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Forum: her2group 07-14-2008, 01:50 PM
Replies: 18
Views: 2,054
Posted By Susan2
Is anyone using the Her2 serum test for markers?...

Is anyone using the Her2 serum test for markers? Do you know the approximate cost?

Thanks.
Forum: her2group 06-23-2008, 07:00 PM
Replies: 4
Views: 1,256
Posted By Susan2
Herceptin / Abraxane is the next combo that they...

Herceptin / Abraxane is the next combo that they are trying on me. My tumor markers tests tripled in 2 months. My tumor marker tests have been very reliable in the past. Scans are tomorrow.

I...
Forum: her2group 05-23-2008, 11:58 AM
Replies: 3
Views: 1,086
Posted By Susan2
I had the test performed at Duke in NC.

I had the test performed at Duke in NC.
Forum: her2group 04-19-2008, 09:19 PM
Replies: 8
Views: 1,346
Posted By Susan2
My hair came back. I think it varies from person...

My hair came back. I think it varies from person to person. Don't worry about whether it should or should not be a big deal. Best of luck and I hope everything works out well for you.
Forum: her2group 12-10-2007, 06:51 AM
Replies: 16
Views: 1,823
Posted By Susan2
There are still some shipments getting through....

There are still some shipments getting through. However, they don't know from day to day. I was told that they have to get daily shipments because the dye only lasts one day. I was able to have a...
Forum: Herceptin / Tykerb 11-18-2007, 08:25 PM
Replies: 26
Views: 5,097
Posted By Susan2
I started on Xeloda and Tykerb together. The side...

I started on Xeloda and Tykerb together. The side effects were bad enough to drop the Xeloda and reduce Tykerb to 4 a day. The side effects went away for the most part. So, I was on Tykerb only for...
Forum: Herceptin / Tykerb 10-18-2007, 04:18 PM
Replies: 7
Views: 1,897
Posted By Susan2
Because of side effects, I dropped down to 4...

Because of side effects, I dropped down to 4 Tykerb and no Xeloda. That has worked well for me. I tried to go back to 5 Tykerb and couldn't handle it.

Good luck and I'm sure you'll find a combo...
Forum: Herceptin / Tykerb 10-06-2007, 05:47 PM
Replies: 10
Views: 1,926
Posted By Susan2
When I started Tykerb and Xeloda, I had the...

When I started Tykerb and Xeloda, I had the similar symptoms. It was so bad that I became dehydrated. I took a 2 week vacation from all meds and then restarted with just Tykerb. It's been 2 months...
Forum: her2group 08-13-2007, 02:01 PM
Replies: 14
Views: 1,616
Posted By Susan2
I'm 14 months from my initial MRI with issues and...

I'm 14 months from my initial MRI with issues and 8 months from gamma knife. Over the 14 month period, my scans have shown remarkable improvement and my tumor markers are back in the normal range....
Forum: her2group 07-28-2007, 10:20 AM
Replies: 22
Views: 2,638
Posted By Susan2
When I go in for MRI's, they give me a cloth to...

When I go in for MRI's, they give me a cloth to cover my eyes. It's saturated with aromatherapy to relax me. I meditate until I fall asleep.
Forum: her2group 06-09-2007, 08:29 AM
Replies: 49
Views: 5,129
Posted By Susan2
I had WBR a year ago and I had the same concerns...

I had WBR a year ago and I had the same concerns as you. However, it was at a lower daily dose over a longer period of time with higher doses targeting the known spots. the only side effect that I...
Forum: her2group 06-05-2007, 03:58 PM
Replies: 9
Views: 1,369
Posted By Susan2
My son hates yardwork. So we've used that in the...

My son hates yardwork. So we've used that in the past. He works off the debt that you paid and we get our yard done. We've also had him do volunteer work to work off the debt. We just assign him an...
Forum: her2group 06-05-2007, 11:32 AM
Replies: 15
Views: 1,665
Posted By Susan2
When I first started, the diarrhea was so bad, I...

When I first started, the diarrhea was so bad, I became dehydrated. I had IV fludis for 2 days. I went off both drugs for a couple of weeks. This time around, my dr. lowered the Tykerb dosage (kept...
Forum: her2group 06-05-2007, 11:18 AM
Replies: 18
Views: 2,251
Posted By Susan2
I am so sorry about all that you are going...

I am so sorry about all that you are going through. You are right that your first priorities must be your health and the health of your children.

Wishing for you all the best,
Susan
Forum: her2group 02-25-2007, 03:58 PM
Replies: 11
Views: 2,391
Posted By Susan2
I would ask about the steroids. According to...

I would ask about the steroids. According to other postings, the Decadron can have unpleasant side effects.

I was diagnosed in May 06 with approx 11 spots - too many for Gamma Knife (in the...
Forum: her2group 02-25-2007, 09:59 AM
Replies: 11
Views: 2,391
Posted By Susan2
Why are you going on steriods if there is no...

Why are you going on steriods if there is no edema? Is it for another problem?

I'm very sorry to hear about your new diagnosis. There are several of us on the board with similar ones who are...
Forum: her2group 10-27-2006, 11:39 AM
Replies: 10
Views: 1,746
Posted By Susan2
Wishing you all the bestSusan

Wishing you all the bestSusan
Forum: her2group 10-10-2006, 01:56 PM
Replies: 12
Views: 1,595
Posted By Susan2
Christine - Dosage

7 days wbr @ 180 cgy for a total of 1,260. 17 days specialized @ 180 for 3,060.

So, the affected areas got 4,320 while the unaffected areas got only 1,260.

Hope that helps.
Forum: her2group 10-10-2006, 01:51 PM
Replies: 5
Views: 1,073
Posted By Susan2
WBR - whole brain radiation. In May, they...

WBR - whole brain radiation.

In May, they found 11 spots on my MRI. No symptoms. Like you, they wanted to do wbr. Because of the scary stuff that I had read, I initially refused. I went for a...
Forum: her2group 10-01-2006, 03:45 PM
Replies: 16
Views: 4,406
Posted By Susan2
Wow - what a ride you have had. I am very...

Wow - what a ride you have had. I am very impressed with your courage and persistence.

I wish you the best of everything.
Susan
Forum: her2group 09-28-2006, 05:08 PM
Replies: 13
Views: 1,153
Posted By Susan2
Great news. I hope that you have a wonderful...

Great news. I hope that you have a wonderful walk. I look forward to seeing more great reports.
Forum: her2group 09-27-2006, 02:03 PM
Replies: 12
Views: 1,595
Posted By Susan2
Do you want to know the daily doses of radiation...

Do you want to know the daily doses of radiation or Temodar? I'll need to check for exact numbers. I had 24 total doses - Temodar daily with the radiation. I had a 2 step radiation treatment - whole...
Forum: her2group 09-27-2006, 10:09 AM
Replies: 12
Views: 1,595
Posted By Susan2
Smile Great MRI Results

In May, I had WBR and Temodar for 11 spots. In July, they said some were gone, some were smaller and the rest the same. Then, today, the MRI shows everything gone except 1 tiny scar. YEAH!!

Also,...
Forum: her2group 09-21-2006, 12:06 PM
Replies: 9
Views: 1,149
Posted By Susan2
Hi, I did Navelbine / Herceptin the fall of...

Hi,

I did Navelbine / Herceptin the fall of 2005. My counts dropped as well, so they lowered the dosage. That helped but I certainly looked forward to the week off. I drank a lot of green tea and...
Forum: her2group 08-29-2006, 09:19 AM
Replies: 20
Views: 1,638
Posted By Susan2
Great news! Here's to an excellent result!

Great news! Here's to an excellent result!
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