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Forum: her2group 10-04-2008, 01:21 PM
Replies: 108
Views: 12,091
Posted By Esther
Like StephN said, it will be difficult to find a...

Like StephN said, it will be difficult to find a location to get either of those treatments.

The first article you posted seems to refer to Provera or other similar drugs, the only thing I can...
Forum: her2group 10-04-2008, 01:13 PM
Replies: 14
Views: 1,675
Posted By Esther
Thanks Brenda for the links. There is so much...

Thanks Brenda for the links. There is so much information there, that I'll have to review them a few times to absorb it.

I hadn't known that IMRT was an option for brain mets, so this was useful...
Forum: her2group 10-04-2008, 01:08 PM
Replies: 8
Views: 1,612
Posted By Esther
Happy birthday Joy, and so glad you have found a...

Happy birthday Joy, and so glad you have found a partner to enjoy your life with.

May you have many, many more!
Forum: her2group 10-04-2008, 11:26 AM
Replies: 14
Views: 1,675
Posted By Esther
Hi Brenda, just curious why IMRT was the...

Hi Brenda, just curious why IMRT was the treatment you chose. Was there something specific that IMRT offered?

I'm always checking out treatment options to see what I might be able to draw on in...
Forum: her2group 09-29-2008, 11:23 PM
Replies: 28
Views: 2,882
Posted By Esther
I'm 47, just a kid still, ha! Somewhere along...

I'm 47, just a kid still, ha! Somewhere along the way I decided to hit 50 in the best shape ever.

Dr. Pegram responded "why not?" when I told him I wanted 20 more years after stage 4, so I'm...
Forum: her2group 09-29-2008, 03:09 PM
Replies: 108
Views: 12,091
Posted By Esther
rich, did they tell you why they can't stent the...

rich, did they tell you why they can't stent the liver? It's not really that big a procedure, they put you under anesthesia, and insert the stent in the liver through a tube in her throat.

Is she...
Forum: her2group 09-29-2008, 03:05 PM
Replies: 23
Views: 2,778
Posted By Esther
Hey Brenda! We should make plans to meet early...

Hey Brenda! We should make plans to meet early in the conference...I love appletinis!

StephN will you be making it out this year?

I wasn't able to go last year because we took my son and...
Forum: her2group 09-28-2008, 12:46 PM
Replies: 33
Views: 2,358
Posted By Esther
Yay! Enjoy your good news and celebrate with...

Yay! Enjoy your good news and celebrate with some good chocolate!!
Forum: her2group 09-28-2008, 08:48 AM
Replies: 6
Views: 1,383
Posted By Esther
No the Iscador is a separate item from the iron...

No the Iscador is a separate item from the iron supplementation.

I do take a generic iron supplement, but I get that at the regular pharmacy.

Iscador is ordered from Weleda, and it seems to...
Forum: her2group 09-28-2008, 08:39 AM
Replies: 6
Views: 1,383
Posted By Esther
At the moment I am taking a generic iron...

At the moment I am taking a generic iron supplement, Iscador--which are injections made from Mistletoe and are shipped from Germany by Weleda. And a potassium supplement.

All 3 were...
Forum: her2group 09-28-2008, 08:23 AM
Replies: 6
Views: 1,383
Posted By Esther
No they did not use my port for the MUGA, they...

No they did not use my port for the MUGA, they used a vein.

I have hard veins to access though and have had a small port in the inner part of my right arm for almost 5 years now. Lately Stanford...
Forum: her2group 09-27-2008, 10:52 PM
Replies: 6
Views: 1,383
Posted By Esther
MUGA scan and Herceptin effects

I just had a Muga scan and my heart ejection fraction? (I think that's the right term) is at 75% after almost 5 years of herceptin.

I wasn't sure what to expect, since I know some have had to...
Forum: her2group 09-27-2008, 10:45 PM
Replies: 50
Views: 6,221
Posted By Esther
Very few Cyberknife facilities are certified to...

