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Search: Posts Made By: Joan M
Forum: her2group 06-20-2018, 05:35 AM
Replies: 17
Views: 946
Posted By Joan M
Re: hope for those with brain mets

Thanks for this post. Excellent information. I had a brain met in 2008 and have never had another. Not sure why.
Forum: her2group 06-20-2018, 05:22 AM
Replies: 386
Views: 101,141
Posted By Joan M
Re: Calling all stage iv sisters

Glad to hear that you you've had a good result! I used local procedures as well, but in the lung.
Forum: her2group 06-20-2018, 05:16 AM
Replies: 3
Views: 787
Posted By Joan M
Re: It's Back - I'm Back

Donna,

I'm sorry to hear about this after almost 12 years. We never know with this disease. It can be persistent. But I know that you will be persistent as well. Best of luck with your treatment....
Forum: her2group 05-08-2018, 07:58 AM
Replies: 33
Views: 5,749
Posted By Joan M
Re: Cyberknife or Whole Brain?

You may want to check out Breast Cancer Trials (bctrials.org), which also has a a separate trial search engine. Perhaps a trial will work for you at some point.

I had only one brain met that was...
Forum: her2group 05-08-2018, 07:55 AM
Replies: 14
Views: 6,727
Posted By Joan M
Forum: her2group 05-08-2018, 07:53 AM
Replies: 14
Views: 6,918
Posted By Joan M
Re: Anyone Stage IV De Novo With 10+ Years NED?

Ten years NED this year.
Diagnosed stage 4 in 2007 (diagnosed stage 2 in 2003).

HER2+ used to be such a dreadful diagnosis back then. Now, we have many treatment options to help stabilize and...
Forum: her2group 01-27-2018, 01:26 AM
Replies: 40
Views: 11,818
Posted By Joan M
Re: Amy? (Mtngrl)

Thanks for letting us know, Steph. My prayers go out to Amy and her family during this very difficult time.
Forum: her2group 01-27-2018, 01:11 AM
Replies: 15
Views: 4,298
Posted By Joan M
Re: News old or new -- i recently found out

This is very sad news. I met Michka and her husband in Paris for dinner in 2011. It is a nice memory, as we all enjoyed ourselves, and yes J-P couldn't really follow the English all that well. She...
Forum: her2group 10-28-2017, 09:40 AM
Replies: 13
Views: 3,259
Posted By Joan M
Re: Decisions, decisions

Thanks, Steph, for your reply. It will be interesting to see how well I feel now that I've stopped H.

One of my concerns is about a mutation that was discovered with my Guardant Health 360 liquid...
Forum: her2group 10-27-2017, 01:03 PM
Replies: 13
Views: 3,259
Posted By Joan M
Re: Decisions, decisions

Hello, again, ladies,

Just an update on my treatment. I've decided to take a 3-month break and try to sort out whether I'm having heart issues.

I often feel out of breath at the least...
Forum: her2group 10-15-2017, 09:20 AM
Replies: 13
Views: 3,259
Posted By Joan M
Re: Decisions, decisions

Hi Becky,

That I do. In fact, I left my place of birth about 4 years ago and moved just across the river and down the road a piece. But I'm still being treated in NYC and go back and forth all the...
Forum: her2group 10-14-2017, 12:43 PM
Replies: 42
Views: 10,514
Posted By Joan M
Re: Phooey--Brain Mets

Always wish you the best, Amy.

Joan
Forum: her2group 10-14-2017, 12:42 PM
Replies: 27
Views: 6,947
Posted By Joan M
Re: Our Waterdreamer is Gone

I'm so sorry to hear this about Fern. She and Karen were close.

Joan
Forum: her2group 10-14-2017, 12:40 PM
Replies: 13
Views: 3,259
Posted By Joan M
Re: Decisions, decisions

Hi Jean,

And now I practically have a bum arm. "Happiness" doesn't last forever.

Great to hear that you're doing well!

Best,
Joan
Forum: her2group 10-10-2017, 01:18 PM
Replies: 13
Views: 3,259
Posted By Joan M
Re: Decisions, decisions

Thanks, Tracy. I know of another women being treated at Fred Hutch in Seattle, where they tried to put a port back in at the same location but it didn't work. She had to have it inserted on the other...
Forum: her2group 10-08-2017, 08:31 AM
Replies: 13
Views: 3,259
Posted By Joan M
Decisions, decisions

I'm trying to decide whether to take a break from Herceptin or put in another port.

My port was removed in 2006 after my treatment for stage 2 breast cancer (ER-/PR-/HER2+), and then six months...
Forum: her2group 09-29-2017, 06:49 AM
Replies: 4
Views: 3,323
Posted By Joan M
Re: Northwest MBC conference

Steph, Great spending time with you, as well. I think that videos from the conference are available online for anyone who missed the live-stream. The first day was entirely on complementary medicine,...
Forum: her2group 08-15-2017, 08:22 PM
Replies: 4
Views: 3,323
Posted By Joan M
Re: Northwest MBC conference

Me too, Steph! It's been awhile.

Joan
Forum: her2group 08-14-2017, 05:50 PM
Replies: 4
Views: 3,323
Posted By Joan M
Northwest MBC conference

Fred Hutchinson in Seattle is having a conference for those of us living with MBC, September 22-23. You can apply for a travel grant to cover some of the cost of travel and hotel. I will be attending...
Forum: her2group 08-01-2017, 06:34 PM
Replies: 42
Views: 10,514
Posted By Joan M
Re: Phooey--Brain Mets

Amy,

I'm hopeful that the targeted rads will eliminate the mets. Good luck with the treatment!

All my best,

Joan
Forum: her2group 05-12-2017, 06:07 PM
Replies: 20
Views: 7,253
Posted By Joan M
Re: New Plan

Amy,

It does take a village, and it seems like you have one. At least it appears that you have options, and you're now aware of a phase 1 trial based on your genomic testing.

Back in a January...
Forum: her2group 01-20-2017, 06:07 PM
Replies: 40
Views: 12,348
Posted By Joan M
Re: 15 years stage IV - no drugs in 8yrs - still NED

Congratulations, Steph! Great news for the new year!

Best always, Joan
Forum: Herceptin / Tykerb 10-27-2016, 04:11 PM
Replies: 1
Views: 2,065
Posted By Joan M
Some clues to resistance

Just read this story in Science Daily. It discusses mutations that may contribute to survival.

https://www.sciencedaily.com/releases/2016/08/160817185346.htm#.WBKBb9p

Joan
Forum: her2group 09-09-2016, 04:34 PM
Replies: 28
Views: 9,712
Posted By Joan M
Re: Local treatment in lungs?

Amy,

Praying for success in treating your lung mets.

Joan
Forum: her2group 09-09-2016, 03:59 PM
Replies: 4
Views: 3,543
Posted By Joan M
Re: Circulating tumor cells

Amy,

Thanks for your reply and the links. I'm going to start working on getting a test. To get around my onc's resistance.

Joan
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