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Showing results 1 to 25 of 37
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Posts Made By:
Isabelle
Forum:
her2group
08-23-2005, 12:23 PM
Replies:
9
Where have all the original "Her2Neuers" gone?
Views:
2,086
Posted By
Isabelle
I am an old timer but relatively new on this...
I am an old timer but relatively new on this website. I have had a surprisingly normal and full life for someone with such an aggressive form of breast cancer. I am tough, proactive and informed. ...
Forum:
her2group
08-20-2005, 09:50 AM
Replies:
2
Brain MRI results
Views:
1,014
Posted By
Isabelle
That was my experience with whole brain radiation...
That was my experience with whole brain radiation as well.
Isabelle in CT.
Forum:
her2group
08-20-2005, 09:47 AM
Replies:
11
Brain mets gals: my latest chapter...
Views:
2,263
Posted By
Isabelle
I don't know where you live but there is a study...
I don't know where you live but there is a study using Lapatimid for brain mets when radiation is not working. I know it is at Dana Farber Cancer Institute in Boston and a few other locations. ...
Forum:
her2group
08-11-2005, 05:50 AM
Replies:
15
Routine Scans no good....
Views:
2,867
Posted By
Isabelle
I was told finding mets early does not increase...
I was told finding mets early does not increase survival rates as it does for finding breast cancer the first time. Symptons count a lot once you have breast cancer mets. If you are in a lot of...
Forum:
Clinical Trials
07-25-2005, 08:05 AM
Replies:
2
Upcoming UW Trial Includes Brain Mets People
Views:
2,327
Posted By
Isabelle
Thank you Patty for sharing the trial info. That...
Thank you Patty for sharing the trial info. That sounds like it might work for me!
Isabelle in CT
Forum:
her2group
06-25-2005, 05:04 AM
Replies:
10
Need help on Herceptin-Navelbine
Views:
1,816
Posted By
Isabelle
I took Herceptin/Navelbine weekly for one year...
I took Herceptin/Navelbine weekly for one year and did great on it. No hair loss and a normal life. All my bone met pain was gone within weeks. Tumor markers dropped like a stone to near normal. ...
Forum:
her2group
06-17-2005, 05:38 AM
Replies:
2
brain met survivors
Views:
1,000
Posted By
Isabelle
Hello, I feel like sharing accomplishments...
Hello,
I feel like sharing accomplishments today. I finished 4 weeks whole brain radiation in March and last week got stereotactic radiosurger on the remnants of two brain mets. Herceptin has...
Forum:
her2group
06-17-2005, 05:22 AM
Replies:
3
Clinical Studies for Gyno. Cancers?
Views:
1,140
Posted By
Isabelle
Any study websites for ovarian cancer? My friend...
Any study websites for ovarian cancer? My friend is not responding to treatment and I feel so helpless.
Isabelle
Redding, CT
Forum:
her2group
04-26-2005, 05:38 PM
Replies:
11
Chemo embolization
Views:
1,085
Posted By
Isabelle
Dear Sherry, I will keep you in my thoughts...
Dear Sherry,
I will keep you in my thoughts and prayers. Thank you for sharing your treatment plans with us. We all learn so much from posts like yours.
Isabelle
Forum:
her2group
04-08-2005, 03:27 AM
Replies:
71
How about we all check-in: mini roll call
Views:
13,275
Posted By
Isabelle
I am Isabelle in CT. I am happy to be turning 45...
I am Isabelle in CT. I am happy to be turning 45 this month.
I have a long story because I have been living a pretty normal life now for 6 years with various treatments to keep me going. I just...
Forum:
her2group
03-28-2005, 04:01 AM
Replies:
2
Brain Mets
Views:
1,004
Posted By
Isabelle
Thank you Joe. I had no information like this...
Thank you Joe. I had no information like this available to me and I just finished 4 weeks of whole brain radiation. Oh well, better late than never.
Thanks also for adding the Dana Farber...
Forum:
her2group
03-28-2005, 03:55 AM
Replies:
9
Poll:
Tumor Markers, Accurracy
Views:
1,445
Posted By
Isabelle
Kristen, I tried to do your poll but it would...
Kristen,
I tried to do your poll but it would not let me click more than item and I needed to.
I have had my CA 27/29 and CEA checked every 3 months since I was first diagnosed six years ago. ...
Forum:
her2group
03-19-2005, 05:40 AM
Replies:
15
herceptin failed me...?
Views:
2,058
Posted By
Isabelle
Hi, Don't lose hope yet. Sounds like there...
