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Search: Posts Made By: Savta
Forum: Clinical Trials 11-09-2010, 03:13 AM
Replies: 104
Views: 38,352
Posted By Savta
Re: Neratinib Clinical Trial

Lapatinib was not offered to me. At the time, the trial for Lapatinib was offered only as adjuvent therapy, and I, like you had neo-adjuvent. I am now on the Neratinib trial for just over 6 months...
Forum: Clinical Trials 10-21-2010, 12:30 PM
Replies: 104
Views: 38,352
Posted By Savta
Re: Neratinib Clinical Trial

I am glad to report that I am nearing the half way mark--almost six months since I started the trial. The first month or two were pretty difficult. But I just kept in mind that I was doing all I...
Forum: Clinical Trials 06-09-2010, 08:32 AM
Replies: 104
Views: 38,352
Posted By Savta
Re: Neratinib Clinical Trial

So here I am, six weeks into the trial. I still get really bad bouts of diarrhea, and feel weak and queasy--but I do get a few good days in between the lousy ones. I still don't know what is good...
Forum: Clinical Trials 05-26-2010, 08:19 AM
Replies: 104
Views: 38,352
Posted By Savta
Re: Neratinib Clinical Trial

Tomorrow is my one month check up. For the last week, the diarrhea and just plain lousy feeling have accelerated. I seem to have "bad" bouts every day--and giving in to popping Immodium. I am...
Forum: Clinical Trials 05-17-2010, 11:28 AM
Replies: 104
Views: 38,352
Posted By Savta
Re: Neratinib Clinical Trial

Well, I'm back to feeling the side effects, or what I think are the side effects of Neratinib. I always think I must be used to it by now, and then I have a few rough days. I, too, am much more...
Forum: Clinical Trials 05-11-2010, 04:58 AM
Replies: 104
Views: 38,352
Posted By Savta
Re: Neratinib Clinical Trial

I don't know what to think. I am 13 days into the trial. Had the blessed runs for the first 11 days--now, NOTHING!!! Could it mean that I have already gotten used to the drug? They say it usually...
Forum: Clinical Trials 05-07-2010, 06:36 AM
Replies: 104
Views: 38,352
Posted By Savta
Re: Neratinib Clinical Trial

I don't think it means anything just yet. Some of the women didn't feel anything for the first few days. I also read in Wyeth's website, that 15% of the women taking the drug didn't get diarrhea. ...
Forum: Clinical Trials 05-04-2010, 11:47 PM
Replies: 104
Views: 38,352
Posted By Savta
Re: Neratinib Clinical Trial

Thanks to all of you for words of encouragement. I seem to be into some kind of routine. About every 36 hours I get a really bad bout--but the immodium seems to control it for a while. My biggest...
Forum: Clinical Trials 05-01-2010, 12:23 PM
Replies: 104
Views: 38,352
Posted By Savta
Re: Neratinib Clinical Trial

So here is how it's going so far. The day after I took the first dose, I had three bouts of diarrhea. I began taking the immodium and took precautions with my diet. Today, I had only two bouts and...
Forum: Clinical Trials 04-29-2010, 11:04 AM
Replies: 104
Views: 38,352
Posted By Savta
Re: Neratinib Clinical Trial

So, today I officially joined the Neratinib trial. Seeing as I only took the pills 9 hours ago, I guess I can't determine anything out of the ordinary. My doctor told me there are some that get the...
Forum: Clinical Trials 04-27-2010, 03:47 AM
Replies: 104
Views: 38,352
Posted By Savta
Re: Neratinib Clinical Trial

Hello to all of you.
I have just been asked to participate in the Neratinib trials as well. I, of course, do not know if I will be receiving the drug or the placebo. But I wanted to ask those of...
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