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Search took 0.02 seconds. Search: Posts Made By: doh2pa
Forum: her2group 12-18-2008, 12:56 PM
Replies: 15
Views: 2,671
Posted By doh2pa
Hi I am so sorry to hear about your liver...

Hi

I am so sorry to hear about your liver mets. I, too, battle them constantly, and they can be very stubborn. I have been trying to get on the TDM trials but my liver enzymes have been too...
Forum: her2group 12-15-2008, 09:55 AM
Replies: 25
Views: 3,215
Posted By doh2pa
Hi Joy, Well, I think you and I are in a...

Hi Joy,

Well, I think you and I are in a similar boat, sister. Remissions are getting shorter and shorter and my onc is running out of things to try. So I started Doxil in early November (it's...
Forum: her2group 11-28-2008, 11:33 AM
Replies: 8
Views: 1,398
Posted By doh2pa
Hi Lida, I think both of these are good...

Hi Lida,

I think both of these are good options. I've done both and found the doxil to be harder but everyone is different. Some folks have a pretty easy time with doxil and I am only getting...
Forum: her2group 11-13-2008, 11:26 AM
Replies: 8
Views: 1,516
Posted By doh2pa
Hi Dianne, I had my first dose of Docetaxel...

Hi Dianne,

I had my first dose of Docetaxel last week and had an immediate reaction - drop in BP, flushing, coughing. They stopped the infusion, gave some saline, waited a few minutes and then...
Forum: her2group 11-06-2008, 10:55 AM
Replies: 21
Views: 3,344
Posted By doh2pa
Hi Verna, Thank you so much for sharing your...

Hi Verna,

Thank you so much for sharing your wonderful news! I was on the launch pad to start this study, but my liver enzymes were a little too high. So I am doing a few rounds of doxil and...
Forum: her2group 11-04-2008, 12:33 PM
Replies: 7
Views: 2,148
Posted By doh2pa
Thanks for the info Jackie!

Thanks for the info Jackie!
Forum: her2group 11-04-2008, 12:31 PM
Replies: 4
Views: 1,005
Posted By doh2pa
I have used accupuncture multiple times for...

I have used accupuncture multiple times for relieving neuropathy and it has worked. I felt a 75% improvement in the numbness and tingling in my feet after only just 2 treatments. I'm not a fanatic...
Forum: her2group 11-03-2008, 10:53 AM
Replies: 7
Views: 2,148
Posted By doh2pa
Thanks, Chelee!

Thanks, Chelee!
Forum: her2group 10-31-2008, 09:42 AM
Replies: 7
Views: 2,148
Posted By doh2pa
Can you tell me about Doxyl?

Hi All,

I'm about to start Doxyl next week. Does anyone out there have any experiences to share with this drug? I will get dosed once every 28 days. Would love to hear about how long you were...
Forum: her2group 10-31-2008, 09:39 AM
Replies: 10
Views: 2,284
Posted By doh2pa
Hi Joy, My, you are having a rough time,...

Hi Joy,

My, you are having a rough time, but it makes me smile to see how you are still getting joy (is it the name??) from simple life things like Halloween and soaking in a soothing spring. ...
Forum: Herceptin / Tykerb 10-31-2008, 09:28 AM
Replies: 2
Views: 1,531
Posted By doh2pa
Hi Michka, I did have my neuropathy come...

Hi Michka,

I did have my neuropathy come back when I stopped taking my daily B6. Let me explain. I had moderate neuropathy with a few different agents and each time it seemed to be controlled...
Forum: her2group 10-24-2008, 08:35 AM
Replies: 4
Views: 1,606
Posted By doh2pa
Thank you ladies! You give me great...

Thank you ladies! You give me great encouragement. I have an appointment next week to begin the trial. I'm keeping my fingers, toes crossed, and praying to whomever will listen. Thanks for...
Forum: her2group 10-20-2008, 12:25 PM
Replies: 1
Views: 1,126
Posted By doh2pa
Hi Lida, My liver enzymes also rose on...

Hi Lida,

My liver enzymes also rose on Gemzar. My onc warned that the rise is a common side effect. I'm sure your doctor will regularly monitor this, so if he/she is not concerned then follow...
Forum: her2group 10-20-2008, 10:53 AM
Replies: 4
Views: 1,606
Posted By doh2pa
Herceptin/DM1 Trial folks - please check in

Hi All,

I am on deck to try to Herceptin DM1 trial. I'm scared and excited at the same time.

