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Search took 0.01 seconds. Search: Posts Made By: Savta
Forum: her2group 12-28-2011, 01:13 AM
Replies: 27
Views: 5,653
Posted By Savta
Re: Lower back pain - when to worry?

Hi,

I haven't posted in quite a while, since I have been living in the uphoria of being NED for the last three and a half years. In fact, in two weeks is my cancerverary--4 years since...
Forum: her2group 01-10-2011, 09:26 AM
Replies: 9
Views: 2,343
Posted By Savta
Re: Help with understanding tumor markers

I just heard from a friend that her ca15-3 is 330.0!!!! Has anyone heard of markers so high? She just had a lumpectomy three weeks ago. Her CT and bone scan came back with no dramatic news. She...
Forum: Clinical Trials 11-09-2010, 03:13 AM
Replies: 104
Views: 38,186
Posted By Savta
Re: Neratinib Clinical Trial

Lapatinib was not offered to me. At the time, the trial for Lapatinib was offered only as adjuvent therapy, and I, like you had neo-adjuvent. I am now on the Neratinib trial for just over 6 months...
Forum: Clinical Trials 10-21-2010, 12:30 PM
Replies: 104
Views: 38,186
Posted By Savta
Re: Neratinib Clinical Trial

I am glad to report that I am nearing the half way mark--almost six months since I started the trial. The first month or two were pretty difficult. But I just kept in mind that I was doing all I...
Forum: Clinical Trials 06-09-2010, 08:32 AM
Replies: 104
Views: 38,186
Posted By Savta
Re: Neratinib Clinical Trial

So here I am, six weeks into the trial. I still get really bad bouts of diarrhea, and feel weak and queasy--but I do get a few good days in between the lousy ones. I still don't know what is good...
Forum: Clinical Trials 05-26-2010, 08:19 AM
Replies: 104
Views: 38,186
Posted By Savta
Re: Neratinib Clinical Trial

Tomorrow is my one month check up. For the last week, the diarrhea and just plain lousy feeling have accelerated. I seem to have "bad" bouts every day--and giving in to popping Immodium. I am...
Forum: Keeping Your Mind Off of BC 05-25-2010, 11:46 AM
Replies: 2,096
Views: 265,275
Posted By Savta
Re: SCRABBLE anyone?

starts - smarts
Forum: Clinical Trials 05-17-2010, 11:28 AM
Replies: 104
Views: 38,186
Posted By Savta
Re: Neratinib Clinical Trial

Well, I'm back to feeling the side effects, or what I think are the side effects of Neratinib. I always think I must be used to it by now, and then I have a few rough days. I, too, am much more...
Forum: Clinical Trials 05-11-2010, 04:58 AM
Replies: 104
Views: 38,186
Posted By Savta
Re: Neratinib Clinical Trial

I don't know what to think. I am 13 days into the trial. Had the blessed runs for the first 11 days--now, NOTHING!!! Could it mean that I have already gotten used to the drug? They say it usually...
Forum: Clinical Trials 05-07-2010, 06:36 AM
Replies: 104
Views: 38,186
Posted By Savta
Re: Neratinib Clinical Trial

I don't think it means anything just yet. Some of the women didn't feel anything for the first few days. I also read in Wyeth's website, that 15% of the women taking the drug didn't get diarrhea. ...
Forum: Clinical Trials 05-04-2010, 11:47 PM
Replies: 104
Views: 38,186
Posted By Savta
Re: Neratinib Clinical Trial

Thanks to all of you for words of encouragement. I seem to be into some kind of routine. About every 36 hours I get a really bad bout--but the immodium seems to control it for a while. My biggest...
Forum: Clinical Trials 05-01-2010, 12:23 PM
Replies: 104
Views: 38,186
Posted By Savta
Re: Neratinib Clinical Trial

So here is how it's going so far. The day after I took the first dose, I had three bouts of diarrhea. I began taking the immodium and took precautions with my diet. Today, I had only two bouts and...
Forum: Clinical Trials 04-29-2010, 11:04 AM
Replies: 104
Views: 38,186
Posted By Savta
Re: Neratinib Clinical Trial

So, today I officially joined the Neratinib trial. Seeing as I only took the pills 9 hours ago, I guess I can't determine anything out of the ordinary. My doctor told me there are some that get the...
Forum: Keeping Your Mind Off of BC 04-28-2010, 08:55 AM
Replies: 2,096
Views: 265,275
Posted By Savta
Re: SCRABBLE anyone?

creams - crates
Forum: Keeping Your Mind Off of BC 04-27-2010, 10:50 AM
Replies: 2,096
Views: 265,275
Posted By Savta
Re: SCRABBLE anyone?

cursed-scared
Forum: Keeping Your Mind Off of BC 04-27-2010, 09:09 AM
Replies: 2,096
Views: 265,275
Posted By Savta
Re: SCRABBLE anyone?

tracks - trucks
Forum: Clinical Trials 04-27-2010, 03:47 AM
Replies: 104
Views: 38,186
Posted By Savta
Re: Neratinib Clinical Trial

Hello to all of you.
I have just been asked to participate in the Neratinib trials as well. I, of course, do not know if I will be receiving the drug or the placebo. But I wanted to ask those of...
Forum: Keeping Your Mind Off of BC 11-02-2009, 02:45 PM
Replies: 2,096
Views: 265,275
Posted By Savta
Re: SCRABBLE anyone?

strait -trains
Forum: Keeping Your Mind Off of BC 10-29-2009, 12:04 PM
Replies: 2,096
Views: 265,275
Posted By Savta
Re: SCRABBLE anyone?

treats - traits
Forum: her2group 10-16-2009, 04:23 AM
Replies: 112
Views: 11,809
Posted By Savta
Re: ~Mighty Oak Has Earned His Wings And Halo...

Marie,
My thoughts and prayers are with you in these difficult hours. Ed's strength and courage was a beacon to all of us that followed you on your journey.
May the love and memories of better...
Forum: Keeping Your Mind Off of BC 10-14-2009, 01:56 PM
Replies: 2,096
Views: 265,275
Posted By Savta
Re: SCRABBLE anyone?

debate - elated
Forum: her2group 10-06-2009, 05:10 AM
Replies: 46
Views: 4,066
Posted By Savta
Re: It's happening

Deepest sympathy for your loss. May you be comforted by the wonderful memories you carry in your heart of your courageous mother. And be assured that your love and support gave her the strength to...
Forum: Keeping Your Mind Off of BC 10-04-2009, 11:03 PM
Replies: 2,096
Views: 265,275
Posted By Savta
Re: SCRABBLE anyone?

scream - creamy
Forum: Keeping Your Mind Off of BC 10-04-2009, 11:48 AM
Replies: 2,096
Views: 265,275
Posted By Savta
Re: SCRABBLE anyone?

seamed - dreams (gotta have 'em!)
Forum: her2group 10-04-2009, 11:45 AM
Replies: 19
Views: 1,694
Posted By Savta
Re: 5-year cancerversary

Jen,

My best wishes to you! Having also been diagnosed IIIa, I am still living in constant fear of recurrance. My oncologist keeps telling me that I had such a good result, I have very good...
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