Very few Cyberknife facilities are certified to treat liver lesions. It requires specialized software, equipment and training. So while they may offer Cyberknife for other body locations, they aren't...
Forum: her2group 09-27-2008, 10:42 PM
Replies: 28
Views: 2,882
Posted By Esther
Thanks guys! The shoes are cute, they have...

Thanks guys! The shoes are cute, they have rhinestones on them and Chris gave me grief for wearing such "girly" shoes on the adventure.

I have to say that I am now stronger than I pretty much...
Forum: her2group 09-26-2008, 08:11 PM
Replies: 28
Views: 2,882
Posted By Esther
Stage 4 and still living life!!!

I thought you might like to see a couple of pictures from our extreme jungle adventure in Puerto Vallarta a couple of weeks ago. Remember this is me 5 years into stage 4 B.C. with mets to bones,...
Forum: her2group 09-26-2008, 07:38 PM
Replies: 13
Views: 2,072
Posted By Esther
I have been on Tykerb/Herceptin/Zometa pretty...

I have been on Tykerb/Herceptin/Zometa pretty much since tykerb was approved in early 2007.

It has been a tolerable and easy treatment for me. And I'm usually the side effects queen!
Forum: her2group 09-26-2008, 01:51 PM
Replies: 50
Views: 6,221
Posted By Esther
When the liver lesion is so close to a major...

When the liver lesion is so close to a major blood source, surgery is not an option because the risk of bleeding is too great.

It is a trickier situation with less options when it is close to a...
Forum: her2group 09-26-2008, 01:35 PM
Replies: 30
Views: 2,638
Posted By Esther
Woohoo! That's great news. That Tykerb,...

Woohoo! That's great news. That Tykerb, Herceptin, Xeloda combo seems to work really well for some.

Ski season is coming up soon...I have a season pass to Mammoth in CA, and Big Bear is local...
Forum: her2group 09-26-2008, 01:31 PM
Replies: 50
Views: 6,221
Posted By Esther
Eric: I had a lesion that was stubborn and...

Eric:

I had a lesion that was stubborn and resisted to chemo also, it was 4 cm. It was also by the hepatic artery so the cooling would make RFA innefective.

I ended up going to Stanford and...
Forum: her2group 09-26-2008, 01:24 PM
Replies: 23
Views: 2,778
Posted By Esther
Joe, I'd like to come to the conference this...

Joe, I'd like to come to the conference this year, so I'd appreciate if you reserved a conference pass for me.
Forum: her2group 09-26-2008, 12:42 PM
Replies: 61
Views: 5,357
Posted By Esther
so great to hear your news Christine!! When I...

so great to hear your news Christine!! When I was diagnosed with Brain mets in Jan 06, your story gave me so much hope.

It kept me focused that on the fact that there were treatments available,...
Forum: Herceptin / Tykerb 09-26-2008, 12:33 PM
Replies: 20
Views: 3,603
Posted By Esther
Oops! that message was from me, I guess I forgot...

Oops! that message was from me, I guess I forgot to register before posting the reply.
Forum: her2group 09-13-2008, 09:15 PM
Replies: 18
Views: 1,297
Posted By Esther
Brenda, just saw your post. Sorry you are facing...

Brenda, just saw your post. Sorry you are facing a new issue to deal with. I also had fractionated rads to my brain stem in April of 07. They said they do that when the location of the lesion is...
Forum: Herceptin / Tykerb 09-13-2008, 09:03 PM
Replies: 24
Views: 3,240
Posted By Esther
Gemma, glad you are doing well. I had surgery...

Gemma, glad you are doing well. I had surgery for a lesion in my cerebellum in March 2007, also did PT, but they did not come to me!!! Lucky you having in home PT.

I have recovered my balance...
Forum: Herceptin / Tykerb 09-13-2008, 08:50 PM
Replies: 20
Views: 3,603
Posted By Esther
update on tykerb/herceptin combo

Well it's been a busy summer, with our water-skiing and we just got back from a cruise. We had an awesome excursion in the jungles of Puerto Vallarta, where the Arnold Schwartzenneger movie was...
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