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Search took 0.03 seconds. Search: Posts Made By: Carolyns
Forum: her2group 11-03-2010, 12:51 AM
Replies: 10
Views: 1,537
Posted By Carolyns
Re: Anyone heard from Pam???

Pam - Good to hear from you. Thinking of you and wishing you well!
Forum: her2group 08-31-2010, 03:51 PM
Replies: 25
Views: 4,689
Posted By Carolyns
Re: PET/CT results good! next step?

Hi Pam,

I don't have any answers for you I just wanted to say that I am happy that you got good scan results!

Love, Hope, Peace, Carolyn
Forum: her2group 08-21-2010, 07:02 PM
Replies: 19
Views: 2,318
Posted By Carolyns
Re: update - what to do?

Pam - Chrisy is right. I flew round trip from Florida to Detroit every week for 12 weeks in the study. Prior to that I had to go to Detroit about 6 times to get in the study. In addition to the...
Forum: her2group 08-19-2010, 04:36 PM
Replies: 19
Views: 2,318
Posted By Carolyns
Re: update - what to do?

Hi Pam,

Oh gosh... I think that it is a good thing that you may have two choices. It is hard to say what to do. I travelled for TDM1 and it ended up costing me about $15k and some other more...
Forum: her2group 08-17-2010, 05:16 PM
Replies: 11
Views: 1,594
Posted By Carolyns
Re: Difficulty with eating/swallowing

I have noticed that Anorexia is a side effect for many of the meds I have taken and I have never understood it. I can tell you that I can almost get OCD about food. I think about the texture,...
Forum: her2group 08-17-2010, 03:28 PM
Replies: 11
Views: 1,594
Posted By Carolyns
Re: Difficulty with eating/swallowing

Hi JML,

I agree that it would be a good thing to tell your doctor.

I am on Ixempra now and have the same problem. I find that I have to have small portions of really good food that I like to...
Forum: her2group 08-13-2010, 06:29 AM
Replies: 139
Views: 19,534
Posted By Carolyns
Re: Joe passed on this evening

This is such a shock to read. Peace to you and your family during these most difficult times.

Love, Hope, Peace, Carolyn
Forum: her2group 08-12-2010, 09:53 PM
Replies: 1
Views: 1,694
Posted By Carolyns
Ixempra Tips

Hi All - I wanted to start a thread about Ixempra and any tips anyone might have to make it easier to handle. I know JMP / Jessica has written about it but I can't find much more. I am on day 8 of my...
Forum: her2group 08-10-2010, 06:05 PM
Replies: 40
Views: 3,828
Posted By Carolyns
Re: A Rainbow of Hope FINALLY!!!!

Yay Sheila!!!!!!!!!!!!!!!!

Amazing!

Love, Hope, Peace, Carolyn
Forum: her2group 08-03-2010, 09:09 PM
Replies: 31
Views: 3,873
Posted By Carolyns
Re: Trying not to panic

Hi Pam,

I am sorry that you are going through this. It is so scary. I got about 7 months out of TDM1 and then on to Doxil... for 3 months. Now I am on to Ixempra after progression on Doxil. I...
Forum: her2group 07-10-2010, 05:02 PM
Replies: 22
Views: 3,042
Posted By Carolyns
Re: PET scan results

Hi Pam, It is good to get your report. Stable is great news.

I am like you bone mets everywhere. I have only had rads when they endanger the stability of the bone and / or for pain. Had may...
Forum: her2group 07-03-2010, 09:11 AM
Replies: 6
Views: 1,987
Posted By Carolyns
Re: Looking for ideas to lower liver enzymes

Thanks Becky!

