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Forum: her2group 09-05-2018, 04:54 PM
Replies: 10
Views: 47,581
Posted By Monica
Re: The beginnings of HER2Support

As a follow on to my previous post, here Christine and Joe speak to their values and the mission of the Board.

Christine: "This is a no-nonsense board. It’s not to have a pity party. We’re not...
Forum: her2group 09-05-2018, 04:44 PM
Replies: 10
Views: 47,581
Posted By Monica
Re: The beginnings of HER2Support

Hi,
I personally spoke to Joe and Christine for a paper I was writing around 2008. I flew out to California and their family were amazing hosts. As background, some time in the 1990’s when HER2...
Forum: her2group 08-17-2010, 08:09 PM
Replies: 139
Views: 19,597
Posted By Monica
Re: Joe passed on this evening

I was shocked and dismayed to read about Joe. I was extremely fortunate to meet Joe, Christine, and one of their daughters at their home about five years ago. I was conducting research on the...
Forum: her2group 07-25-2010, 07:38 PM
Replies: 44
Views: 5,095
Posted By Monica
Re: Half of breast cancer patients treated with antihormonals are noncompliant ie, do

My decision to stop taking tamoxifen was very difficult for me, and not one that I did easily. I am 95% ER+. However, the tamoxifen caused me to have MS relapses. I tried three times, and every time...
Forum: her2group 05-21-2010, 07:19 PM
Replies: 8
Views: 1,559
Posted By Monica
Re: Now Novalis for brain met too:(

Jessica,
Setbacks can be so scary and daunting, but somehow we pick ourselves up and move ahead. Like you said, you did get lucky getting the brain scan and catching the tumor early – and only...
Forum: her2group 05-10-2010, 08:15 PM
Replies: 1
Views: 968
Posted By Monica
Viagara and herceptin combat HER2 brain mets

Here is an interesting and promising study in mice:
http://www.scienceblog.com/cms/drug-now-used-treat-erectile-dysfuncton-may-enhance-delivery-herceptin-certain-brain-tumors.html

Best,
Monica
Forum: her2group 11-18-2009, 05:57 PM
Replies: 20
Views: 3,083
Posted By Monica
Re: Dr. Susan Love

I must say I have been taken aback by the strength of anger towards these scientists who I assume are trying to do the right thing. All sorts of motives are being ascribed. Hasn't Dr. Love done a lot...
Forum: her2group 07-17-2009, 12:23 PM
Replies: 39
Views: 4,729
Posted By Monica
Hi, I tried endocrine therapy a few times, but...

Hi,
I tried endocrine therapy a few times, but after much consideration decided to get off of it. It has been over 5 years and I'm NED. Such decisions are very difficult. If tamoxifen had not...
Forum: her2group 09-11-2008, 02:16 PM
Replies: 18
Views: 2,246
Posted By Monica
I will definitely come if I can. I am not...

I will definitely come if I can. I am not familiar with the restaurants in Edison and Metuchen, but Metuchen is a much cuter town than Edison. If you come in by train, Metuchen's train station is in...
Forum: her2group 08-24-2008, 12:15 PM
Replies: 13
Views: 2,209
Posted By Monica
Hi Debbie, I am highly ER positive, and am not...

Hi Debbie,
I am highly ER positive, and am not taking any sort of anti-estrogen drugs. I found that tamoxifen made my neurological problems much worse and on top of that I felt miserable (worse than...
Forum: her2group 08-08-2008, 08:58 AM
Replies: 8
Views: 2,464
Posted By Monica
I took alpha lipoic acid while I was on taxol. I...

I took alpha lipoic acid while I was on taxol. I had some pretty serious neuropathy problems, and the alpha lipoic acid seemed to help. It is also used for diabetics who have neuropathy issues.
...
Forum: her2group 08-06-2008, 01:34 PM
Replies: 25
Views: 3,232
Posted By Monica
Lee, You are too funny. Sometimes I wish I were...

Lee,
You are too funny. Sometimes I wish I were a guy. Their lives seems so much simpler... Well, maybe I would skip running over the squirrel bonding thing.

Monica
Forum: her2group 07-21-2008, 12:42 PM
Replies: 8
Views: 1,505
Posted By Monica
Joe, I am pretty adept in Excel. If you would...

