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Search: Posts Made By: valleygirl
Forum: her2group 08-08-2021, 10:16 AM
Replies: 5
Views: 1,477
Posted By valleygirl
Re: Nct03368729

I appreciate all your insight.

Thank you!!
Denise
Forum: her2group 08-06-2021, 03:32 PM
Replies: 5
Views: 1,477
Posted By valleygirl
Nct03368729

Looks like I'll be starting this trial in acouple weeks. Anyone familiar
with it or on it?
Forum: her2group 07-11-2021, 06:34 PM
Replies: 8
Views: 1,809
Posted By valleygirl
Re: treatments

It was a Merck study at Dana Farber, I think I have the PDL1 mutation.
II'm currently on the lowest dose of Enhertu and every 4 weeks.
Thank you!!!
Forum: her2group 07-09-2021, 05:37 PM
Replies: 8
Views: 1,809
Posted By valleygirl
Re: treatments

Thank you for all the information! Once Herceptin and Perjeta stopped working I did 2 trials #1 Keytruda & TDM1, got 18 months #2 HER2CLIMB was on this over 2 years'
Currently on Enhertu, after only...
Forum: her2group 07-08-2021, 03:51 PM
Replies: 8
Views: 1,809
Posted By valleygirl
Re: treatments

or maybe any treatments you been on and i can start making a list. I feel like I'm running out of options and could use some help. I hoping there are more maintenance drugs that I don't know about....
Forum: her2group 07-07-2021, 01:48 PM
Replies: 8
Views: 1,809
Posted By valleygirl
treatments

Where can I find I list of all treatments for HER2+++
Looking for tageted therapies and chemos.

Thank you!!!!!
Forum: her2group 04-25-2021, 05:24 PM
Replies: 9
Views: 2,316
Posted By valleygirl
Re: Looks like I have progression

Yes, er- pr-. My CA-15-3 is always in the 11-15 range, doesn't change. Thanks for all the information, it's greatly appreciated!!
Forum: her2group 04-24-2021, 05:15 PM
Replies: 9
Views: 2,316
Posted By valleygirl
Re: Looks like I have progression

From my foundation one: ERBB2 amplification, CDKN2A/B loss, MLL3 Q1211, TP53 R248Q. First diagnosed in 2011 stage 3C did AC/taxol followed by a year of Herceptin. 2015 diagnosed stage 4 mets to...
Forum: her2group 04-22-2021, 05:42 PM
Replies: 9
Views: 2,316
Posted By valleygirl
Re: Looks like I have progression

The Her2CLIMB trial included Tucatinib , Xeloda and herceptin. I received all three. I was hoping there were more treatment options for HER2 positive but can't seem to find more
Forum: her2group 04-21-2021, 06:16 PM
Replies: 9
Views: 2,316
Posted By valleygirl
Looks like I have progression

Looks like I have progression. I'm currently on the HER2climb trial and before that I was on a trial with TDM1 and Keytruda.
What are some other drugs that are available for HER positive cancer?...
Forum: her2group 11-23-2020, 06:19 PM
Replies: 2
Views: 1,873
Posted By valleygirl
Ejection fraction

I've been on some type of treatment along with Herceptin for the past 6 years and having trouble keeping my ejection fraction up. Wondering if any of you had the same trouble. Looks like they want to...
Forum: her2group 12-02-2019, 11:14 AM
Replies: 9
Views: 3,613
Posted By valleygirl
Re: Looking for hope

Hi SoCalGal!

