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Search: Posts Made By: Mary Jeanne Phillips
Forum: Herceptin / Tykerb 09-16-2008, 07:41 PM
Replies: 5
Views: 2,391
Hi grandma2, does that mean you have 2 grands or...

Hi grandma2, does that mean you have 2 grands or you have been a grandma 2 times???
I have 4 grands, 2 are 15 and 16 and the little ones are 5 and 6. I have been lucky to have babies for 10...
Forum: Herceptin / Tykerb 09-10-2008, 07:54 PM
Replies: 7
Views: 2,945
HI GRANDMA2, Yes 5 is the standard dose but I can...

HI GRANDMA2, Yes 5 is the standard dose but I can barely tolerate 3, so I am my own Dr. I have gone from 2 to 3 and on the 6th and 7th day of 3, I can hardly get out of bed. I have never taken...
Forum: Herceptin / Tykerb 08-25-2008, 11:57 AM
Replies: 24
Views: 4,639
Dear StephN, thanks for the reply about the...

Dear StephN, thanks for the reply about the carmol20. I also read your story. It is very encouraging. I am now on Tykerb to interfere with the brain tumors hopefully and slow the growth in Liver,...
Forum: Keeping Your Mind Off of BC 08-25-2008, 07:20 AM
Replies: 419
Views: 41,551
My Joy today is that I am not nauseated and I can...

My Joy today is that I am not nauseated and I can fix my green vegetable drink and drink it and have a fatigue free day to start my move to another wonderful home. It will have windows that I can see...
Forum: Herceptin / Tykerb 08-23-2008, 09:07 PM
Replies: 7
Views: 2,945
Hi wannabe, thanks so much for the note. I am so...

Hi wannabe, thanks so much for the note. I am so glad someone else has the same thing. I never had a reaction to Herceptin. I am on my second year (Dec.) started it after my 1st brain tumor. Had a...
Forum: Herceptin / Tykerb 08-23-2008, 09:02 PM
Replies: 8
Views: 2,303
Hi justwannaBe Since you are off Tykerb what...

Hi justwannaBe
Since you are off Tykerb what are you taking? I appreciate the feed back. I had to back off of the 3 pills I was taking. I had the worst day of my life this week after 7 days of 3. I...
Forum: Keeping Your Mind Off of BC 08-23-2008, 09:31 AM
Replies: 419
Views: 41,551
What a wonderful way to see the rainbow at the...

What a wonderful way to see the rainbow at the end of the storm. Positiveness is the only answer. Our attitude has to be our priority.
My joy is that we were not swept away by the hurricane and...
Forum: Herceptin / Tykerb 08-23-2008, 05:41 AM
Replies: 8
Views: 2,303
Hi Goops, That answers my question too. My...

Hi Goops,
That answers my question too. My fatigue level has been noticeable and also the sleepiness. My Dr. started me on 2 and now 3 a day, but the 3 has been harder. I am counting on what...
Forum: Herceptin / Tykerb 08-18-2008, 06:03 PM
Replies: 7
Views: 2,945
Question Tykerb: Brain Confusion & Body Aches

Hey Everybody!

My first week on Tykerb (3 Tablets a day taken before bed on an empty stomach) went pretty well...no major side-effects, so far.

But, I am experiencing some real Confusion that...
Forum: Herceptin / Tykerb 08-15-2008, 07:07 PM
Replies: 5
Views: 2,391
any stage 3 taking monotherapy as preventive treatment

Hi , I am taking Tykerb by itself as could not tolerate xeloda. Mine is actually stage 4 mets to liver, lungs, bones and brain. All I have taken in the past is Femara for 6 months and now herceptin...
Forum: Herceptin / Tykerb 08-15-2008, 06:52 PM
Replies: 4
Views: 1,986
don't know where my responses go and I don't know...

don't know where my responses go and I don't know how to do a thread. I guess I will have to wait for my daughter to come for a visit this week to strighten me out. Thanks, MJ
Forum: Herceptin / Tykerb 08-15-2008, 06:49 PM
Replies: 4
Views: 1,986
Hi Sally, I was glad to read your note. I have...

