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Forum: her2group 02-18-2008, 02:13 PM
Replies: 22
Views: 2,418
Posted By Stephanie
Thank you, all, and special hugs to those of you...

Thank you, all, and special hugs to those of you who have also lost your mothers.

And Marcia and Chelee, I'm really sorry your moms died while your were in bc treatment, too.
Forum: her2group 02-16-2008, 08:41 PM
Replies: 22
Views: 2,418
Posted By Stephanie
Thank you, ladies. Maryanne--yes, I was BRCA...

Thank you, ladies.

Maryanne--yes, I was BRCA tested, but it was negative. My mom's bc was most likely random. However, my dad was a Ashkenazi Jew who died of pancreatic cancer, so if I had tested...
Forum: her2group 02-16-2008, 05:50 PM
Replies: 22
Views: 2,418
Posted By Stephanie
My mother

I post here occasionally, but have read every day for the past five years in order to research my mother's HER2+ cancer.

After a very long journey with the disease, my mother passed away on...
Forum: her2group 02-05-2008, 11:55 AM
Replies: 13
Views: 1,748
Posted By Stephanie
Karen--I was told the same thing--that I probably...

Karen--I was told the same thing--that I probably have a mutation they just don't know about and that I should get retested eventually. Like you, on paper I look like a BRCA carrier (father was an...
Forum: her2group 02-04-2008, 09:55 AM
Replies: 59
Views: 4,778
Posted By Stephanie
So very sorry--please accept my condolences.

So very sorry--please accept my condolences.
Forum: her2group 02-04-2008, 09:52 AM
Replies: 3
Views: 1,185
Posted By Stephanie
She's been active over on another list and...

She's been active over on another list and e-mailed me a response on something there.
Forum: her2group 02-04-2008, 09:51 AM
Replies: 2
Views: 1,468
Posted By Stephanie
In addition to getting the input from the ladies...

In addition to getting the input from the ladies here, your friend may want to check out www.breastcancer.org and their Community Knowledge Exchange section. There is a special board just for...
Forum: her2group 02-01-2008, 09:30 PM
Replies: 13
Views: 1,748
Posted By Stephanie
My testing took 3 weeks, and I was given a two...

My testing took 3 weeks, and I was given a two page report. I tested negative.

I believe there are two levels of testing that can be done (it has to do with the number of gene sequences looked...
Forum: her2group 01-29-2008, 08:05 PM
Replies: 10
Views: 1,782
Posted By Stephanie
I googled Dr. Taliano, and there's not much on...

I googled Dr. Taliano, and there's not much on him aside from the website you mentioned and a couple of press releases. It's $97 to access the reports that detail his protocol. Anytime someone...
Forum: her2group 01-26-2008, 08:29 PM
Replies: 18
Views: 3,515
Posted By Stephanie
I've read that melanoma can be caused by the BRCA...

I've read that melanoma can be caused by the BRCA gene, so that's one place where there's a connection with breast cancer. I'd be interested if they're also seeing melanomas in bc patients who are...
Forum: Herceptin / Tykerb 01-23-2008, 11:50 AM
Replies: 8
Views: 2,445
Posted By Stephanie
Yes, she did t/x. She had a mixed response to it...

Yes, she did t/x. She had a mixed response to it (some spots progressed, others resolved) and the onc switched her to Gemzar/Herceptin at that point. She'd been on x/h for about a year prior to that...
Forum: Herceptin / Tykerb 01-22-2008, 08:11 PM
Replies: 8
Views: 2,445
Posted By Stephanie
My mom will be starting Taxol/Tykerb this week....

My mom will be starting Taxol/Tykerb this week. Will keep you posted on her response.
Forum: her2group 01-19-2008, 03:42 PM
Replies: 6
Views: 1,429
Posted By Stephanie
My mom is starting Taxol/Tykerb next week. She's...

My mom is starting Taxol/Tykerb next week. She's on Medicare--don't think she's had any problems with insurance coverage other than that Medicare treats Tykerb as a prescription pill instead of a...
Forum: her2group 01-13-2008, 12:20 PM
Replies: 55
Views: 7,326
Posted By Stephanie
My mom is the HER2 positive one in the family,...

My mom is the HER2 positive one in the family, but I thought I'd chime in since I was 38 at my diagnosis. ER/PR +, HER2 neg, stats in signature.

I was on birth control pills for 17 years, with...
Forum: her2group 01-01-2008, 08:01 PM
Replies: 1
Views: 964
Posted By Stephanie
I've been told it's normal. Mine jumped from...

I've been told it's normal.

Mine jumped from 15.3 after surgery (which was a drop from 28.1 before surgery), then jumped all the way to 35.8 after my first chemo round. They varied between 30-35...
Forum: her2group 01-01-2008, 01:37 PM
Replies: 45
Views: 3,759
Posted By Stephanie
Lani, you are truly amazing. Thank you.

Lani, you are truly amazing. Thank you.
Forum: her2group 12-30-2007, 04:25 PM
Replies: 9
Views: 1,597
Posted By Stephanie
Thanks, Lida. We did mention Doxil to the onc,...

Thanks, Lida. We did mention Doxil to the onc, but she didn't seem to think it was worth trying. I will bring it up again at our next visit.
Forum: her2group 12-28-2007, 09:56 AM
Replies: 9
Views: 1,597
Posted By Stephanie
Thank you all for the responses. The onc did...

Thank you all for the responses. The onc did mention Ixempra, but as a last ditch alternative. Avastin is out b/c her lungs are in such bad shape. My mom is willing to try anything at this point, and...
Forum: her2group 12-27-2007, 07:16 PM
Replies: 9
Views: 1,597
Posted By Stephanie
Retrying chemo-what does your onc say?

I am in desperate need of help for my mom. Her PET today shows progression on Gemzar/Herceptin. She just was admitted to the hospital (went straight from the PET via ambulance) b/c her oxygen sat...
Forum: her2group 10-19-2007, 11:52 AM
Replies: 18
Views: 2,398
Posted By Stephanie
I'm getting biannual MRI's, but that's because I...

I'm getting biannual MRI's, but that's because I have lobular, which is hard to see on mammo, and because I am young with dense breasts.
Forum: her2group 10-07-2007, 03:50 PM
Replies: 4
Views: 1,369
Posted By Stephanie
Thanks, ladies. I appreciate the input!

Thanks, ladies. I appreciate the input!
Forum: her2group 10-06-2007, 02:17 PM
Replies: 4
Views: 1,369
Posted By Stephanie
Tumor markers and liver function

Hi, all. I usually post with questions regarding my mom, but this time I have one about myself. You gals are such a wealth of information, I thought someone might have an idea about my situation.
...
Forum: her2group 09-26-2007, 07:22 PM
Replies: 21
Views: 2,506
Posted By Stephanie
I'm sorry you're having to deal with this lesion...

I'm sorry you're having to deal with this lesion again, Esther. Thoughts and prayers coming your way.
Forum: her2group 09-19-2007, 08:57 AM
Replies: 15
Views: 3,295
Posted By Stephanie
Sandy, I don't post often, but I read the board...

Sandy, I don't post often, but I read the board every day. I just wanted to say thank you for your intelligent and thoughtful posts on this thread. Very well stated.
Forum: her2group 09-06-2007, 08:52 AM
Replies: 2
Views: 1,315
Posted By Stephanie
Spike in tumor markers

Has anyone had their tumor markers spike after starting a new regime, then had the markers come down because the drugs were working? My mom started Tykerb about a month ago, and her CA27-29 shot up...
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