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Search: Posts Made By: PatE
Forum: her2group 02-05-2014, 09:04 AM
Replies: 9
Views: 3,061
Posted By PatE
Re: Help-Advice needed to get Ins To pay for Projeta

Thanks everyone for all the great advice. Aetna is paying for the Projeta! Had my 1st treatment, praying this is my magic bullet!
You guys are wonderful, don't know what I would do without this...
Forum: her2group 01-29-2014, 05:55 PM
Replies: 9
Views: 3,061
Posted By PatE
Re: Help-Advice needed to get Ins To pay for Projeta

KDR,
Thank you for the quick response and kind words. I agree its time for a new Onc! I have called my company benefits Manager, my insurance advocate at the ins company - got all voice mails so...
Forum: her2group 01-29-2014, 03:57 PM
Replies: 9
Views: 3,061
Posted By PatE
Help-Advice needed to get Ins To pay for Projeta

Hi everyone
I'm having a really bad time, saw Onc yesterday to review PET. She walked in and said its horrible much much than she expected. I am lighting up in many places including 2 spots on...
Forum: her2group 01-04-2014, 10:10 AM
Replies: 3
Views: 2,021
Posted By PatE
Help Admitted to hospital - Kidney problem on Kadclya

Hello all,
Seems like every time I turn around I've developed another problem, this time my kidney function has shot up to 6.38 and cannot pass urine thru my bladder.
I just finished my 4th...
Forum: her2group 12-09-2013, 08:41 AM
Replies: 10
Views: 3,005
Posted By PatE
Re: Kadcyla - 2nd treatment need advice please

Thanks Phil and grit girl,
I had my third dose last Wednesday, had the drip slowed to 90 minutes and the se have been better this time. Fatigue, some stomach upset and achy. Overall treatment 3 was...
Forum: her2group 11-24-2013, 08:32 AM
Replies: 10
Views: 3,005
Posted By PatE
Re: Kadcyla - 2nd treatment need advice please

Thanks for the suggestions, feeling better today but still have the back aches. Having a bone scan on Tuesday to rule out bone mets. Prayers are much appreciated.
Thanks ladies, you are awesome!...
Forum: her2group 11-19-2013, 01:09 PM
Replies: 10
Views: 3,005
Posted By PatE
Kadcyla - 2nd treatment need advice please

Hello
My last pet scan showed progression in my lymph nodes, 5 active areas so my Onc put me on Kadcyla. I had my 2nd treatment last Wednesday, Wow guess I had my head in the clouds but I did not...
Forum: her2group 11-09-2013, 02:07 PM
Replies: 71
Views: 25,207
Posted By PatE
Re: Auntie Em! Auntie Em! Danger Will Robinson...

Denise,
Please know I am thinking and praying for you! You never cease to amaze me how you can keep your wit with all thats going on. Please know there is much love and good wishes for speedy...
Forum: her2group 09-16-2013, 11:41 AM
Replies: 7
Views: 1,932
Posted By PatE
Re: Oh no, my heart!

My Cardiologist put me on Coreg and Lisenipril to help support the heart muscle when I had a drop three years ago, I believe there are others on the board who have also been given meds for the heart....
Forum: her2group 09-11-2013, 01:59 PM
Replies: 58
Views: 6,642
Posted By PatE
Re: Brain MRI Today!! ??

Yay Yay, hope you have given up your normal walk for a NED dance for good. Such awesome news!!
Love and heres to many,many more blessings your way
Pat
Forum: her2group 09-10-2013, 10:53 AM
Replies: 34
Views: 3,607
Posted By PatE
Re: Pam P is an Angel

I am so sorry to hear Pam's passing, she was a fighter. Rest in Peace sweet Pam

PatE
Forum: her2group 09-09-2013, 06:04 AM
Replies: 58
Views: 6,642
Posted By PatE
Re: Brain MRI Today!! ??

Sending every ounce of healing energy and love your way today!

Many blessings to you
Pat
Forum: her2group 09-03-2013, 03:41 PM
Replies: 20
Views: 2,209
Posted By PatE
Re: Andi BB is the Birthday Girl!!