Joe,
I am pretty adept in Excel. If you would like me to set up a spreadsheet, I could do that. Excel is very handy when you need to sort. You could sort by state, zip code, doctor, etc.

Best,...
Forum: her2group 06-28-2008, 10:54 AM
Replies: 17
Views: 1,794
Posted By Monica
Just as an add on to Dr. McManus, when I told her...

Just as an add on to Dr. McManus, when I told her how she was held so highly regarded by her peers and nurses (I heard good things from many people), tears came to her eyes. It reminded me that...
Forum: her2group 06-27-2008, 11:39 AM
Replies: 17
Views: 1,794
Posted By Monica
I also have Dr. Deborah Toppmeyer and like her a...

I also have Dr. Deborah Toppmeyer and like her a lot. Dr. Susan McManus is considered an excellent breast surgeon. Her office is out of Somerset and does surgery at St. Peters which is a much more...
Forum: her2group 06-26-2008, 03:07 PM
Replies: 91
Views: 12,377
Posted By Monica
Hello, I am 4.5 years NED and plan to have...

Hello,
I am 4.5 years NED and plan to have plenty more!
Best and good wishes to everyone,
Monica
Forum: her2group 06-21-2008, 04:45 PM
Replies: 4
Views: 1,282
Posted By Monica
Lani, It is hard for me to tell whether...

Lani,
It is hard for me to tell whether herceptin helped my MS symptoms since my MS only started a year before my breast cancer diagnosis. I can say that my MS got significantly worse when I tried...
Forum: her2group 06-19-2008, 12:11 PM
Replies: 22
Views: 4,990
Posted By Monica
Hi Terri, I may have MS, and when I tried three...

Hi Terri,
I may have MS, and when I tried three separate times to go on tamoxifen, each time my MS got substantially worse. Studies have shown that for a number of women who have MS that when they...
Forum: her2group 06-18-2008, 09:10 PM
Replies: 22
Views: 4,990
Posted By Monica
Hi, I have had a lot of problems with lung...

Hi,
I have had a lot of problems with lung nodules coming and going. They found a nodule about 7 months ago. Had another cat scan 3 months later and it had disappeared, but then another one showed...
Forum: her2group 06-12-2008, 07:25 PM
Replies: 18
Views: 2,133
Posted By Monica
Hi Bill, I had some similar symptoms about five...

Hi Bill,
I had some similar symptoms about five years ago, numbness, tingling in my legs. That progressed to muscle spasms and other symptoms. My brain MRI showed nothing. I also had a spinal MRI...
Forum: her2group 02-25-2008, 09:14 AM
Replies: 13
Views: 1,636
Posted By Monica
I don't think I ever went into full menopause...

I don't think I ever went into full menopause during my treatment. My periods stopped for about six months, but no hot flashes. When I was on herceptin, my periods came back. I'll be 50 this coming...
Forum: her2group 01-06-2008, 02:52 PM
Replies: 55
Views: 5,365
Posted By Monica
Great effort! Saint Peter's University Hospital...

Great effort!
Saint Peter's University Hospital
New Brunswick, NJ
Yes to all other questions.

Best,
Monica
Forum: her2group 11-13-2007, 12:17 PM
Replies: 33
Views: 3,744
Posted By Monica
Sherry, You seem such a loving person, and...

Sherry,
You seem such a loving person, and given so much to your brother. I feel like I have to ask a question: Why is it so hard for you to tell him how you feel about not being included in his...
Forum: her2group 11-02-2007, 12:36 PM
Replies: 9
Views: 2,567
Posted By Monica
Hi Eric, I'm so sorry to hear that the cancer...

Hi Eric,
I'm so sorry to hear that the cancer has spread more than you thought, but at least now you can make plans for the next fight.

Did you happen to see the posting on NeuVax? I don't know...
Forum: her2group 10-17-2007, 07:44 AM
Replies: 26
Views: 3,988
Posted By Monica
Hi Magnolia, I'm wondering if Jenny is afraid...

Hi Magnolia,
I'm wondering if Jenny is afraid that she will offend her doctor if she gets a second opinion. Maybe she doesn't want him to think that she doesn't trust him. I would suggest that Jenny...
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