Can those of you who are on, please check in and let me know how long you've been on, what the...
Forum: her2group 10-16-2008, 01:23 PM
Replies: 10
Views: 2,616
Posted By doh2pa
Hi Lizbeth, I think the main question here...

Hi Lizbeth,

I think the main question here is not the port but your white count. With my counts running around 3.0, my onc always prescribes just 600 mg of Clindamycin just one hour before I see...
Forum: her2group 10-15-2008, 01:30 PM
Replies: 26
Views: 2,702
Posted By doh2pa
WOW, WOW, WOW!!! That is such fabulous news! ...

WOW, WOW, WOW!!! That is such fabulous news!

I think your regimen is my next step, so thanks for blazing the trail (and giving me HOPE!). All the positive energy of this board is coming your way.
Forum: Herceptin / Tykerb 10-15-2008, 01:09 PM
Replies: 2
Views: 1,472
Posted By doh2pa
Hi I was on Tykerb/Xeloda for 8 months last...

Hi

I was on Tykerb/Xeloda for 8 months last year and had no SE's the first 4 months, but worsening SE's after that. I went off the combo for a while and then tried to add Tykerb back into my...
Forum: her2group 10-06-2008, 12:39 PM
Replies: 7
Views: 1,755
Posted By doh2pa
Hi Lida, I've been on Gemzar, Tykerb and...

Hi Lida,

I've been on Gemzar, Tykerb and Avastin since early July. I am on weekly infusion (3 weeks on, 1 week off). It has been one of the easiest chemos for me. I take a premed for nausea...
Forum: her2group 10-02-2008, 11:16 AM
Replies: 3
Views: 1,281
Posted By doh2pa
Hi Beth, I too had flu like symptoms with...

Hi Beth,

I too had flu like symptoms with the first infusion but after that I had no problems at all.
Forum: Herceptin / Tykerb 10-02-2008, 11:12 AM
Replies: 13
Views: 1,836
Posted By doh2pa
Hi, I've been taking Tykerb with Avastin...

Hi,

I've been taking Tykerb with Avastin and Gemzar since early July. My scans at the end of August showed liver mets had shrunk by 30% so we are continuing. I too had lots of GI problems on...
Forum: her2group 09-28-2008, 12:12 PM
Replies: 9
Views: 1,760
Posted By doh2pa
Hi Maria I have had multiple neurotoxic...

Hi Maria

I have had multiple neurotoxic therapies and have had issues with neuropathy. I have been able to control it with the following:

1. 50 mg of B6 once a day
2. 5 mg of glutamine 3...
Forum: her2group 09-21-2008, 08:24 AM
Replies: 13
Views: 2,072
Posted By doh2pa
Hi Brenda, Sounds like a good plan. I'm...

Hi Brenda,

Sounds like a good plan. I'm very interested in this combo and how you do on it (let's face it WARRIOR WOMAN the cancer is now shaking in it's cowboy boots!). Go forth and kick ass!
Forum: her2group 09-19-2008, 12:36 PM
Replies: 12
Views: 1,840
Posted By doh2pa
Hi Rich, My regimens for liver mets have...

Hi Rich,

My regimens for liver mets have included taxotere, carboplatin (hard to tolerate) with herceptin. I've also had navilbene with herceptin and gemzar with tykerb, which were easier for...
Forum: her2group 09-19-2008, 12:31 PM
Replies: 3
Views: 1,513
Posted By doh2pa
Yes, neuropathy can be a problem. A few things...

Yes, neuropathy can be a problem. A few things you can try before neuorontin.

1. Take 50 mg of B6 once a day
2. Take 5 mg of Glutamine 3 times per day

I have had neuropathy numerous times and...
Forum: Herceptin / Tykerb 09-19-2008, 12:19 PM
Replies: 3
Views: 1,523
Posted By doh2pa
Hi, Mouth sores are very common with many...

Hi,

Mouth sores are very common with many of these regimens. Are you using any kind of mouth rinse on a regular basis. I would recommend 1/4 teaspoon of baking soda in about 6 ounces of warm...
Showing results 1 to 25 of 206
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