Hi Sally, I was glad to read your note. I have only been on Tykerb for 4 days. I have been taking 1, then 2, and now 3. It was very hard for me to make the decision to even take it. I have a lot of...
Forum: Herceptin / Tykerb 08-04-2008, 07:07 AM
Replies: 18
Views: 2,528
gamma, Proton etc from Hitch

Did you receive my reply to your thread???MJ
Forum: her2group 08-03-2008, 08:16 PM
Replies: 21
Views: 2,711
Hi Hitch, this is Mary Jeanne. When I had to make...

Hi Hitch, this is Mary Jeanne. When I had to make the decision in 2005, I decided on a craniotomy to see if it was a met or primary. That was a tumor in the rear of the frontal lobe.
At that time...
Forum: Herceptin / Tykerb 08-02-2008, 07:33 AM
Replies: 18
Views: 2,528
What are the side effects for the blood work when on Tykerb? WBC and RBC?

I am still looking for a way to submit a thread. Guess I am just useless. Thanks. MJ
Forum: Herceptin / Tykerb 08-02-2008, 07:29 AM
Replies: 18
Views: 2,528
Hi great supporters, I still cannot find...

Hi great supporters,
I still cannot find where I put in a new thread. My MRI was very good, no new tumors, no increases and some decreasing. Now I need to know about if it seems effective...
Forum: Herceptin / Tykerb 07-31-2008, 06:04 PM
Replies: 689
Views: 292,258
I have to tell everyone, My MRI of the brain...

I have to tell everyone, My MRI of the brain after my 5th met to the brain was negative yesterday,. That means all the 5 tumors from the craniotomy and the last 2 GAMMA;s, show no increase and no new...
Forum: Herceptin / Tykerb 07-29-2008, 01:11 PM
Replies: 18
Views: 2,528
Thanks for the info. I just wondered how much...

Thanks for the info. I just wondered how much sugar/ desserts? breads? do you eat? That has been the biggest "cheat" for me on the Macro diet. I eat no eggs, or dairy or chicken. some fish and have...
Forum: Herceptin / Tykerb 07-29-2008, 09:41 AM
Replies: 18
Views: 2,528
This is to Turbo. I may start Tykerb in a couple...

This is to Turbo. I may start Tykerb in a couple weeks and would like to know about the foods you are eating with it? I see you attribute the diarrhea to your diet, so am very interested to know...
Forum: Keeping Your Mind Off of BC 07-27-2008, 07:42 PM
Replies: 50
Views: 5,343
Hi, this is Mary Jeanne and I am so glad to put a...

Hi, this is Mary Jeanne and I am so glad to put a face to Andi's name and also Hutchi. I really loved reading all these stories. I wish I could be like andi and never have a speck of sugar again but...
Forum: Herceptin / Tykerb 07-27-2008, 03:34 PM
Replies: 689
Views: 292,258
Is Tykerb as terrible as it is reported by some??? Please reply from anyone on Tykerb

I don not know how to start a thread. Is there anyone who could help me?? I reply to others but wanted to post one. I wrote it out in the thread section, but didn't know how to send it. THANKS Mary...
Forum: Herceptin / Tykerb 07-27-2008, 03:20 PM
Replies: 689
Views: 292,258
Hi Lani, Great survey. Diagnosed in June 2001,Her...

Hi Lani, Great survey. Diagnosed in June 2001,Her 2 positive pro.positive, no lymph node involvement but eschemic evidence.Had radiation regime and then 5FU and Cytoxin I think. Mets to liver, lungs,...
Forum: Herceptin / Tykerb 07-27-2008, 02:48 PM
Replies: 7
Views: 1,535
Hi henny, I am in the same situation. I have been...

Hi henny, I am in the same situation. I have been on Herceptin over 2 years now and have had 5 brain tumors plus mets to other organs. I have been on Zometa the same length of time for the bone mets....
Forum: Herceptin / Tykerb 07-18-2008, 10:36 AM
Replies: 24
Views: 4,639
Humecta pd is the best prescription for all the...

Humecta pd is the best prescription for all the symptoms of nail beds and finger splits. It is 41% urea. May have to have a prescription but after using everything a friend with the side effect from...
Showing results 1 to 24 of 24

 
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