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Search: Posts Made By: mekasan
Forum: her2group 12-04-2007, 06:49 PM
Replies: 18
Views: 4,201
Posted By mekasan
follow up to my initial concern

After my appointment with the ENT, I was told that the thumping in my ear was a muscle spasm and I could have the muscle severed if it did not stop. I opted not to have anyone cut anything inside my...
Forum: Events and Social Calendar 02-20-2007, 10:02 AM
Replies: 0
Views: 3,203
Posted By mekasan
NBCC Patient Advocacy Training Conference Spring

National Breast Cancer Coalition Patient Advocacy Training in DC April 28 -May 1?? (i think)-- is anyone going?
- Shannon
Forum: her2group 02-20-2007, 09:25 AM
Replies: 7
Views: 1,682
Posted By mekasan
Herceptin is given based upon HER2 status, which...

Herceptin is given based upon HER2 status, which is a characteristic of the type of cancer. Lymphnode testing to done to determine how far the cancer has potentially spread. I did not have...
Forum: her2group 02-19-2007, 06:17 AM
Replies: 5
Views: 1,445
Posted By mekasan
Thanks

Thanks Sheila,
I was absent from the boards for a few months and I did miss your fight with the hosp. Wow, you really helped so many people in your community! Congratulations on making a...
Forum: her2group 02-18-2007, 10:55 PM
Replies: 19
Views: 1,868
Posted By mekasan
few more thoughts - sorry its long

Lymph system

It is my understanding that the sentinel node is the name of the first node in the chain of lymph nodes the fall in the lymphatic system at the point where your breast meets your arm...
Forum: her2group 02-18-2007, 07:44 PM
Replies: 19
Views: 1,868
Posted By mekasan
proph mast

I had a proph mast on my right side after chemo for DCIS and IDC in the right breast which was removed prior to chemo. I had decided during chemo to have it removed.

Of course, everyone is...
Forum: her2group 02-18-2007, 07:33 PM
Replies: 5
Views: 1,445
Posted By mekasan
Cynthia

Oh, by the way.. I also met Cynthia in DC the same weekend I met GIna. How funny you mentioned them both.

I am also taking an insurance law and policy course so that I can learn where to begin...
Forum: her2group 02-18-2007, 07:28 PM
Replies: 5
Views: 1,445
Posted By mekasan
Gina

Hi Lani,
That's interesting that you mention Gina. I actually met her in DC last year when I went to the NBCC patient advocacy conference. She was in the area and Michele (from here) called up. ...
Forum: her2group 02-18-2007, 04:06 PM
Replies: 5
Views: 1,445
Posted By mekasan
Legal Issues? For a Possible Project forIndividuals and Families Impacted by Cancer

Hello everyone,

I need help from the group in order to develop a cancer specific legal project. I am currently a law student, about to graduate, that works at Legal Services Inc, where we...
Forum: her2group 02-18-2007, 03:37 PM
Replies: 5
Views: 1,156
Posted By mekasan
not a silly question at all...

I think your onc would want to know about any health problem you are experiencing while in treatment. It will help you recieve consistent care without risking contraindicating treatments.

I...
Forum: her2group 02-18-2007, 03:16 PM
Replies: 15
Views: 1,767
Posted By mekasan
Thanks

Thank you all for quickly responding to my post. You provided very helpful and supportive input. I am always impressed by just how much the group here seems to care about each other.

I am not...
Forum: her2group 02-14-2007, 05:16 PM
Replies: 15
Views: 1,767
Posted By mekasan
remembering weird stuff after herceptin!

Hi Everyone,
I am having a very bizarre experience. I just wanted to share (as well as determine whehter I am completely abnormal).

I returned to law school and work full time at the end of...
Forum: her2group 11-02-2006, 10:11 AM
Replies: 18
Views: 4,201
Posted By mekasan
I did look into the possibility of this being a side effect

I had discussed with my doctor and research "ear thumping" as a possible side effect of Herceptin. My doctor ruled it out. With concern stemming from the heart toxicity related to Hercpetin and...
Forum: her2group 11-02-2006, 07:57 AM
Replies: 18
Views: 4,201
Posted By mekasan
"Thumping" in Ear? Can it be serious? Does A/C cross into the brain?

Can this a sign of something serious, like a lesion or tumor?

Although this is ear related, it is not the same as tinnitus (ringing) so I wanted to start a new thread.

Has anyone else sensed...
Forum: her2group 09-03-2006, 09:53 PM
Replies: 29
Views: 3,127
Posted By mekasan
call me if you want to talk....

I'm sorry to hear that things are so hard. If you want to talk about it, you know you can call me anytime.
Shannon
Forum: her2group 07-29-2006, 12:57 PM
Replies: 17
Views: 2,427
Posted By mekasan
I recommend trying Effexor

Because of the mixed reviews from those on this site, it is clearly personal if Effexor will work for you and/or produced negative side effects.

My experience with effexor was nothing but...
Forum: her2group 07-29-2006, 12:40 PM
Replies: 5
Views: 1,554
Posted By mekasan
Please check out this website for useful information

http://www.canceradvocacy.org/resources/essential/employment.aspx

The page above provides a good overview of our rights as cancer survivors in reference to employment. You can request a copy of...
Forum: her2group 07-07-2006, 07:45 PM
Replies: 5
Views: 1,214
Posted By mekasan
boston sounds great

Hi Michele,

How have you been? I hope you have a great time in Boston. The last time I went I had a boston cream pie from the Omni Parker House. It was really great. Actually, Sid and I each...
Forum: her2group 06-21-2006, 10:42 PM
Replies: 15
Views: 1,778
Posted By mekasan
diagnostic vs. regular mammo

I believe the difference between the diagnositic mammo vs the screening mammo is not the process, but rather the purpose. It is an insurance billing coding thing. If the doctor feels that there...
Forum: her2group 06-21-2006, 10:33 PM
Replies: 7
Views: 2,499
Posted By mekasan
the wait varies by state

There are several phases. The initial applicaton, the reconsideration of a denial, the appeal, appeals council, etc... All of this could take upto 2 years or so depending on the back log in each...
Forum: her2group 06-19-2006, 07:58 PM
Replies: 15
Views: 1,778
Posted By mekasan
Mri

i second the MRI vote over the Mammo.
Forum: her2group 06-19-2006, 07:54 PM
Replies: 7
Views: 2,499
Posted By mekasan
It MAY be possible depending.

Hello Lopsided,

As I write this, I realized that I failed to check that you are in fact from the US. Assuming you are, there are many programs that permit some income. For instance I receive...
Forum: her2group 06-19-2006, 10:13 AM
Replies: 11
Views: 2,415
Posted By mekasan
I understand . . .

Dear DeeUK

What I hear from your post is that you are concerned your doctor will make you feel bad for wanting a mastectomy now, after having gone through radiation. I understand that you...
Forum: her2group 06-18-2006, 01:21 AM
Replies: 11
Views: 2,415
Posted By mekasan
very similar stats...

Hi
I was also dx at 29, stage 1 grade 3, er-pr-/ her2+++ in left breast. I had 4 cm of ductual dispersed throughout the mammory with two small IDC tumors hiding deep inside. I say hiding b/c they...
Forum: her2group 06-18-2006, 12:08 AM
Replies: 37
Views: 3,849
Posted By mekasan
maybe...

Maybe we need a poll about where we are from, as well, to check for enviromental patterns. I'll set one up, if someone could direct me to where I could find the poll creating feature on the site.
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