Happy Happy Birthday!!!
Forum: her2group 08-28-2013, 03:29 PM
Replies: 25
Views: 2,476
Posted By PatE
Re: B 9 ... !!! Biopsy is benign...!!!

WOO HOO Awesome news, doing a happy dance for you! You are one blessed lady! What a relief!
Love
Pat
Forum: her2group 08-26-2013, 10:16 AM
Replies: 34
Views: 2,778
Posted By PatE
Re: Who's her2 and lobular...??

Andi,
Not lobular, just wanted to say"hi" and thinking of you. Sending good biopsy results your way. You inspire me!

Pat
Forum: her2group 08-22-2013, 05:45 PM
Replies: 1
Views: 1,894
Posted By PatE
Re: 10 minutes from Cyberknife to IHOP!

I've been blessed to have had two Cyberknife treatments, one to disseminate a met on the liver and one to the L2 spine. Liver treatment was is 2008 and spine in 2010 Cyberknife was fast and...
Forum: her2group 05-15-2013, 04:05 PM
Replies: 43
Views: 8,435
Posted By PatE
Re: Cancer secret to success?! Finding your match!

Thank you Andi, I am going to order his book today. I also want to thank you for your supplement thread, I started adding some of the supplements you suggested and have felt a big difference in my...
Forum: her2group 05-01-2013, 04:55 PM
Replies: 12
Views: 3,109
Posted By PatE
Re: Can't do Gemzar...sigh...the only one that ever works

Hi,
I had a liver met successfully treated in 2008 with Cyberknife, three treatments, didn't feel a thing. It may have increased my fatigue but I had just finished chemo at the time so hard to tell....
Forum: her2group 04-06-2013, 09:46 AM
Replies: 165
Views: 22,005
Posted By PatE
Re: update I hate to give (with a little more positive spin)

Chrisy,
Just wanted to say that I am thinking of you, praying for the new med to be the answer. You inspire me to fight this disease with your sage advice and whitty commentary. You are a survivor!...
Forum: her2group 12-07-2012, 06:46 AM
Replies: 2
Views: 993
Posted By PatE
Help!! Need to shrink lymph node fast

Hello
I am Her2 positive BC since 2007, I have now been diagnosed with another primary colon cancer. Been on he herceptin since 2008 and more recently tykerb and Herceptin.
I have been having...
Forum: Herceptin / Tykerb 08-06-2012, 05:34 PM
Replies: 13
Views: 6,589
Posted By PatE
Re: Tykerb and epigastric pain/right upper quadrant

HI,
I am on Herceptin and Tykerb (5 pills) and experiencing some right side/upper stomach pain. I had the HIDA scan done but said my gallbladder is fine. I am also experiencing upper left arm muscle...
Forum: Herceptin / Tykerb 06-07-2012, 05:55 PM
Replies: 8
Views: 4,088
Posted By PatE
Re: Tykerb + different chemo than Xeloda?

Hi Krissi,
I know you asked about chemo but I've had great success with Cyberknife for a liver met. I was treated 8/08 and scans show my liver is clear of cancer. I know Brown Cancer Center is...
Forum: her2group 11-28-2011, 06:57 PM
Replies: 21
Views: 3,690
Posted By PatE
Re: Possible Progression/New Treatment For Liver Mets

Hi,

I had a liver met zapped with Cyberknife in August 08, and then a spine met (L2) zapped in April of 2010. Both areas are fine now, my pet scans show normal as far as liver goes and the spine...
Forum: her2group 06-28-2011, 05:32 PM
Replies: 19
Views: 5,350
Posted By PatE
Re: Cyberknife and sternum

Hi,
IRMT is not the same as Cyberknife ... do not let anyone try to convince you otherwise. Cyberknife is capable of a much more precise beam so and also tracks the patient's breathing. Got the...
Forum: her2group 06-26-2011, 07:54 PM
Replies: 25
Views: 4,519
Posted By PatE
Re: Devasted. Bad news.

Hi,
I had my liver and L2 spine treated with Cyberknife. Liver treated 3 years ago in August, liver is clear. My spine was treated May of last year, all was fine but my last pet scan (May) was...
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