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Search: Posts Made By: snolan
Forum: her2group 04-17-2017, 09:18 AM
Replies: 5
Views: 4,914
Posted By snolan
Re: Any of you have Axillary Web Syndrome?

I had cords I was working out one day doing ring rows and I guess hanging from my arms they popped. Aggressive stretching with our physical therapist should help decrease the effects. I still have to...
Forum: her2group 01-04-2017, 12:21 PM
Replies: 12
Views: 3,408
Posted By snolan
Re: What Makes HER2 Positive Cancers Unique After Treatment?

My Dr told me that if it came back it would come back somewhere else, ie. bone, brain, lung. I was stage I received the TCH treatment and I'm 6 yrs out.
Forum: her2group 12-14-2016, 09:16 AM
Replies: 22
Views: 82,910
Posted By snolan
Re: Other than Cancer: What's going on in your life?

Busy with my kids activities, oldest daughter plays varsity basketball and youngest is in club soccer which just won a regional qualifying tournament and will be playing against teams from Arkansas,...
Forum: Diet and Nutrition 11-28-2016, 01:10 PM
Replies: 25
Views: 5,212
Posted By snolan
Re: Alcohol ban? Really?

Though I didn't drink during chemo due to tasting bad. I am 6 years out and I still drink 1-2 times a week. One drink only as I am a light weight.
Forum: her2group 10-19-2016, 08:32 AM
Replies: 36
Views: 14,001
Posted By snolan
Forum: her2group 10-05-2016, 03:45 PM
Replies: 13
Views: 5,060
Posted By snolan
Re: DCIS & her2+?

I was stage 1 and still did herceptin. Early on when herceptin was just strating it wasn't used for early stages but is now. You may want to recommend a second opinion. It is the main treatment...
Forum: her2group 10-05-2016, 07:19 AM
Replies: 13
Views: 5,060
Posted By snolan
Re: DCIS & her2+?

I had both. HER2 was treated with chemo TCH and DCIS radiation due to mine being at the skin level down to my chest wall.
Forum: her2group 09-26-2016, 08:12 AM
Replies: 4
Views: 3,735
Posted By snolan
Re: Paps after chemo & herceptin: When?

My OBGYN kept my normal schedule of once a year.
Forum: her2group 08-04-2016, 02:30 PM
Replies: 2
Views: 2,843
Posted By snolan
Re: Medical Insurance question

You can have a private insurance as a secondary insurance only I think. It has to be set up as that. They would cover the 20% that Medicare doesn't.
Forum: her2group 06-21-2016, 07:15 AM
Replies: 7
Views: 3,032
Posted By snolan
Re: night sweats

I had the sweats during chemo, they have since decreased I usually get them at night.
Forum: her2group 05-17-2016, 07:18 AM
Replies: 4
Views: 2,733
Posted By snolan
Re: tamoxifen side effects?

I just finished my 5 years on tamoxifen, I didn't have any side effects. I know some have complained of joint pain.
Forum: her2group 05-04-2016, 08:43 AM
Replies: 8
Views: 4,954
Posted By snolan
Re: No Radiation and no chemo ???

I was Stage 1 Er/Pr +. I did chemo and radiation. My Dr did mention though that in the past it was common not to do either even herceptin for stage I.
Forum: her2group 04-18-2016, 09:14 AM
Replies: 21
Views: 6,397
Posted By snolan
Re: Law suit due to Taxotere permanent hair loss/balding

All my hair grew back, was about 6 months after treatment, had a hair cut about 1 year after.
Forum: her2group 04-06-2016, 07:35 AM
Replies: 5
Views: 2,786
Posted By snolan
Re: Starting Tamoxifen 5 months after starting Herceptin. I thought I took this after

I started Tamoxifen after I finished chemo, I did 5 yrs and just came off of it. No real side effects for me. I chose to do only the 5 years as I was only Stage I, my Dr felt confident that I only...
Forum: her2group 03-01-2016, 08:47 AM
Replies: 19
Views: 3,924
Posted By snolan
Re: 10 years today

Congratulations, great milestone!
Forum: Diet and Nutrition 03-01-2016, 08:46 AM
Replies: 2
Views: 3,895
Posted By snolan
Re: going off tamoxifen

I just stopped my tamoxifen last week after 5 yrs. I was getting water retention too. And have had a steady wt gain over the years. I haven't seen any changes yet but realize it will take a while to...
Forum: her2group 02-15-2016, 10:48 AM
Replies: 5
Views: 3,249
Posted By snolan
Re: going off tamoxifen

I am coming up to my 5 yr mark this May, my Dr has been on the ropes as if I need to continue since I was Stage 1. She wants me to make the decision. I want to come off of it, I feel my weight gain...
Forum: her2group 02-03-2016, 12:15 PM
Replies: 8
Views: 3,264
Posted By snolan
Re: Mastectomy results

I developed a seroma right after they pulled the drains, tried to fight it with months of antibiotics with no avail. Has to remove the expanders. My reconstruction went better, had some swelling...
Forum: her2group 01-15-2016, 09:58 AM
Replies: 6
Views: 3,379
Posted By snolan
Re: Perjeta and Herceptin hair loss

Runny nose yes, I never had leg cramps, my hair grew back while on herceptin.
Forum: her2group 11-20-2015, 09:11 AM
Replies: 4
Views: 2,953
Posted By snolan
Retesting Brca 1,2

My Dr is retesting my Brac test since the one I had 5 yrs ago is outdated. I was adopted at birth so I do not have any information on my history other than a maternal grandmother who had uterin...
Forum: her2group 11-13-2015, 10:56 AM
Replies: 6
Views: 3,123
Posted By snolan
Re: Simple question re: Claritin for Neulesta

I hadn't heard of this, hope it works. I had the Neulesta shot and the first couple kicked my ass, I had bad bone pain in both my legs. But as I went through chemo it got better and didn't bother me.
Forum: her2group 11-12-2015, 01:06 PM
Replies: 20
Views: 5,826
Posted By snolan
Re: 4 years NED

Congrats, I hope you get tons more
Forum: her2group 11-10-2015, 08:12 AM
Replies: 15
Views: 3,719
Posted By snolan
Re: Did anyone NOT lose hair OR nails on TCH protocol? All replies appreciated!

I lost my hair two weeks into TCH, lost my finger nails but not my toe nails. I chose to shave my head when the hair started falling out it was easier to manage and less messy. I have heard people...
Forum: her2group 11-09-2015, 08:27 AM
Replies: 11
Views: 5,446
Posted By snolan
Re: Anyone taking/taken Taxotere and Carboplatin with Herceptin???

I did the TCH protocol, overall I had minimal side effects, my hair fell out at 2 weeks, my nails on my hands fell off, but not my toes. Some nausea, a lot of fatigue usually the first week and then...
Forum: Keeping Your Mind Off of BC 09-30-2015, 08:27 AM
Replies: 3
Views: 3,607
Posted By snolan
Re: ode to my uterus

Love it- had mine taken out 7 yrs ago, do not miss it one bit.
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