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Search: Posts Made By: jaykay
Forum: her2group 08-09-2018, 05:29 PM
Replies: 4
Views: 282
Posted By jaykay
Re: Recurrence

Hi Ginny, sorry to hear of your recurrence. I recurred after 12 years and even though it was considered a new primary because it was in the other breast, it was the exact same pathology as the...
Forum: her2group 07-30-2018, 03:33 PM
Replies: 67
Views: 4,476
Posted By jaykay
Re: Cancer 'n Me

Hey Flori,

Thinking of you and hoping for some positive news re:trials and everything else. You are an incredibly brave lady.
Janis
Forum: her2group 05-13-2018, 10:48 AM
Replies: 67
Views: 4,476
Posted By jaykay
Re: Cancer 'n Me

Ah Flori - love the mohel reference but hate the context. Will be thinking of you tomorrow.

F’ing cancer
Forum: her2group 04-11-2018, 12:39 PM
Replies: 8
Views: 2,611
Posted By jaykay
Re: Stroke after tamoxifen

Oh jeez, Europa! I'm glad you're okay now but it must have been frightening for you
Forum: her2group 03-11-2018, 10:13 AM
Replies: 39
Views: 6,758
Posted By jaykay
Re: Kadcyla n me

Dear Flori - crossing my fingers and toes that the side effects and liver numbers stay within the tolerable range.

Thinking of you
Forum: her2group 02-09-2018, 06:13 AM
Replies: 17
Views: 4,314
Posted By jaykay
Re: 6 years later and MRI picks up something

Waiting sucks. I had an 18 month stint where the breast MRI showed something and there was nothing on the ultrasound. Every six months for both tests until MRI was clear.
And I have implants!
...
Forum: her2group 02-06-2018, 03:24 PM
Replies: 6
Views: 3,522
Posted By jaykay
Re: Sore mouth from chemo - ice therapy?

I used biotene products at the recommendation of my dentist for dry mouth. I'm not sure I ever had a sore mouth.

I had a prescription for "magic mouthwash" which is similar to what Paul...
Forum: her2group 01-26-2018, 07:11 AM
Replies: 4
Views: 3,717
Posted By jaykay
Re: Michka has earned her wings (back in 2017)

Thanks, Lani for the bad news. I think we all figured something was wrong when there was no activity. Same with Amy. Sigh...
Forum: her2group 01-26-2018, 07:09 AM
Replies: 40
Views: 11,818
Posted By jaykay
Re: Amy? (Mtngrl)

I hate this disease. So sad to hear about Amy
Forum: her2group 11-27-2017, 12:06 PM
Replies: 25
Views: 6,867
Posted By jaykay
Re: Senior Member Check-In!

5 years out from 2nd diagnosis and 17.5 from 1st diagnosis. Thanks to this group for helping me cope. You are all smart, wise and compassionate!

I know it's not original but "what a long,...
Forum: her2group 11-14-2017, 07:25 AM
Replies: 7
Views: 2,923
Posted By jaykay
Re: New Article: 20-year risk of BC recurrence & length of endocrine therapy

Side effects from letrozole? Can't tell whether it's the letrozole or getting older, lol. I've been osteopenic for years (before BC) and have done the fosamax, actonel, reclast . My...
Forum: her2group 11-13-2017, 05:15 PM
Replies: 7
Views: 2,923
Posted By jaykay
Re: New Article: 20-year risk of BC recurrence & length of endocrine therapy

Ok, so a combo of er+ and her2+ stinks big time. I was on tamoxifen and letrozole for 10 years, happily anti-estrogen free for 18 months, then "kaboom", breast cancer again in other breast. Back on...
Forum: her2group 10-11-2017, 03:14 PM
Replies: 6
Views: 2,565
Posted By jaykay
Re: Anyone switch from Arimidex to tamoxifen?

Hi Dee,

Why wouldn't your Onc put you on another AI like letrozole or aromasin? I was on tamoxifen for 4.5 years and hated every second. I was on letrozole for 5 years the first time and 4 years...
Forum: her2group 10-06-2017, 03:06 PM
Replies: 42
Views: 10,514
Posted By jaykay
Re: Phooey--Brain Mets

Thanks for checking in!
Forum: her2group 09-03-2017, 05:48 PM
Replies: 27
Views: 6,947
Posted By jaykay
Re: Our Waterdreamer is Gone

So sorry to hear this. Condolences to Fern's friends and family.

I hate this disease
Forum: her2group 08-16-2017, 11:03 AM
Replies: 9
Views: 3,516
Posted By jaykay
Re: Update, good news, bad news

Great news on both fronts, Tracy
Forum: Herceptin / Tykerb 08-10-2017, 05:45 AM
Replies: 18
Views: 2,525
Posted By jaykay
Forum: her2group 08-02-2017, 09:31 AM
Replies: 5
Views: 3,296
Posted By jaykay
Re: My herceptin is being suspended during 6 week radiation. Not comfortable with thi

Hi and congratulations on completing chemo. My herceptin was not suspended during my radiation. I was on an every three week schedule, not every week and my radiation was on my right side, not my...
Forum: her2group 07-16-2017, 09:36 AM
Replies: 42
Views: 10,514
Posted By jaykay
Re: Phooey--Brain Mets

Phooey is right! And resectable (as others have pointed out) sounds good to me.

Janis
Forum: her2group 05-21-2017, 09:39 AM
Replies: 31
Views: 12,209
Posted By jaykay
Re: 12 years, but who is counting?

Congratulations, Karen and glad to hear from you!
Forum: her2group 05-18-2017, 05:22 PM
Replies: 12
Views: 4,499
Posted By jaykay
Re: A Blessing From Cancer

What great news! Congratulations
Forum: her2group 05-10-2017, 01:48 PM
Replies: 15
Views: 4,292
Posted By jaykay
Re: twelve years !

Excellent! Congratulations
Forum: her2group 04-28-2017, 06:34 PM
Replies: 1
Views: 3,141
Posted By jaykay
Re: Scalp itch....anyone else?

Hi, congrats on completing chemo; you're in the home stretch!

Can I assume your hair is growing back? I remember bad itching but I washed my hair with sulfate free shampoo (same stuff I used...
Forum: her2group 04-26-2017, 02:36 PM
Replies: 13
Views: 5,609
Posted By jaykay
Re: when did you 'break up' with your onco?

From April 2000 - September 2012, I saw my onc every six months. I was definitely NED but I think she wanted to see my every 6 months because I was Her2+ and never had chemo or herceptin (Stage 1A)....
Forum: her2group 04-26-2017, 02:30 PM
Replies: 11
Views: 5,068
Posted By jaykay
Re: Laurie7 has died

I hate cancer
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