Hi,
Don't lose hope yet. Sounds like there is still lots for you to do. I was told surgery to the liver is not a good idea. There are cancer cells in your liver so even if you take at the...
Forum:
her2group
03-14-2005, 12:43 AM
Replies:
11
Chemo for Bone Mets
Views:
2,018
Posted By
Isabelle
Anna, I was just on breastcancer.org and...
Anna,
I was just on breastcancer.org and they now have a better metastaic section that seemed to go over all the treatment options, going over pros and cons and references to all the San Antonion...
Forum:
her2group
03-14-2005, 12:23 AM
Replies:
11
Chemo for Bone Mets
Views:
2,018
Posted By
Isabelle
Dear Anna, Ask about other Herceptin/chemo....
Dear Anna,
Ask about other Herceptin/chemo. combonations. Herceptin seems to work well synergistically with other drugs. There are many out there. Herceptin and a taxane? I assume you are getting...
Forum:
her2group
03-13-2005, 03:35 AM
Replies:
3
WBR - side effects
Views:
1,138
Posted By
Isabelle
Thanks for the feed back on side effects. I...
Thanks for the feed back on side effects. I bought a great wig and will get another for free at my cancer center. I had them styled this time (I have lost hair once before) so I feel like me and...
Forum:
her2group
03-12-2005, 05:08 AM
Replies:
3
WBR - side effects
Views:
1,138
Posted By
Isabelle
Dear fellow whole brain radiation survivors: ...
Dear fellow whole brain radiation survivors:
I seem to have lost my sense of taste after 10 out of 20 doses of whole brain radiation. Or, maybe it is my sense of smell, such a major component in...
Forum:
her2group
03-11-2005, 04:01 AM
Replies:
7
Organic Milk Products only
Views:
2,500
Posted By
Isabelle
Hey guys, I am all for the healthy diet. ...
Hey guys,
I am all for the healthy diet. After working as a food writer, recipe editor and pastry chef I was deep into sugar.
That was all before cancer. I have since worked as consulted with...
Forum:
Clinical Trials
03-11-2005, 03:44 AM
Replies:
1
Lapatinib for Metastatic Brain Tumors
Views:
2,163
Posted By
Isabelle
Thanks Joe. With so many of us with the dreaded...
Thanks Joe. With so many of us with the dreaded brain mets reading this website, I am glad you put a spotlight on this trial.
Also, if you have failed at radiation for brain mets, you brain mets...
Forum:
her2group
03-04-2005, 05:03 PM
Replies:
10
My brain surgery
Views:
1,148
Posted By
Isabelle
Excellent! Thank you for sharing your news. ...
Excellent! Thank you for sharing your news. Sounds like you have a good set of doctors who are on your team.
I am just two weeks into having brain mets and want as much info. as I can get about...
Forum:
her2group
03-03-2005, 02:41 AM
Replies:
9
It's been awhile
Views:
1,277
Posted By
Isabelle
Dear Joy, You will get through this setback...
Dear Joy,
You will get through this setback and get back to some variety of a balanced life. You can still have a good life controlling your breast cancer. I have been doing it for 6 years with 3...
Forum:
her2group
03-02-2005, 03:17 AM
Replies:
8
Gamma Knife and Herceptin
Views:
1,172
Posted By
Isabelle
Hi, I am currently getting WBR for brain...
Hi,
I am currently getting WBR for brain mets. They were not causing me any symptons but I have some edema so I had to go on decadron. I remember from getting it at chemo. that I react very...
Forum:
her2group
03-02-2005, 03:05 AM
Replies:
7
here I go again
Views:
1,194
Posted By
Isabelle
Hi Linda, Don't look back! No second...
Hi Linda,
Don't look back! No second guessing allowed! You made the best decisions you could for yourself in regard to circumstances and information you had then. Just move on to work out this...
Forum:
her2group
02-26-2005, 05:03 AM
Replies:
10
chemo question/poll
Views:
1,427
Posted By
Isabelle
I have switched oncs because of this problem. ...
I have switched oncs because of this problem. Some are so focused on destroying cancer in your body and do not understand the qualith of life aspect. They don's see you as a whole person.
Are...
Forum:
her2group
02-23-2005, 06:20 PM
Replies:
4
Brain MRI
Views:
1,647
Posted By
Isabelle
Hi Lori, I am glad you are getting an MRI...
Hi Lori,
I am glad you are getting an MRI and I wish you the very best results.
I had my first brain MRI last week and it was exactly like StephN described. Mine was a little shorter in...
Showing results 1 to 25 of 37
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