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Search: Posts Made By: CarolineC
Forum: her2group 03-13-2015, 01:56 PM
Replies: 22
Views: 4,331
Posted By CarolineC
Re: Stage IV. 3 years NED with Kadcyla/TDM1!

Michka I am so extremely elated for you! You give me hope! My onc is suggesting this as the next treatment and I am apprehensive because of the side effects. I am so underweight, though, that I can't...
Forum: Articles of Interest 03-13-2015, 01:46 PM
Replies: 0
Views: 19,495
Posted By CarolineC
Blood pressure medication and cancer patient


I have posted about blood pressure meds before and how they address the adrenaline receptors....
Forum: her2group 02-02-2015, 01:11 PM
Replies: 11
Views: 1,956
Posted By CarolineC
Re: already approved antibiotics to the rescue?? schoolgirls innocent question may ha

I have an onc appt as well and would really like to discuss this with her. I'm wondering if I have a low grade something (not cancer) going on and maybe an antibiotic would help.

Becky, I was...
Forum: Diet and Nutrition 01-12-2015, 09:59 AM
Replies: 1
Views: 4,356
Posted By CarolineC
Supplement information

I need some (or a lot) or help. Basically, I have lost so much weight in the last 7 months that now I am drastically underweight and a feeding tube is being considered. I spent New Yearís Eve in the...
Forum: Articles of Interest 10-31-2014, 10:30 AM
Replies: 2
Views: 24,417
Posted By CarolineC
METAvivor receives the largest grant in its history

Forum: Profiles In Courage 10-26-2014, 10:13 AM
Replies: 2
Views: 8,727
Posted By CarolineC
Applause for this young woman

Forum: her2group 08-06-2014, 03:01 PM
Replies: 13
Views: 2,170
Posted By CarolineC
Re: I Was Sent Home

Geez Karen,

What a day! I know exactly how you feel about it being a job, just ongoing. Keep hopeful, though. I always felt like the Neupogen shots were actually helping my immune system. I think...
Forum: her2group 08-06-2014, 02:52 PM
Replies: 12
Views: 1,766
Posted By CarolineC
Re: Doxil & The Dark Skin Splotches-HELP


Sorry, unfortunately she doesn't keep track of the numbers, but she feels good. She was rediagnosed last summer after 10 years of "cancer free". She then did chemo and recently did two...
Forum: her2group 08-06-2014, 08:23 AM
Replies: 21
Views: 3,069
Posted By CarolineC
Re: Gemzar & Herceptin


I'll be interested in the effect of the glutathione infusions you're having. Again, I personally know someone who is on Herceptin and Letrozole like me and was diagnosed with multiple liver...
Forum: her2group 08-06-2014, 08:10 AM
Replies: 12
Views: 1,766
Posted By CarolineC
Re: Doxil & The Dark Skin Splotches-HELP


I hope things are better for you today. I also believe in The Cure, although I think The Cure is within ourselves as much as the medicine to help us. I also take interest in People Data...
Forum: General Cancer News 08-06-2014, 07:53 AM
Replies: 1
Views: 490
Posted By CarolineC
Re: Kids are at risk of biological damage results from microwave radiation emitted by

Thank you for posting this.

About two years ago our local power company provided every home in my town with compact fluorescent light bulbs. I took mine back with the explanation that I was...
Forum: her2group 08-05-2014, 08:17 AM
Replies: 10
Views: 1,680
Posted By CarolineC
Re: Interstitial lung disease and CEA levels

I've been wondering the exact same thing-I have lung thingies and my CEA is now 37, although I've also been having a hard time with what I believe to have been shingles fallout and an idiot (don't...
Forum: her2group 07-04-2014, 09:02 AM
Replies: 27
Views: 3,967
Posted By CarolineC
Re: Prayers for Kristin Schwick

I read her blog the other day and was very concerned. I'm sending prayers and healing, soothing light for her pain.

Forum: her2group 06-05-2014, 03:57 PM
Replies: 30
Views: 4,394
Posted By CarolineC
Re: Help, cancer has spread from bones to my lungs


I just read you blog. I wish I could give you a huge hug. Do not let the news of one person get you down. The stuff on the Pet scan could be anything but cancer.

Please, please,...
Forum: her2group 06-02-2014, 08:07 PM
Replies: 30
Views: 4,394
Posted By CarolineC
Re: Help, cancer has spread from bones to my lungs

Do NOT lose faith. I was just thinking about you the night before last and read your blog of your trip to DisneyWorld. Letís take a deep breath and a step back and look at what has been...
Forum: her2group 05-05-2014, 03:05 PM
Replies: 14
Views: 1,133
Posted By CarolineC
Re: Help... I'm scared...

It's so frustrating that insurance companies are in charge of our lives.

I know about dealing with family things-seems like there's so much on our plates already and can't someone in our...
Forum: her2group 05-05-2014, 02:54 PM
Replies: 3
Views: 889
Posted By CarolineC

Can anyone give me their experience, good or bad, on this anti-estrogen therapy? It's been recommended as the next treatment, but with the way I metabolize, I'm leery of anything new at this point.
Forum: her2group 05-05-2014, 02:41 PM
Replies: 10
Views: 1,224
Posted By CarolineC
Re: Home/Still Not 100%


I'm so glad you're home and healing. What a scary time! I hope they find the right antibiotic for you.

It's understandable that you're weak-you have been through the wringer. Sounds...
Forum: her2group 04-24-2014, 09:29 AM
Replies: 24
Views: 2,054
Posted By CarolineC
Re: Afraid


I hope everything goes well for you today. I know exactly how you feel-having a CT scan today and have been having some issues-I'm so scared as well. I'm holding your hand.

Forum: her2group 04-13-2014, 12:59 PM
Replies: 2
Views: 845
Posted By CarolineC


I will post under an existing thread I started, but I want to share some news.

In my September CT scan I was surprised to find that the adrenal mass (didn't know I had one) had enlarged and...
Forum: her2group 04-13-2014, 12:20 PM
Replies: 56
Views: 4,840
Posted By CarolineC
Re: It's Not Working! Three Weeks Of Nothing But Side Effects!


If I were you I would get back on Herceptin ASAP with a reloading dose at least until something else is decided. You seem to do very well when you are on a weekly dose-can you have that...
Forum: her2group 04-07-2014, 09:00 AM
Replies: 9
Views: 1,804
Posted By CarolineC
Re: CD47 Promising News

Karen, thank you for your posts which always give me so much hope!
Forum: Diet and Nutrition 04-07-2014, 08:55 AM
Replies: 1
Views: 4,618
Posted By CarolineC
Re: Chemo Can Make Food Taste Like Metal. Here's Help

What really helped me the most was eating with plastic utensils and drinking bottled water because I couldn't taste the metal with those.
Forum: her2group 04-05-2014, 10:05 AM
Replies: 17
Views: 1,330
Posted By CarolineC
Re: A Season of Cancerversaries

I love you too, Amy. I look forward to your posts and insight. It is very hard to deal with ongoing treatment and of course it has a huge impact psychologically-it is such a mind game and...
Forum: her2group 03-27-2014, 01:20 PM
Replies: 4
Views: 924
Posted By CarolineC
Re: Next step

KK1, thanks for responding.

I asked about Tykerb and a woman on bco.org is on that with Herceptin for an adrenal met, but I can't have it because it isn't approved with Herceptin. The same goes...
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