I just found Rich's post on Milk Thistle and it had a link attached so I ordered it online. Not sure about how much to take... Headed to the health food store to buy my juicing...
Forum: her2group 07-03-2010, 08:19 AM
Replies: 6
Views: 1,987
Posted By Carolyns
Looking for ideas to lower liver enzymes

Hi All -

I am Stage IV and have liver mets. My most recent treatment was TDM1 and now I am on Doxil. I could not stay in the study due to increased liver enzymes after about 7 months. I seem...
Forum: her2group 05-11-2010, 04:12 PM
Replies: 16
Views: 2,477
Posted By Carolyns
Re: News story. Must have been a slow news day...lol...just kidding

Hi Maureen,

That is such a beautiful story... and you and your children are also so beautiful. It seems like you squeezed a great deal of information into a short time and you hit so many great...
Forum: her2group 04-27-2010, 05:08 PM
Replies: 21
Views: 2,616
Posted By Carolyns
Re: Bump in the road...talk me off of the ledge

Update - I have an appointment with the radiology oncologist to decide how to approach this new lesion in my arm. The orthopedic gave me a shot of steroid but it didn't help. I feel much better...
Forum: her2group 04-24-2010, 05:57 PM
Replies: 21
Views: 2,616
Posted By Carolyns
Re: Bump in the road...talk me off of the ledge

Update....this is what heard from my doctor:

You have a lesion in the humeral head and a possible fracture. It is not very clear but there is a suggestion of a small fracture. You usually treat...
Forum: her2group 04-23-2010, 03:54 PM
Replies: 21
Views: 2,616
Posted By Carolyns
Bump in the road...talk me off of the ledge

Hi All - I am freaking out a little... you know a vmail from the doc on Friday.

Okay here goes... I am Stage IV with mets in the bones. My right arm started hurting a while ago and it has gotten...
Forum: her2group 04-14-2010, 03:22 PM
Replies: 40
Views: 8,992
Posted By Carolyns
Re: BCA fighting to keep tdm1 off market

Interesting. At last year's annual NBCC I was an attendee. I felt very much alone as a Stage IV warrior. My greatest concerns were different from the majority of attendees. I went to the NBCC...
Forum: her2group 04-14-2010, 07:10 AM
Replies: 40
Views: 8,992
Posted By Carolyns
Re: BCA fighting to keep tdm1 off market

What a load of crap. As a heavily pretreated Stage IV Cancer Warrior I am more limited to Phase I studies... if I can find one. I have participated in 3 clinical trials and got the placebo once...
Forum: her2group 04-11-2010, 09:57 AM
Replies: 38
Views: 3,635
Posted By Carolyns
Re: not good news

Hi Pam,

I am sorry to hear your news but I think I can relate a bit. I just spent a few weeks feeling really down and depressed about the failure of TDM1. It is such a loss when a treatment...
Forum: her2group 03-31-2010, 07:07 PM
Replies: 38
Views: 3,735
Posted By Carolyns
Re: Not the news i had hoped for

Hi Sheila,

I wish I had the right words. You and your family remain in my thoughts and prayers.

Love, Hope, Peace, Carolyn
Forum: her2group 03-13-2010, 11:12 AM
Replies: 12
Views: 3,064
Posted By Carolyns
Re: Ixempra? Any success stories/ experience

Hi Jessica,

I am sorry that you are feeling so bad even with the weekly treatment. My doctor mentioned to me that this will most likely be my next treatment along with Herceptin. No Tykerb.
...
Forum: her2group 03-11-2010, 08:37 AM
Replies: 12
Views: 3,064
Posted By Carolyns
Re: Ixempra? Any success stories/ experience

Jessica, Have they spoken with you about a weekly dosing schedule? If I go on I think I will get it weekly and I heard it was easier. Carolyn
Forum: her2group 03-07-2010, 09:34 AM
Replies: 3
Views: 1,191
Posted By Carolyns
Re: Nerve Damage

I took Neurontin for about a month... didn't know too much about possible side effects. Anyway, it made me very tired when I first started taking it but then it was okay. It got rid of the pain and...
Forum: her2group 03-07-2010, 09:23 AM
Replies: 60
Views: 4,746
Posted By Carolyns
Re: Going through a difficult time

Hi Sheila, Thank you for sharing. I am sorry that you are going through such a rough time. It seems like we should get a pass on some of this stuff with all we must handle ... but it doesn't work...
Showing results 1 to 25 of 477
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