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Search: Posts Made By: KathyT
Forum: her2group 08-11-2019, 11:11 PM
Replies: 235
Views: 209,042
Posted By KathyT
Re: Intrathecal (IT) Herceptin (Trastuzumab) for brain mets (Leptomeningeal Metastase

I am going to be starting Intrathecal Herceptin hopefully this week. I had the Ommaya Reservoir put on August 1st. Diagnosed June 24th with leptomeningeal Mets.
Has anyone received this treatment...
Forum: her2group 07-02-2017, 09:52 AM
Replies: 7
Views: 5,668
Posted By KathyT
Re: High dose Vitamin C

Thank you for your responses!!
Forum: her2group 06-13-2017, 08:05 PM
Replies: 7
Views: 5,668
Posted By KathyT
High dose Vitamin C

Has anyone had this treatment for your cancer? I recently saw a naturopath and she recommended this 3 times a week for 3 months. I would love to do it but it is very expensive($15,000 for 3months)...
Forum: her2group 06-03-2017, 09:31 PM
Replies: 2
Views: 4,731
Posted By KathyT
Anyone have mets to pituitary gland??

I haven't been on this site for a while but thought I would check in. I was diagnosed in Jan 2014 with triple posits BC, did chemo, rads, hysterectomy, reconstruction. In April 2016 was diagnosed...
Forum: her2group 09-03-2016, 02:29 PM
Replies: 28
Views: 12,339
Posted By KathyT
Re: Local treatment in lungs?

Amy,
I haven't posted anything on this site for a LONG time but do check in once in a while. You have been an inspiration to me from when I was first diagnosed in January 2014. I am glad you have...
Forum: her2group 05-13-2016, 10:05 AM
Replies: 10
Views: 4,900
Posted By KathyT
Re: Stage 4 after 2 yrs being stage 2

I was on Anastrazole but have been off it for 2 weeks with all the new stuff going on. The plan is to do Cyberknife to my pituitary tumor and will start Taxotere, Herceptin and Perjeta for chemo. ...
Forum: her2group 05-10-2016, 08:35 AM
Replies: 15
Views: 5,103
Posted By KathyT
Forum: her2group 05-09-2016, 09:40 PM
Replies: 10
Views: 4,900
Posted By KathyT
Stage 4 after 2 yrs being stage 2

I am looking for advice on treatment from any stage 4 women. I was just diagnosed with a pituitary tumor(her2/ER+) and a spot on liver and C7 vertebrae. I meet with my MO on Wed and would like to...
Forum: her2group 05-06-2016, 09:36 AM
Replies: 7
Views: 4,870
Posted By KathyT
Re: IT Herceptin In Europe

SoCalGirls,
You are an inspiration!! I was just diagnosed with mets to the pituitary gland. Having pet scan today, praying for no further mets. Will do Gamma Knife and pray that it will only take...
Forum: Clinical Trials 05-06-2016, 08:55 AM
Replies: 8
Views: 12,371
Posted By KathyT
Brain mets

Hello! It has been a long time since I posted. I was just diagnosed with pituitary gland mets(hormone+/Her2+). No other cancer found in the brain and will probably do gamma knife radiation at...
Forum: her2group 01-18-2016, 04:19 PM
Replies: 69
Views: 21,620
Posted By KathyT
Re: Why i take supplements

I am interested in your updated list, thank you Andi!
Forum: her2group 12-16-2015, 07:23 PM
Replies: 5
Views: 5,234
Posted By KathyT
Forum: her2group 08-26-2015, 08:39 PM
Replies: 15
Views: 4,107
Posted By KathyT
Re: lung mets, CT scan, and going off chemo

I just want to thank all of you ladies who are cancer survivors for many years and still come on this site to help and give advice. I am fairly new here, diagnosed 2/2014 and hope in a few years I...
Forum: her2group 08-26-2015, 08:17 PM
Replies: 13
Views: 3,562
Posted By KathyT
Re: Tamoxifen warning

Jra40,
I am having a total hysterectomy Sept 8th and will switch from Tamoxifen to an AI. I have been nervous about the after effects of the hysterectomy....thanks for sharing your story it gives...
Forum: her2group 08-05-2015, 08:46 PM
Replies: 32
Views: 7,534
Posted By KathyT
Re: 10 years today!!!

Congrats!! So happy for you:))
Forum: her2group 07-31-2015, 07:23 PM
Replies: 13
Views: 3,594
Posted By KathyT
Re: Fatigue, and the Cancer Card.

Jessica,
I am so sorry you are having trouble. I also struggle with fatigue, have no energy or motivation to exercise even though I know it is the best thing for me. I'm sorry you aren't getting...
Forum: her2group 07-21-2015, 07:32 PM
Replies: 17
Views: 2,791
Posted By KathyT
Re: Did you have sentinel node or axilla dissection?

Think positive,
As far as I know they were not sentinal nodes, there is no mention of sentinal nodes in the report. Hope that helps��
Forum: her2group 07-20-2015, 08:23 PM
Replies: 17
Views: 2,791
Posted By KathyT
Re: Did you have sentinel node or axilla dissection?

I had 2 positive nodes prior to chemo, I had bilateral mastectomy and lymph node dissection(only took 3 lymph nodes) and they were all negative. I did not have pCR though:( I had 4mm area in my...
Forum: her2group 07-05-2015, 09:34 AM
Replies: 39
Views: 5,657
Posted By KathyT
Re: All clear Mammo and ten years out!

Well said Ruth!! Thank you all for sharing your stories it is so encouraging for those of us newly diagnosed....

Kathy
Forum: her2group 06-30-2015, 06:28 PM
Replies: 39
Views: 5,657
Posted By KathyT
Re: All clear Mammo and ten years out!

Congrats!! So encouraging to hear as we had pretty much the same diagnosis, 2cm, 3 lymph nodes, triple positive. Thanks for sharing!!

Kathy
Forum: her2group 06-30-2015, 11:36 AM
Replies: 39
Views: 9,055
Posted By KathyT
Re: 10 yrs brain mets - still NED ...

StephN,
Hi! Congrats!! I have a question about your brain mets....did you have any symptoms? I have been getting headaches regularly but not constantly. I feel sometimes it is from sinus...
Forum: her2group 06-13-2015, 08:10 AM
Replies: 22
Views: 6,009
Posted By KathyT
Forum: her2group 06-02-2015, 09:01 PM
Replies: 10
Views: 4,105
Posted By KathyT
Re: Revisiting pCR, partial response, and prognosis

I hate Cancer and wish it didn't have to come in to any of our lives. I, like you have small children and would do anything to reduce the chance of it coming back. Please keep us posted!!

Best...
Forum: her2group 06-01-2015, 04:57 PM
Replies: 10
Views: 4,105
Posted By KathyT
Re: Revisiting pCR, partial response, and prognosis

Amy,
I would maybe get a second opinion?? I think I would request Ki-67! I did have clean lymph nodes but did not get pcr in my 2 small tumors in my breast. I asked my MO about more chemo after I...
Forum: Clinical Trials 05-06-2015, 09:42 PM
Replies: 7
Views: 14,766
Posted By KathyT
Re: Perjeta reaction

Teal, I pm'd you!! I will be praying for you tomorrow! Bring things to keep you busy...books, ipad etc. I also brought a comfy blanket. I had chemo before surgery and very happy and comfortable...
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