help.I need to be strong but am really having trouble. So what they want to do is 10 rounds of radiation to Lepto sight in back of head and...
Forum: her2group 02-18-2012, 01:12 PM
Replies: 25
Views: 6,386
Posted By kiwigirl
Re: OH what to do???

thanks Lani. Yes they do think its leptomeningeal mets. Ive been vomiting a bit could that be from this?
Forum: her2group 02-18-2012, 01:25 AM
Replies: 25
Views: 6,386
Posted By kiwigirl
Re: OH what to do???

Does anyone know of pertsutinab cross into blood brain yet?
Forum: her2group 02-17-2012, 04:38 PM
Replies: 25
Views: 6,386
Posted By kiwigirl
Exclamation OH what to do???

Hi all well things had been going well until ??? Last week had slight vision problems shaky vomiting. I had MRI done on brain and got really good new two of my tumors shrunk fro 6mm and 7mm to 2mm....
Forum: Profiles In Courage 12-04-2011, 05:20 PM
Replies: 8
Views: 13,195
Posted By kiwigirl
Talking Christmas is early for me....Update from Jacqui

Hi All

I thought i would update you all on my progress. In August I was taking my family on a holiday to Hawaii I had a scan to get a clearance to fly. The scan was not good. Two new brain mets...
Forum: her2group 12-01-2011, 08:38 PM
Replies: 16
Views: 2,426
Posted By kiwigirl
Re: Mets to Brain

Hi i've had mets to the brain.10 in total then i had wbr 21 shots with vmat radiation i had some shrink and one go and then six weeks later they grew back with two new ones. I've been on tykerb and...
Forum: Keeping Your Mind Off of BC 11-08-2011, 06:03 PM
Replies: 39
Views: 16,446
Posted By kiwigirl
Re: Funny Cancer T-Shirts

http://her2support.org/vbulletin/attachment.php?attachmentid=876&stc=1&d=1320800363

Good fun......
Forum: Articles of Interest 11-01-2011, 11:23 AM
Replies: 8
Views: 73,560
Posted By kiwigirl
Re: Artemisinin (anti-malarial, anti-cancer)

In March i made up my own tinicture green walnuts soaked in vodka and wormwood plant. Which i now growen in the garden. I was not on any systemic treatment and had bone mets my last scan showed the...
Forum: her2group 10-12-2011, 02:17 PM
Replies: 17
Views: 2,011
Posted By kiwigirl
Re: Anybody heard from Krisvell?

Hi Kris
I'm so pleased things have improved for you. I'm now on tykerb and xeloda I'll have a scan in a couple of weeks to see how things are going but i to feel heaps better.
Hugs to everyone...
Forum: her2group 10-02-2011, 02:46 PM
Replies: 3
Views: 1,472
Posted By kiwigirl
Re: MD Anderson results w different concurrent chemo w herceptin combos reviewed

Fec was my first line of treatment with herceptin and docetaxol. I had three FEC and three herceptin and taxane.
This does not cross blood brain. I had mets less than a year later after finishing...
Forum: Herceptin / Tykerb 09-19-2011, 04:41 PM
Replies: 2
Views: 3,439
Posted By kiwigirl
Re: Dosing of Tykerb--interesting article.

I think this is really interesting to. I've only been on Tykerb for one week and five days in to it, the drugs were being flushed away. Also this drug is costing $4600 a month so i don't know how...
Forum: her2group 09-16-2011, 02:53 PM
Replies: 15
Views: 20,691
Posted By kiwigirl
Re: Dying your hair after chemo

My hair came back quite dark and super curly. I decided to colour mine a little lighter with blonde tips I combed on the colour so it did not touch my scalp. I like it for a change.
Forum: her2group 09-12-2011, 09:21 PM
Replies: 13
Views: 2,306
Posted By kiwigirl
Re: fish oil may prevent some types of chemotherapy from working

I take Neptune Krill oil which is a small tablet but very very high in omega 3. Since I have just started Tykerb/xeloda is the combination a problem with omega3. When you don't have many shots left...
Forum: her2group 09-04-2011, 04:56 PM
Replies: 16
Views: 2,881
Posted By kiwigirl
Re: People get ready there's a train a'coming... news on pertuzumab, Cleopatra!

I have also seen that it crosses the blood brain barrier like tykerb and is presently being used in Lung cancer that goes to the brain.
Forum: her2group 09-01-2011, 12:05 PM
Replies: 21
Views: 3,805
Posted By kiwigirl
Re: Really bad Brain MRI

Hi All

I really want to thank you all for you help. Its been a huge week. My Pet scan was really good all clear from head down. BUT i had had bone mets in my collar bone and spine. For some...
Forum: her2group 08-31-2011, 02:18 PM
Replies: 21
Views: 3,805
Posted By kiwigirl
Re: Really bad Brain MRI

Thanks guys anxiety meds sound like a good idea. Sorry Jackie but there has been progession in all my tumors. Almost back to original size.

I feel a bit stronger today I've been booked already...
Forum: her2group 08-31-2011, 09:03 AM
Replies: 21
Views: 3,805
Posted By kiwigirl
Unhappy Really bad Brain MRI

Hi All

I had a brain MRI two days ago and this time the results were fast proberley due to the fact it was not good.

Anyway the results are two new small tumors progression in all other...
Forum: her2group 08-25-2011, 01:36 PM
Replies: 5
Views: 1,974
Posted By kiwigirl
MRI results and now lack of sleep due to headaches

Hi all

I finally got my MRI results.... No new tumors in fact one has gone all together. All have had a large reduction but still there.
Any way i don't know what to do Thursday night last week...
Forum: her2group 08-11-2011, 05:53 PM
Replies: 389
Views: 122,829
Posted By kiwigirl
Re: Calling all stage iv sisters

Wow what a list. I'm another stage iv. It's really interesting when you put it like this. Thanks for all your hard work.

Thanks Jacqui
Forum: her2group 08-03-2011, 02:53 PM
Replies: 29
Views: 4,743
Posted By kiwigirl
Re: Darlene Denise is an Angel now

My deepest sympathy are with Darlenes family. RIP Darlene xxx

Jacqui
Forum: her2group 06-15-2011, 12:52 PM
Replies: 19
Views: 3,341
Posted By kiwigirl
Re: Brain Necrosis - No Add'l Treatment - Your thoughts

Hi Kris I've just chimed in on your post. I take boswellia and other liquid herbs. I have to go but will send you an email later. Take care

Luv Jacqui xx
Forum: her2group 06-10-2011, 08:39 PM
Replies: 2
Views: 778
Posted By kiwigirl
Forum: Diet and Nutrition 05-23-2011, 12:46 PM
Replies: 35
Views: 6,761
Posted By kiwigirl
Re: Coffee and Tea

I drink one sometimes to coffee in the morning followed by apple cider vinegar with water..as coffee is very acidic and cancer loves acid. i also drink green tea.
Showing results 1 to 25 of 79

 
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