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Search: Posts Made By: karina14
Forum: her2group 11-18-2015, 04:57 PM
Replies: 6
Views: 4,214
Posted By karina14
Re: Blood brain barrier

Is this a treatment already available in Canada? (you mention Sunnybrook, I am assuming it is in Toronto)
Wondering if it is research or approved for delivery of large molecule drugs like Hercepin,...
Forum: her2group 08-24-2015, 04:45 PM
Replies: 10
Views: 4,605
Posted By karina14
Re: IT Herceptin needed in Canada

Thank you! I don't qualify for the Neratinib + TDM1 trial from PMH because I have already been treated with TDM1 and I had progressed. But I looked at the trial from Dana Farber with Neratinib and...
Forum: her2group 08-20-2015, 12:45 PM
Replies: 8
Views: 2,736
Posted By karina14
Re: Taxol/Herceptin

Hmmm, you should ask for Herceptin + Perjeta combination. That is a combination covered by OHIP. What you tried in the trial was Perjeta + TDM1 (and you don't know which side you were). In my case,...
Forum: her2group 08-16-2015, 08:45 AM
Replies: 10
Views: 4,605
Posted By karina14
Re: IT Herceptin needed in Canada

A quick update for ladies in Canada looking for IT Herceptin...
I was not successful in my quest to convince my oncologist to treat my brain with IT Herceptin. It seems that nobody does it in...
Forum: her2group 08-03-2015, 11:40 AM
Replies: 10
Views: 4,605
Posted By karina14
IT Herceptin needed in Canada

I watch with so much interest the IT Herceptin threads with so many success stories and I am so happy for all of you that there is an answer to this ugly threat. This time I was hit directly. My last...
Forum: her2group 07-31-2015, 08:00 AM
Replies: 26
Views: 14,933
Posted By karina14
Re: Don't want to give up TDM-1

Lucy, if you or your spouse have medical insurance through your company, they will probably cover part of the cost or all. As well as treatment to a private clinic, but make sure you call the...
Forum: her2group 07-25-2015, 11:02 AM
Replies: 26
Views: 14,933
Posted By karina14
Re: Don't want to give up TDM-1

Lucy,

At PMH you can ask for Dr. Warr (very knowledgeable) or Dr. Beddard (he is involved with trials at PMH), both breast cancer oncologists. You should be able to get TDM1, just make your story...
Forum: her2group 05-19-2015, 02:08 PM
Replies: 44
Views: 105,121
Posted By karina14
Re: Kadcyla Side Effects

I have the 5th cycle coming up and I am struggling with the dry mouth during the 3 weeks between treatments. Tried Biotene mouth wash but is not working for me. Other ideas?

Also the neuropathy...
Forum: her2group 04-17-2015, 09:26 AM
Replies: 44
Views: 105,121
Posted By karina14
Re: Kadcyla Side Effects

Adding more side effects after my 3rd treatment with TDM1: I continue to cough and have breathing problems on exertion, some kind of a breathing spasm when I yawn, constipation during each cycle,...
Forum: her2group 04-06-2015, 09:06 AM
Replies: 44
Views: 105,121
Posted By karina14
Re: Kadcyla Side Effects

Hi vqtilley,

In a different thread I have seen instructions how to access pub med docs: http://her2support.org/vbulletin/showthread.php?t=62247

I also found it here, but you need to...
Forum: her2group 04-04-2015, 06:54 PM
Replies: 44
Views: 105,121
Posted By karina14
Re: Kadcyla Side Effects

There is a recent study od TDM1 and brain mets:
http://www.clinical-breast-cancer.co...14)00223-7/pdf
"Breast cancer brain metastases responding to primary systemic therapy with T-DM1."
...
Forum: her2group 03-14-2015, 07:12 AM
Replies: 44
Views: 105,121
Posted By karina14
Re: Kadcyla Side Effects

I have just started Kadcyla (changing from Herceptin+Perjeta which stopped working on my lungs) and so far no side effects other than mild constipation. Compared with other chemos this looks like a...
Forum: her2group 01-20-2015, 12:21 PM
Replies: 16
Views: 2,735
Posted By karina14
Re: How many of us are taking some kind of medication for depression?

I take Effexor XR (recently upped to 75+37.5 mg) and was on 75 mg for more than one year. Probably the best thing for me that I did not ignore this, to relieve anxiety , which all of us have. One...
Forum: her2group 01-05-2015, 08:48 AM
Replies: 16
Views: 3,555
Posted By karina14
Re: Question on brain mets

Hi Bejuce, I don't want to scary you and I hope the problems you have are not caused by mets ... but you need a brain MRI to make sure there are no brain mets. I follow closely the studies for brain...
Forum: her2group 12-21-2014, 05:45 PM
Replies: 27
Views: 4,505
Posted By karina14
Re: My daughter, Susan.

Evelyn, my sincere condolences for loosing Susan. I am very sorry. She was a fighter. And thank you for sharing her story. She fought the disease for more than 10 years and more, the brain mets, that...
Forum: her2group 12-19-2014, 10:04 AM
Replies: 7
Views: 1,868
Posted By karina14
Re: Blood test question

Before being metastatic I used to get it once every 6 months. It depends which ones are done. CBC and all basic stuff are simple, but won't tell you much about cancer coming back. Important are all...
Forum: her2group 12-18-2014, 01:18 PM
Replies: 6
Views: 2,218
Posted By karina14
Re: THIS MAY BE BIG: new monoclonalantibody-peptide conjugate crosses blood-brainbar

We need something like this badly...

Lani, you are such a treasure for bringing them up! No mater where we look for info we can't find it all, and you bring it all here! We love you :-)
Forum: her2group 12-17-2014, 06:14 PM
Replies: 21
Views: 6,871
Posted By karina14
Re: TDM1 for HER2+ brain mets reocurrence?

Thank you, Rolepaul. IT Herceptin or Perjeta to go to deep lesions is probably what I need. My tumors are not in lepto area but cerebellum and deep. The bad is that there are too many, so wbr was the...
Forum: her2group 12-11-2014, 05:12 PM
Replies: 14
Views: 3,554
Posted By karina14
Re: Alcohol

I think everyone can have a drink or two without making much fuss if they should be having it or not. If that will make you happy that day, it will be better for your cancer, because your cells will...
Forum: her2group 12-05-2014, 02:33 PM
Replies: 21
Views: 6,871
Posted By karina14
Re: TDM1 for HER2+ brain mets reocurrence?

Thank you for the link and info how to get to it. I have found it earlier but with the empty abstract. I hope I will get to the trial, looks to have very new info re-TDM1 and brain mets
Forum: her2group 11-30-2014, 09:13 PM
Replies: 21
Views: 6,871
Posted By karina14
TDM1 for HER2+ brain mets reocurrence?

Has anyone tried TDM1 after brain mets reocurrence? My initial treatment was WBR 9 months ago, the number of mets is large, currently I am only controlling the extracranial disease with Herceptin &...
Forum: her2group 08-11-2014, 09:18 AM
Replies: 3
Views: 2,023
Posted By karina14
Re: docetaxel vs. taxol

I have been on Docetaxel and Herceptin on a weekly regimen for lungs and liver mets and I was more in a hospital than at home as my counts were not recovering fast enough. I had severe mucositis with...
Forum: her2group 11-26-2013, 09:03 PM
Replies: 6
Views: 1,979
Posted By karina14
Re: Stage IV and Metastatic members-do you have weekly or every three week treatments

Caroline, I am on a weekly Herceptin schedule, but can't say it is better as I started two and a half months ago. No concerns from the doctor vs 3 weeks. If the mets will get stable, we will probably...
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