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Search: Posts Made By: Muldoonmom
Forum: Herceptin / Tykerb 08-29-2007, 10:01 AM
Replies: 24
Views: 5,058
Posted By Muldoonmom
Magic Mouthwash Formula

Hi Jakki,

Sorry I'm so late in getting the magic mouthwash formula to you.... I was away on vacation and am just getting organized again.

Here it is:

Nystatin Oral Suspension: 60 ml...
Forum: Herceptin / Tykerb 07-08-2007, 05:46 AM
Replies: 9
Views: 1,632
Posted By Muldoonmom
Dear Esther, Your great, wonderful, super news...

Dear Esther,
Your great, wonderful, super news is so encouraging to me!!!! Enjoy every moment. And celebrate!
Forum: Herceptin / Tykerb 07-08-2007, 05:20 AM
Replies: 24
Views: 5,058
Posted By Muldoonmom
Hi Jakki, I do get mouth sores but mainly my...

Hi Jakki,
I do get mouth sores but mainly my tongue gets very patchy and sore. I use something we call Magic Mouthwash - it is a prescription and I have no idea what is in it!! But it really...
Forum: Herceptin / Tykerb 07-05-2007, 05:31 PM
Replies: 28
Views: 5,590
Posted By Muldoonmom
Hi Susan, I've been on Herceptin for almost 8...

Hi Susan,
I've been on Herceptin for almost 8 years (weekly) and yes, I do have depression. I started taking a very low dose (25 mg daily) of Zoloft about 6 years ago (after my 2nd lung mets) and...
Forum: Herceptin / Tykerb 07-05-2007, 03:11 PM
Replies: 7
Views: 2,223
Posted By Muldoonmom
Thanks, Ladies, for your dosage advice. I did...

Thanks, Ladies, for your dosage advice. I did reduce from 5 to 4 pills in May. When I see the doc next week, I'll ask him about going to 3 pills a day. Maybe that will work.
It feels so good to...
Forum: Herceptin / Tykerb 07-04-2007, 08:02 PM
Replies: 7
Views: 2,223
Posted By Muldoonmom
Unhappy Getting Discouraged

Hi All,
I've been up and down with side effects since I started Tykerb in May. The diarrhea seemed better for a while and then it hit me like a ton of bricks last Sunday night. It was so bad that I...
Forum: Herceptin / Tykerb 06-07-2007, 09:33 PM
Replies: 5
Views: 2,007
Posted By Muldoonmom
Hi Chris, It just feels so good to feel good...

Hi Chris,
It just feels so good to feel good again! I was getting discouraged because if I couldn't handle the tykerb/herceptin combo, I'm not sure what options I still had. I've been on so many...
Forum: Herceptin / Tykerb 06-07-2007, 07:36 PM
Replies: 5
Views: 2,007
Posted By Muldoonmom
Smile Turning the corner!

I'm so happy to report that the side effects of Tykerb are finally starting to abate. The first time I started Tykerb in mid-April, my onc gave me my 5th Taxotere tx around day 5 and I crashed and...
Forum: Herceptin / Tykerb 05-17-2007, 01:07 PM
Replies: 11
Views: 2,319
Posted By Muldoonmom
Maybe you should just remain on Herceptin since...

Maybe you should just remain on Herceptin since it seems to be working for you. Eventually Tykerb will be more easily available...
Forum: Herceptin / Tykerb 05-17-2007, 01:05 PM
Replies: 15
Views: 2,384
Posted By Muldoonmom
Carolyn, Thanks for your response! I'll let...

Carolyn,
Thanks for your response! I'll let you know how it goes.
Have you developed any of the facial rash? I also had that and I hope it doesn't return.
Forum: Herceptin / Tykerb 05-17-2007, 12:25 PM
Replies: 11
Views: 2,319
Posted By Muldoonmom
I also have CIGNA and they initially denied my...

I also have CIGNA and they initially denied my onc's treatment plan - tykerb w/out xeloda. Since I had already been on xeloda for nearly a year in 2003 and then had disease progression, he responded...
Forum: Herceptin / Tykerb 05-17-2007, 12:16 PM
Replies: 15
Views: 2,384
Posted By Muldoonmom
Hi Carolyns, I am restarting tykerb tomorrow...

Hi Carolyns,
I am restarting tykerb tomorrow and restarting herceptin (after 8 1/2 years on it with various chemos) next Wednesday. I'm glad to hear that your side effects aren't too bad so far. I...
Forum: Herceptin / Tykerb 05-03-2007, 09:10 PM
Replies: 8
Views: 2,743
Posted By Muldoonmom
Sherry, I wasn't really sure if the severe (and...