Currently on the HER2CLIMB and stable. Lots of side effects. On heart meds, bad echo,
drugs have caused ulcers and just found out I have osteoporosis from treatment. Before this...
Forum: her2group 11-23-2019, 04:00 PM
Replies: 9
Views: 3,613
Posted By valleygirl
Looking for hope

Looking to hear from long term stage 4 survivors who have been on several lines of treatment. I'm stage 4 and on my 3rd line and second trial. The longer I go the more nervous I get. At the beginning...
Forum: her2group 03-20-2019, 08:13 AM
Replies: 12
Views: 2,986
Posted By valleygirl
Re: Will be 8yrs NED from Stage IV in April

Thanks for the update, LOVE hearing this!!! I'm 4 years stage 4. Currently on my second trial and praying for many more years
Forum: Herceptin / Tykerb 10-28-2018, 04:54 PM
Replies: 4
Views: 5,511
Posted By valleygirl
Re: Herceptin and Joint Stiffness

Yes, I agree with Lani. I get my Herceptin with just sterile water. I was in horrible pain before the change
Forum: her2group 09-29-2018, 05:08 PM
Replies: 3
Views: 3,138
Posted By valleygirl
Re: ? counteract hand-foot syndhrome from Xeloda

I don't have the blisters, but my feet burn horribly. I follow a facebook page for people who are currently on Xeloda and they recommend Eucerin, coconut oil and Aquaphor.
Forum: her2group 08-08-2018, 04:52 AM
Replies: 14
Views: 4,452
Posted By valleygirl
Re: Keytruda

I was on Keytruda along with TDM1 for 18 months. Very easy drugs, tolerated it much better then Herceptin and perjeta. Was able to travel to Italy, Paris and Croatia while
on it. Very doable, I had...
Forum: her2group 07-27-2018, 12:20 PM
Replies: 124
Views: 26,095
Posted By valleygirl
Re: Treatment after Kadcyla?

Hi SoCalGal,

What trial are you going on? I've been approved for the HER2CLIMB, waiting to hear if I get approved for DS-8201a in Human Epidermal Growth Factor Receptor 2 (HER2)-Positive Breast...
Forum: her2group 07-05-2018, 04:45 AM
Replies: 4
Views: 3,846
Posted By valleygirl
Re: HER2Climb & SPORE

Sorry, it's the AVIATOR, not SPORE

https://clinicaltrials.gov/ct2/show/NCT03414658?term=17-455&recrs=ab&cond=HER2-positive+Breast+Cancer&rank=1
Forum: her2group 07-04-2018, 10:40 AM
Replies: 4
Views: 3,846
Posted By valleygirl
HER2Climb & SPORE

Anyone on the HER2CLIMB or SPORE trials? Had progression on my last
one and looking for something new. Just wondering what the side effects are and how long you've been on it.

Thanks!!!! Denise
Forum: her2group 07-03-2018, 06:54 AM
Replies: 124
Views: 26,095
Posted By valleygirl
Re: Treatment after Kadcyla?

I was on a trial for Kadcyla & Keytruda and they have failed. Not sure what my next move will be. I'm curious to know what ai is that is added to Kadcyla. I'm also thinking about the HER2CLIMB. My...
Forum: her2group 05-27-2018, 04:09 PM
Replies: 8
Views: 5,211
Posted By valleygirl
Re: Long time, no see!

Yes, I'd like to hear from long term warriors. I've been on TDM1 and Keytruda a little over a year. Been having a hard time with fatigue and joint pain. Have been out on LTD for the past 6 months. I...
Forum: her2group 04-15-2018, 04:04 PM
Replies: 4
Views: 4,489
Posted By valleygirl
stage 4 ladies, can use some hope

I've been stage 4 going on 3 years now. Currently on a clinical trail after
Herceptin and perjeta failed me. I'm currently stable but always waiting for the hammer to drop. I'm out currently on STD....
Forum: her2group 02-17-2018, 02:54 PM
Replies: 6
Views: 5,116
Posted By valleygirl
Re: Trends in tumor markers

It's scary, mine look exactly like yours. I'm currently stable on TDM1 and Keytruda, my tumor makers have been slowly creeping up. They are still within normal limits, but I don't think they have...
Forum: her2group 02-12-2018, 10:01 AM
Replies: 2
Views: 5,322
Posted By valleygirl
Re: Research Study Opportunity

You posted this on the 11th, are the available dates correct?
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