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Forum: Clinical Trials

09-02-2010, 10:50 AM

Replies: 104

Neratinib Clinical Trial

Views: 38,337

Posted By KRISS

Re: Neratinib Clinical Trial

I don't find it too bad. My Onc sets up my bloodwork, ekg, muga and his visit on the same day and usually takes 1/2 the day. The fact that after the first visit or 2 you go to every three months...

Forum: Clinical Trials

06-21-2010, 12:38 PM

Replies: 104

Neratinib Clinical Trial

Views: 38,337

Posted By KRISS

Re: Neratinib Clinical Trial

Well, just got back from my 6 month check in and am told I have to go off the drug. Blood work and Ekg are great but my muga dropped from 68 to 42. Protocol says off drug for 3 weeks then redo the...

Forum: Clinical Trials

05-02-2010, 04:15 PM

Replies: 104

Neratinib Clinical Trial

Views: 38,337

Posted By KRISS

Re: Neratinib Clinical Trial

Hi Ladies and welcome to those of you who are just starting. I am in week 20 and doing great! The diarrhea is still a daily event but every now and then I get a slow day, haha. Savta I was the...

Forum: Clinical Trials

02-19-2010, 06:16 AM

Replies: 104

Neratinib Clinical Trial

Views: 38,337

Posted By KRISS

Re: Neratinib Clinical Trial

Hang in there Bethany. I did well on the 5 pill dose and in fact going to ask to go back to that. Tired of feeling "not right". The GI system is constantly on the go making noises and causing...

Forum: Clinical Trials

02-05-2010, 04:07 PM

Replies: 104

Neratinib Clinical Trial

Views: 38,337

Posted By KRISS

Re: Neratinib Clinical Trial

Hello Ladies
Sorryit took me so long to tell you about my 1 month visit. Had a nasty infection that kept me in bed but doing great now. All my blood work looked great as well as my ekg. They...

Forum: Clinical Trials

01-15-2010, 06:03 AM

Replies: 104

Neratinib Clinical Trial

Views: 38,337

Posted By KRISS

Re: Neratinib Clinical Trial

Well I'm on day 12 of my resart at 200mg and for the last 2 days my life has been almost normal. Only going to the bathroom 2x a day. Wow. I take my pills at night as well Patty. See the doc on...

Forum: Clinical Trials

01-09-2010, 09:56 AM

Replies: 104

Neratinib Clinical Trial

Views: 38,337

Posted By KRISS

Re: Neratinib Clinical Trial

becuase I have not been eating well during this I tried to take supplements as well as Ensure. Both caused be to vomit which I never did during chemo! I always thought I was pretty tough but this...

Forum: Clinical Trials

01-08-2010, 02:20 PM

Replies: 104

Neratinib Clinical Trial

Views: 38,337

Posted By KRISS

Re: Neratinib Clinical Trial

Wow, at least I know I'm not alone. I have my 1 month on the 18th and am very interested to see what my levels are. Will the increase your dose again after some time or will you always stay at the...

Forum: Clinical Trials

01-08-2010, 10:56 AM

Replies: 104

Neratinib Clinical Trial

Views: 38,337

Posted By KRISS

Re: Neratinib Clinical Trial

I took the 1st dose at bedtime and the symptoms started first thing in the morning. By the 3rd day it was unbearable. They started me again on Monday and dropped my dose to 200mg. I started the...

Forum: Clinical Trials

12-23-2009, 11:23 AM

Replies: 104

Neratinib Clinical Trial

Views: 38,337

Posted By KRISS

Re: Neratinib Clinical Trial

Thanks ladies for the support. After going to the bathroom 37 times in a 24 hour period and vommiting they took me off the drug for 10 days. After one missed dose I feel like a new person, almost...

Forum: Clinical Trials

12-19-2009, 06:07 AM

Replies: 104

Neratinib Clinical Trial

Views: 38,337

Posted By KRISS

Re: Neratinib Clinical Trial

I just started this trial on Monday and am not having that good of time. The diarrhea is uncontrollable for me even with prescription drugs. They say they will probably either cut my dose or take...

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