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Forum: her2group 08-26-2008, 10:32 AM
Replies: 36
Views: 4,410
Posted By Lee
My oncologist has been running this test every 3...

My oncologist has been running this test every 3 months on me, and we just recently decided to use the results of this test to determine whether or not to run scans (as opposed to doing the scans...
Forum: her2group 09-25-2007, 06:58 AM
Replies: 25
Views: 2,883
Posted By Lee
Kriss - If you get a port in your chest, it is...

Kriss -
If you get a port in your chest, it is completely under the skin so no special care is needed. It just looks like a bump on your chest. When the port is accessed, they have to stick it...
Forum: her2group 09-18-2007, 08:11 AM
Replies: 3
Views: 1,099
Posted By Lee
I'm going every 3 wks, and I've been NED for...

I'm going every 3 wks, and I've been NED for about 18 months now. My onc said that the research backs up that there is really no difference between every week and every 3 week infusions.

It is...
Forum: her2group 09-12-2007, 08:54 AM
Replies: 5
Views: 1,669
Posted By Lee
I had 3 spots on my liver and 1 on my pelvis,...

I had 3 spots on my liver and 1 on my pelvis, which disappeared pretty quickly after starting chemo in 10/05 (Carboplatin, Taxol, Herceptin). I've been in remission ever since chemo ended on 4/06,...
Forum: her2group 07-12-2007, 11:57 AM
Replies: 6
Views: 1,105
Posted By Lee
Why would she stay on chemo if the mets...

Why would she stay on chemo if the mets disappeared? I had 3 small liver mets which went away with 6 months of chemo/herceptin, and since then I've been on herceptin alone. No recurrence.
...
Forum: her2group 07-11-2007, 12:16 PM
Replies: 26
Views: 2,708
Posted By Lee
My oncologist uses this test every 4 months or...

My oncologist uses this test every 4 months or so, when I am in between scans.
Forum: her2group 06-08-2007, 06:58 AM
Replies: 16
Views: 1,904
Posted By Lee
I take 200mg of CoQ10.

I'm on Herceptin indefinitely, every 3 wks, and so far my MUGA has been great. My onc is fine with me taking it (and all the other supplements I take!)
Forum: her2group 04-19-2007, 11:33 AM
Replies: 14
Views: 1,363
Posted By Lee
Mine is infused in 30 mins.

I get Herceptin every 3 weeks. I've had no problems with the faster infusion time. My onc was originally on the 90-minute regimen, but I asked him if we could condense that, so we went to 1 hr the...
Forum: her2group 01-29-2007, 07:50 AM
Replies: 8
Views: 1,353
Posted By Lee
I had scans while undergoing chemo....

....and I was getting chemo weekly. It was never an issue. My onc wanted to be sure the chemo was working, and the only way to check that is to do scans.

Can you have your onc's office call to...
Forum: her2group 01-09-2007, 11:16 AM
Replies: 14
Views: 1,262
Posted By Lee
They will want to access the port from the top....

...so its easiest to wear a v-neck, a shirt with buttons, or something with a zipper. I often work a tank top with a zippered hoodie over it, and yoga pants. Something comfortable, for sure!
...
Forum: her2group 01-03-2007, 02:01 PM
Replies: 6
Views: 2,763
Posted By Lee
My onc's office only mixes up as much as needed,...

My onc's office only mixes up as much as needed, and uses saline to do it. They never pre-mix the herceptin or use some that is left over from another preparation.
Forum: her2group 10-10-2006, 07:03 AM
Replies: 7
Views: 1,321
Posted By Lee
One word of caution on this....

....while many organizations are donating a decent amount of profits of their "pink" merchandise to breast cancer research organizations, this is not the case for all of them. Take a look at...
Forum: her2group 10-06-2006, 09:21 AM
Replies: 19
Views: 1,844
Posted By Lee
That is such wonderful news, Lisa! I'm so...

That is such wonderful news, Lisa!

I'm so happy your intuition was off. Hopefully they can figure out what else is going on and get it resolved soon.

Now go out and enjoy your weekend!
Forum: her2group 09-18-2006, 12:29 PM
Replies: 15
Views: 2,108
Posted By Lee
Hey Natalie, something to consider.....

If there is a good chance you are stage IV, why are you stopping herceptin? I was diagnosed as stage IV last fall, and I'm currently in remission, but I am going to continue on the herceptin...
Forum: her2group 09-17-2006, 03:09 PM
Replies: 15
Views: 2,420
Posted By Lee
I was diagnosed as Stage IV from the start.

My docs initially thought I was stage II (I had 4/22 nodes positive) but the PET and CT scans I had before beginning treatment showed mets to the liver and pelvis. I was initially diagnosed 9/05 and...
Forum: her2group 09-17-2006, 03:05 PM
Replies: 11
Views: 1,758
Posted By Lee
It's standard procedure in my onc's office.

Before beginning treatment, I had a PET scan as well as a CT of the chest, abdomen and pelvis. This is how we discovered that, instead of being stage II as we thought, I was stage IV.

Seems to...
Forum: her2group 08-17-2006, 10:23 AM
Replies: 5
Views: 1,109
Posted By Lee
My Onc told me....

....that the recommendation from Genentech was to do a MUGA or echo every 3 months. I think he previously only did them every 6 months or so when his patients had no symptoms, but Genentech revised...
Forum: her2group 08-02-2006, 08:49 AM
Replies: 21
Views: 3,353
Posted By Lee
It takes a looooong time.

I finished up chemo on April 6th and my hair is only about 3/4 inch long. I continued to wear hats for a good 2 months following my last chemo, and probably would have gone longer if it wasn't...
Forum: her2group 07-26-2006, 06:35 PM
Replies: 15
Views: 1,933
Posted By Lee
Glad you got good news!

Nothing like a clean scan to put your mind at ease! I hope your headaches get better soon.
Forum: her2group 07-26-2006, 06:34 PM
Replies: 6
Views: 1,255
Posted By Lee
Herceptin *is* FDA approved.

It was approved by the FDA back in 1998.

There have been some studies comparing weekly vs. every-three-week doses of herceptin, and none of them (so far) show any kind of statistical difference...
Forum: her2group 07-13-2006, 01:28 PM
Replies: 46
Views: 4,245
Posted By Lee
I'm so very sorry for your loss, Sandy.

What an awful thing to have happen. Thoughts & Prayers are with you and your family.
Forum: her2group 07-13-2006, 01:27 PM
Replies: 7
Views: 1,402
Posted By Lee
Welcome!

This is a very helpful site, and there are wonderful people on it. I have learned a TON of good information, including many things I have shared with my oncologist. He's also impressed with the...
Forum: her2group 07-13-2006, 12:32 PM
Replies: 3
Views: 967
Posted By Lee
Good CT and MUGA results today!

I have been off chemo and on every-three-week herceptin since April; I was pronounced NED at that time. So this was my first follow-up CT since chemo was over. Good news to report - I'm still NED!...
Forum: her2group 07-10-2006, 08:49 AM
Replies: 33
Views: 2,826
Posted By Lee
Fantastic!

You are an inspiration to all of us. What great news!
Forum: her2group 06-26-2006, 11:25 AM
Replies: 38
Views: 3,858
Posted By Lee
I stayed relatively the same.

I maybe lost 2-3 lbs during chemo, and now that I'm just on herceptin and really watching what I eat & exercise, I've lost another 10 lbs or so.

I started out about 15 lbs overweight, so I'm...
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