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Search took 0.01 seconds. Search: Posts Made By: Lisa1962
Forum: her2group 09-17-2012, 07:27 AM
Replies: 25
Views: 3,605
Posted By Lisa1962
Re: Is there benefit in surgery for stage iv's

Hi Vonny -
I was diagnosed with spine mets at my initial diagnosis - so I was stage IV from the beginning. I was 42. The standard back in 2004 was no surgery for Stage IV but the thinking has been...
Forum: her2group 09-14-2011, 07:35 AM
Replies: 27
Views: 4,708
Posted By Lisa1962
Re: How was your HER2 BC first found?

March of 04 I had a clear mammogram - by November I had a lump which had already spread to my spine... I had some fast-growing cancer - I've always liked to excell at what I do....
Forum: her2group 09-06-2011, 01:11 PM
Replies: 7
Views: 2,339
Posted By Lisa1962
Re: First diagnosis stage 4

I was first diagnosed at Stage IV with Mets to the bone as well.

I never received traditional chemo - I had herceptin and hormonal treatments (my cancer was also ER/PR+) and it's been a bit over...
Forum: her2group 07-07-2011, 08:30 AM
Replies: 12
Views: 1,917
Posted By Lisa1962
Re: Stage 4 Folk - Urgent Survey!

Just took it! Thanks for posting the link.
Forum: her2group 04-25-2011, 08:10 AM
Replies: 5
Views: 1,292
Posted By Lisa1962
Milestone infusion - #100!

It's been a long while since I've posted here, but this site was so helpful when I was diagnosed over 6 years ago.

On 5/27/11 I will have my 100th infusion of Herceptin.... (#99 will be on 5/6)...
Forum: her2group 06-30-2008, 09:51 AM
Replies: 17
Views: 1,793
Posted By Lisa1962
Dr. Tousimis is so efficient and smart - she even...

Dr. Tousimis is so efficient and smart - she even does pregnancy well - she was perfectly tiny with a little ball in front of her - it's no wonder you didn't notice two months ago.
If your friend in...
Forum: her2group 06-29-2008, 01:55 PM
Replies: 17
Views: 1,793
Posted By Lisa1962
JSH I remember my dad having billing...

JSH

I remember my dad having billing problems with Sloan. After he died my step mom actually paid some things she didn't need to - just to be done with them.

I just saw Dr. Tousimis at the...
Forum: her2group 06-28-2008, 09:13 AM
Replies: 17
Views: 1,793
Posted By Lisa1962
I'm in Westfield. My oncologist is Dr. Bonni...

I'm in Westfield. My oncologist is Dr. Bonni Gearhart in the Cancer Center at Overlook.

The surgeon who performed my mastectomy is in NYC - Dr. Eleni Tousimis - she works out of NY...
Forum: her2group 02-23-2008, 07:18 PM
Replies: 3
Views: 1,035
Posted By Lisa1962
If I infuse too quickly...

I cough and cough and cough

I find if I let the infusion last for about an hour and a half, the coughing doesn't start and I'm fine. It took a while to discover this - at first I was being...
Forum: her2group 08-04-2007, 03:02 PM
Replies: 14
Views: 2,101
Posted By Lisa1962
Like Lala two posts above me I was fine with all...

Like Lala two posts above me I was fine with all the various contrasts - PET, CT, MRI, MUGA and then one day I broke out in hives right after a CT scan. ALL. OVER - I was an itchy crazy person - but...
Forum: her2group 08-01-2007, 07:27 AM
Replies: 30
Views: 3,725
Posted By Lisa1962
I've been thinking about this for 2.5 years

When I first saw the surgeon with my lump we immediately spoke of mastectomy and reconstruction - it was all so overwhelming and there was so much information.

Well, it turned out that I was...
Forum: her2group 07-03-2007, 06:40 AM
Replies: 14
Views: 1,989
Posted By Lisa1962
I wondered why I only got cramps at night - until...

I wondered why I only got cramps at night - until I realized that I was getting them during the daytime also - but usually recognized the signs and did things to stop them before they got too bad. ...
Forum: her2group 07-02-2007, 09:14 AM
Replies: 14
Views: 1,989
Posted By Lisa1962
I had really bad cramps in the beginning - I'm...

