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Search: Posts Made By: SoCalGal
Forum: her2group 12-03-2019, 06:32 PM
Replies: 8
Views: 309
Posted By SoCalGal
Re: Looking for hope

@scottmac I don’t know if it’s confirmed but tucatinib is certainly expected out the first quarter of next year.
Forum: her2group 12-02-2019, 11:42 AM
Replies: 8
Views: 309
Posted By SoCalGal
Re: Looking for hope

Well you’ve been on two of the top trial drugs. One is now approved (kadcyla) and tucatinib is supposed to be out first quarter of 2020. Also due first quarter is ds8201. So you’ve picked a good time...
Forum: her2group 12-01-2019, 10:18 PM
Replies: 8
Views: 309
Posted By SoCalGal
Re: Looking for hope

What trial are you on and how are you doing, are you NED or stable or what?
Forum: her2group 10-30-2019, 10:58 PM
Replies: 9
Views: 484
Posted By SoCalGal
Re: Add me to the Thirteen Year Club!

excellent news! Keep going...
xoxo
Forum: her2group 09-07-2019, 08:14 AM
Replies: 68
Views: 6,845
Posted By SoCalGal
Re: Whack-a-mole next...

Good news on brain/cervical MRI—NOTHING NEW in head and spinal cord met has shrunk way down. Brain met also shrinking — no swelling in cerebellum and nothing to correlate or cause vertigo so with...
Forum: her2group 09-03-2019, 08:27 PM
Replies: 68
Views: 6,845
Posted By SoCalGal
Re: Whack-a-mole next...

My apologies for not responding sooner, it’s very difficult to find the words. I’ve been given an average lifespan of 6 mos. and I’m just trying to deal the best I can. Feel free to friend me on...
Forum: her2group 09-03-2019, 11:58 AM
Replies: 68
Views: 6,845
Posted By SoCalGal
Re: Whack-a-mole next...

Hi Lovely people,

Sorry I’ve been so remiss in updating - my emotional state has been garbage. After so many years of coping with this beast of a disease, to wind up with LMD and CNS and not...
Forum: her2group 06-22-2019, 01:13 PM
Replies: 68
Views: 6,845
Posted By SoCalGal
Whack-a-mole next...

Welp...after 12 years of MBC and constant treatment, my slow progression has finally sped up. Latest PETscan showed mucho metabolic activity in sternum, manubrium and lungs.

BRAIN MRI
Brain...
Forum: her2group 05-24-2019, 09:45 PM
Replies: 111
Views: 15,497
Posted By SoCalGal
Re: ZW25 clinical trial - day one

Lucy thanks for the reminder, you are right, my mind is racing. Big hugs, Flori
Forum: her2group 05-24-2019, 05:44 PM
Replies: 111
Views: 15,497
Posted By SoCalGal
Re: ZW25 clinical trial - day one

My scan showed quite a bit of progression. Going for brain mri tomorrow plus cervical. Next week thoracic and lumbar spine MRI’s. I dont have pain but have random numbness on my NON-cancer right side...
Forum: her2group 04-23-2019, 04:34 PM
Replies: 111
Views: 15,497
Posted By SoCalGal
Re: ZW25 clinical trial - day one

Thanks everyone...will update after scan results and doctor visit on Friday. xoxo
Forum: her2group 04-23-2019, 04:32 PM
Replies: 7
Views: 704
Posted By SoCalGal
Re: Could this be Skin Mets?

Highly unlikely, especially since your surgeon saw and was unconcerned - seems like a surgeon would recognize mets when he/she saw them. I had skin lymphatic involvement way back in 2004, and mine...
Forum: her2group 04-17-2019, 07:29 AM
Replies: 124
Views: 15,873
Posted By SoCalGal
Re: Treatment after Kadcyla?

Heartbreaking news. I am so sorry for your loss, Iain. Your mom will be sorely missed, she was a sweetheart, kind and supportive to all. Thanks for letting us know. May her memory be a blessing to...
Forum: her2group 04-12-2019, 05:37 PM
Replies: 111
Views: 15,497
Posted By SoCalGal
Re: ZW25 clinical trial - day one

Hi Gals,
Well...I'm not going to continue with the trial. My decision for a variety of reasons, but rising markers and just can't take the USC Norris environment and the lack of proper medical...
Forum: her2group 03-06-2019, 12:31 PM
Replies: 16
Views: 1,156
Posted By SoCalGal
Re: 7 years stage IV

I'm almost 12 years stage 4 so try to catch up with me!! Also, you might want to take advantage of recently approved Herceptin as a shot!! NO more infusions. Congrats on the 7 years...keep going :) ...
Forum: her2group 03-06-2019, 12:27 PM
Replies: 3
Views: 709
Posted By SoCalGal
Smile herceptin injection approved!!!!

Lani posted the links and info in a separate thread - but subcutaneous herceptin is now approved in the USA!!!!

For those who are on herceptin only or herceptin with an oral agent, this could be...
Forum: her2group 03-06-2019, 12:22 PM
Replies: 124
Views: 15,873
Posted By SoCalGal
Re: Treatment after Kadcyla?

Hello Juls--Am thinking of you. [[[hugs]]]
Forum: her2group 03-06-2019, 12:12 PM
Replies: 111
Views: 15,497
Posted By SoCalGal
Re: ZW25 clinical trial - day one

Had treatment yesterday - ZW #10.

Had to push it up a week bc sponsor didn't have my drug lot ready on time and trial hosts called me to reschedule. Well, first they asked me to reschedule a day...
Forum: her2group 02-04-2019, 07:57 PM
Replies: 110
Views: 23,812
Posted By SoCalGal
Forum: her2group 02-04-2019, 07:56 PM
Replies: 16
Views: 1,079
Posted By SoCalGal
Re: Pericarditis Query

Just catching up, Marie, hope you're feeling better!!
Forum: her2group 02-04-2019, 06:56 PM
Replies: 124
Views: 15,873
Posted By SoCalGal
Re: Treatment after Kadcyla?

Juls
Not sure why your onco doesn't seem forthcoming with info. I am frustrated on your behalf!!

Can you search with this link from breastcancer.org? they have a good metastatic search engine. ...
Forum: her2group 02-04-2019, 06:47 PM
Replies: 111
Views: 15,497
Posted By SoCalGal
Re: ZW25 clinical trial - day one

LAUREL!! I'm alive and well-ish. We are rainy rainy here but please come and visit me--warmer then east coast! And mid-west. Below zero??? Crazy cold.

Did treatment 2 weeks ago and tomorrow is...
Forum: her2group 01-11-2019, 06:02 PM
Replies: 124
Views: 15,873
Posted By SoCalGal
Re: Treatment after Kadcyla?

Juls,
Sorry that you are not feeling well. Sciatic pain is horrible, I hope that you get pain managed and answers soon. Any chance of you joining a clinical trial?! Sending hugs and so much love...
Forum: her2group 01-11-2019, 05:58 PM
Replies: 5
Views: 1,804
Posted By SoCalGal
Re: Mets

Gardener-- "asking for a friend" lol. Please feel free to post your questions in this thread. More helpful to all that way.
Forum: her2group 01-08-2019, 12:35 AM
Replies: 124
Views: 15,873
Posted By SoCalGal
Re: Treatment after Kadcyla?

How are you Juls?
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