Sherry,
I wasn't really sure if the severe (and I mean SEVERE) diarrhea I experienced was due to the tykerb. But based on your experience and others, I'm now sure that was it. DARN!!
Now I've...
Forum: Herceptin / Tykerb 05-03-2007, 09:01 PM
Replies: 14
Views: 3,995
Posted By Muldoonmom
Hi, I did have another taxotere tx with the...

Hi,
I did have another taxotere tx with the Tykerb and the side effects were awful. That was 9 days ago. I stopped the tykerb for the time being while I recover from the side effects. So I'll...
Forum: Herceptin / Tykerb 04-24-2007, 08:12 PM
Replies: 2
Views: 2,314
Posted By Muldoonmom
Tykerb

Hi!
I just started tykerb last week. I've been on herceptin for 7 1/2 years and recently had pleural effusions in the right lung, adjacent lymph node mets, and probably a few small mets in the base...
Forum: Herceptin / Tykerb 04-23-2007, 05:24 PM
Replies: 14
Views: 3,995
Posted By Muldoonmom
Tykerb Side Effects

Hi All,
I started Tykerb last Tuesday and I started experiencing pretty severe diarrhea the next day. With Imodium D, it abated for a few days and then hit me like a ton of bricks on Sunday morning...
Forum: Herceptin / Tykerb 04-23-2007, 05:12 PM
Replies: 38
Views: 5,810
Posted By Muldoonmom
Hi Esther, It took 3 weeks to finally get my...

Hi Esther,

It took 3 weeks to finally get my tykerb prescription filled but the problem was CIGNA - my onc prescribed it without Xeloda (I had already had 10 months of Xeloda about 6 years ago and...
Forum: her2group 04-14-2007, 05:26 AM
Replies: 7
Views: 1,925
Posted By Muldoonmom
Hi, I have had both Xeloda (for 10 months) and...

Hi,
I have had both Xeloda (for 10 months) and Navelbine (for nearly a year.) I found both drugs to be relatively easy - certainly much easier than Taxol or Taxotere. I did develop foot problems...
Forum: her2group 02-17-2007, 08:16 PM
Replies: 0
Views: 788
Posted By Muldoonmom
Herceptin and Heart Medication

Has anyone ever been prescribed a heart medication to take along with Herceptin if your ejection fraction (MUGA scan) has been too low? I can't remember the name of the medication - begins with a C...
Forum: her2group 02-16-2007, 05:26 AM
Replies: 10
Views: 1,925
Posted By Muldoonmom
Status of Tykerb

Thanks, Gals.
I am anxiously awaiting its approval - my doc has said that he will start me on it immediatly, along with Herceptin.
I'll check out the "pink sheet."
Debbie
Forum: her2group 02-15-2007, 04:55 PM
Replies: 10
Views: 1,925
Posted By Muldoonmom
Status of Tykerb (Lapatinib) FDA Approval?

Does anyone have any info on the current status/projected approval date and release of tykerb??? I'm anxiously awaiting its approval!
Thank you,
Debbie
Forum: her2group 07-19-2006, 08:22 AM
Replies: 6
Views: 1,717
Posted By Muldoonmom
Thanks for the great information

Hi Judiek,

Again, Wow! Thank you for taking the time to send me that terrific article on pleuradesis. I see my onc tomorrow and feel so much better and better informed.
This is a great...
Forum: her2group 07-18-2006, 06:54 AM
Replies: 22
Views: 3,041
Posted By Muldoonmom
Weekly vs 3 Week Herceptin

I've been on weekly herceptin for 7 years! My onc and I have talked a few times about switching me to every 3 weeks but I think we just feel that if it ain't broke, don't fix it! I'm on weekly Gemzar...
Forum: her2group 07-18-2006, 05:42 AM
Replies: 6
Views: 1,717
Posted By Muldoonmom
Pleural Effusion Treatment

Wow, what a relief to know that the treatment isn't horrible. I have asked my onc if I would have any long term pain or "discomfort" and he has PROMISED me that I would not.... but he's never had it...
Forum: her2group 07-18-2006, 05:04 AM
Replies: 6
Views: 1,717
Posted By Muldoonmom
Pleural Effusion Treatment

Has anyone ever had the chest tube treatment (with antibiotic) to stop pleural effusion? I have had two taps so far and will probably need a third tap next week. After that, if the fluid doesn't stop...
Showing results 1 to 25 of 25

 
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