I had really bad cramps in the beginning - I'm over the 2 year mark - and they are still happening, but not as bad. I'm not sure if it is because my body has gotten used to the Herceptin - or if I...
Forum: her2group 03-29-2007, 06:07 AM
Replies: 4
Views: 1,472
Posted By Lisa1962
I was on Lupron and Femara until December '06, I...

I was on Lupron and Femara until December '06, I had the same type of pain - joint/muscle aches everywhere - the hormone rollercoaster slowed down a bit - but I was still getting hot flashes.

I...
Forum: her2group 10-31-2006, 06:46 AM
Replies: 31
Views: 4,984
Posted By Lisa1962
I too suffer from severe muscle and joint pain -...

I too suffer from severe muscle and joint pain - but I've stopped mentioning them to my doctor - she looks at the medications I am on and just tells me that they're not side-effects...

I'm going...
Forum: her2group 09-13-2006, 11:38 AM
Replies: 15
Views: 2,412
Posted By Lisa1962
My initial diagnosis was Stage IV - I found the...

My initial diagnosis was Stage IV - I found the lump in November of 1004 - and so far I am still NED

I had a clean mammogram in March of 2004 - in that small space of time my tumor grew large...
Forum: her2group 08-21-2006, 12:38 PM
Replies: 6
Views: 1,435
Posted By Lisa1962
I just spent a week at LBI myself! I want more...

I just spent a week at LBI myself! I want more shrimp from Pinky's and fudge from Country Kettle and fish from Beach Haven Fishery.....

ahem - back to the topic at hand

I go to a breast...
Forum: her2group 08-15-2006, 08:38 AM
Replies: 4
Views: 1,560
Posted By Lisa1962
I have trouble knowing which side effects are...

I have trouble knowing which side effects are from which treatment - because I started them all at the same time - but I do know that I felt HORRIBLE after my first few Zometa infusions and that...
Forum: her2group 08-13-2006, 01:29 PM
Replies: 33
Views: 2,724
Posted By Lisa1962
I started getting my Herceptin and Zometa...

I started getting my Herceptin and Zometa treatments in May of '05 thru an IV in my veins - after only 5 treatments I could no longer use my left arm - the veins didn't collapse (the drugs are not...
Forum: her2group 05-30-2006, 05:31 AM
Replies: 45
Views: 9,091
Posted By Lisa1962
My initial diagnosis was Stage IV - mets to spine...

My initial diagnosis was Stage IV - mets to spine and liver - I take Femara and get avery 3 week infusions of Herceptin (I also get Zometa to protect my bones)

I was NED after 2 treatments
Forum: her2group 05-24-2006, 12:52 PM
Replies: 9
Views: 1,629
Posted By Lisa1962
I had the CTC test - Zero! BRACA testing came...

I had the CTC test - Zero!
BRACA testing came out negative
Forum: Herceptin / Tykerb 05-17-2006, 08:29 AM
Replies: 689
Views: 290,694
Posted By Lisa1962
RB - I've noticed your posts about the omega 3s...

RB - I've noticed your posts about the omega 3s and 6s

I've been overwhelmed with work and mommying - but will be taking an extended sick-leave beginning mid-June and will be able to focus on...
Forum: Herceptin / Tykerb 05-17-2006, 08:29 AM
Replies: 182
Views: 27,493
Posted By Lisa1962
RB - I've noticed your posts about the omega 3s...

RB - I've noticed your posts about the omega 3s and 6s

I've been overwhelmed with work and mommying - but will be taking an extended sick-leave beginning mid-June and will be able to focus on...
Forum: Herceptin / Tykerb 05-17-2006, 07:41 AM
Replies: 689
Views: 290,694
Posted By Lisa1962
Coming into this late...

I too get that "look" from the onc when I mention symptoms - YES I know that chemo symptoms are much worse - but I will be on herceptin indefinitely and these are definite QOL issues

Timeline...
Forum: Herceptin / Tykerb 05-17-2006, 07:41 AM
Replies: 182
Views: 27,493
Posted By Lisa1962
Coming into this late...

I too get that "look" from the onc when I mention symptoms - YES I know that chemo symptoms are much worse - but I will be on herceptin indefinitely and these are definite QOL issues

Timeline...
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