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Search: Posts Made By: Lien
Forum: her2group 05-26-2019, 07:22 AM
Replies: 111
Views: 13,288
Posted By Lien
Re: ZW25 clinical trial - day one

Oh Flori, of course the fear kicks in. And although we both know there could be lots of other explanations for your symptoms, the one we fear most jumps up and takes over. Holding you in my thoughts...
Forum: her2group 03-06-2019, 09:49 AM
Replies: 24
Views: 3,488
Posted By Lien
Re: Aphasia?? First symptom brain mets???

I only saw this today, or I would have replied straight away. Sounds like a migraine attack to me. Have had them since I was 13, and over the years symptoms changed and changed back. They depend on...
Forum: her2group 03-03-2019, 08:46 AM
Replies: 111
Views: 13,288
Posted By Lien
Re: ZW25 clinical trial - day one

Wondering too. How are you?
Forum: her2group 01-06-2019, 11:28 AM
Replies: 111
Views: 13,288
Posted By Lien
Re: ZW25 clinical trial - day one

Hi Flori,
Just checking how you are doing. Drop us a line if and when you feel like it.

Love
Jacqueline
Forum: her2group 11-01-2018, 08:39 AM
Replies: 10
Views: 3,538
Posted By Lien
Re: Chemo Not Needed for Most Early Breast Cancer: TAILORx

As I live in the Netherlands, things are done differently here. I was borderline Her2 positive and Herceptin was only available for metastatic disease at the time. I had radiotherapy & 5 years of...
Forum: her2group 09-24-2018, 07:39 AM
Replies: 111
Views: 13,288
Posted By Lien
Re: ZW25 clinical trial - day one

Hang in there, Flori! Hope the new drug will make your horizon shine bright before you. Sending hugs for the hard moments. Use as needed.
Forum: her2group 04-01-2018, 03:06 PM
Replies: 39
Views: 9,559
Posted By Lien
Re: Kadcyla n me

Hi Flori,
That sounds really tough. Can't blame you for wanting to discontinue this treatment if the scans are not so great. Still hoping the SE's will subside with subsequent cycles and scans will...
Forum: her2group 03-12-2017, 11:16 AM
Replies: 7
Views: 4,359
Posted By Lien
Re: Oh come on now....

After my surgery I had a huge infection in my scar tissue. It was very painful and I worried about it a lot. Then my oncologist told me that having an infection in the area actually may be...
Forum: her2group 12-16-2016, 03:44 PM
Replies: 40
Views: 13,198
Posted By Lien
Forum: her2group 09-14-2016, 04:33 AM
Replies: 12
Views: 5,158
Posted By Lien
Re: Just Starting Out and Scared To Death

Hi Grammy,

Of course you are scared and out of your depth. Hearing the words: "you have cancer" is a terrible experience. I really thought I was not going to see my kids grow up. They were 3, 8,...
Forum: her2group 08-18-2016, 08:15 AM
Replies: 11
Views: 5,160
Posted By Lien
Re: 10 years and in trouble

Hi Michka,

Sorry to hear you have some progression in your liver and perhaps spine. You might also want ti look into trials in the Netherlands, England and Germany. I can help you with the first...
Forum: her2group 07-31-2016, 08:04 AM
Replies: 10
Views: 3,821
Posted By Lien
Re: Can anybody help please?

Many of us go through the same stages. Especially when you have a business to run and 4 kids to take care of, you may go into survival mode and when you finally, finally feel things are getting under...
Forum: her2group 07-31-2016, 07:53 AM
Replies: 18
Views: 4,508
Posted By Lien
Re: Progress Report from Ceesun!

Excellent news! Hope you will be able to go back to just Vit H and have your hair grow back.
Forum: her2group 07-28-2016, 10:23 AM
Replies: 13
Views: 4,315
Posted By Lien
Re: Anybody taken tamoxifen after 10years of arimidex?

Christal ball, pesky autocorrect set to Dutch language...
Forum: her2group 07-28-2016, 10:22 AM
Replies: 13
Views: 4,315
Posted By Lien
Re: Anybody taken tamoxifen after 10years of arimidex?

Why would you want to keep taking anything after 10 years? Did you have advanced stage disease? Other risk factors? I had 5 years of Arimidex and decided to quit, as the risk reduction after that was...
Forum: her2group 06-22-2016, 11:54 AM
Replies: 72
Views: 27,097
Posted By Lien
Re: I think I'm in trouble!

What a journey! Any results yet? It's all very intriguing.
Forum: her2group 01-03-2016, 07:21 AM
Replies: 5
Views: 3,305
Posted By Lien
Re: Advice From the Group

In my country, the Netherlands, Europe, where we have similar outcomes to your country, we have the following schedule:
Checkups every three months for the first 6 months. Then twice a year until...
Forum: her2group 12-15-2015, 03:10 PM
Replies: 42
Views: 19,195
Posted By Lien
Re: Karen has moved on

Thank you for letting us know. It's hard to grasp that she's gone. She was so very much alive. Hugs to all who loved her, laughed with her, felt her warmth, enjoyed her intelligence and shared a part...
Forum: her2group 10-04-2015, 12:41 PM
Replies: 7
Views: 3,247
Posted By Lien
Re: "why did I get breast cancer" starting to be answered & it seems to be 80% bad lu

I guess we want control over our lives and health. That makes life less scary. I remember traveling in Peru and Equador, in 1983, where locals seemed indifferent to the dangers of diseases and...
Forum: her2group 09-13-2015, 11:55 AM
Replies: 9
Views: 2,468
Posted By Lien
Re: Not sure what to do about surgery

Hi Mama Bexar,

Glad you have that behind you. Clear margins and negative nodes are very good news. It seems to me that you have an excellent chance of never having to deal with breast cancer...
Forum: her2group 08-20-2015, 09:12 AM
Replies: 0
Views: 1,407
Posted By Lien
Toupim & post-surgery camisoles

Hi all,

As I was browsing through my Facebook friends, I discovered that someone I used to know has developed the Toupim, a very comfortable hairpiece that isn't itchy or uncomfortable. She...
Forum: her2group 08-16-2015, 12:08 PM
Replies: 17
Views: 28,738
Posted By Lien
Re: A Special Note on Christine's Birthday, From Her Daughter

Dear Danielle and Debra,

Your Mom and Dad made a difference. Because of them, so many women and men feel less afraid, less alone and more hopeful during the toughest time of their lives. Their...
Forum: her2group 08-11-2015, 02:08 PM
Replies: 11
Views: 2,318
Posted By Lien
Re: Melanoma

Hi Janis,

Not fun, this. My best friend is a dermatologist and she says there are quite a few new treatments that are keeping more people recurrence-free after a melanoma diagnosis. So it seems...
Forum: her2group 08-11-2015, 02:04 PM
Replies: 12
Views: 2,367
Posted By Lien
Re: Looking for advice and suggestions please

What a scare! I hope the WBR kills those mets fast. You will not be the first to beat this!

Love

Jacqueline
Forum: her2group 08-05-2015, 02:55 AM
Replies: 32
Views: 4,671
Posted By Lien
Re: Going back on Abraxane

Hi Amy,

I'm extremely sensitive to molds too. I found that drying out & spraying the afflicted area with a borax solution really helps. Glad you found a way to deal with it. Often these allergies...
Showing results 1 to 25 of 500

 
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