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Search took 0.02 seconds. Search: Posts Made By: conomyself
Forum: her2group 02-05-2017, 08:21 AM
Replies: 34
Views: 10,863
Posted By conomyself
Re: Perjeta Side-Effects

High pH water resolved the issue for me. 9.5 or higher pH. I drink at least a quart of it per day and it relieves both water retention and diarrhea.
Forum: her2group 01-05-2017, 01:02 PM
Replies: 12
Views: 4,462
Posted By conomyself
Re: Stage 4, 4 1/2 year update - still stable/got divorced/dating with a port

"And I don't think my diagnosis is or should be a deal breaker. I'm certainly not going to make that decision for the new friend or lover. They can decide for themselves." I like that Amy!

And...
Forum: her2group 01-05-2017, 09:34 AM
Replies: 12
Views: 4,462
Posted By conomyself
Re: Stage 4, 4 1/2 year update - still stable/got divorced/dating with a port

Hi Tiffany, I am so glad for you that you can do most of what you did before :).

I am not saying that being in a relationship is better than not being in one, or that it's something people should...
Forum: her2group 01-01-2017, 07:47 AM
Replies: 12
Views: 4,570
Posted By conomyself
Re: One Simple Improvement

A gel filled ergo mat helped me with doing dishes and cooking. But I feel it's better yet to eradicate dish washing :)
Forum: her2group 01-01-2017, 07:36 AM
Replies: 12
Views: 4,462
Posted By conomyself
Re: Stage 4, 4 1/2 year update - still stable/got divorced/dating with a port

Yes Catherine I agree with you and Steph. I try to reserve my energy to fuel my dreams, not to serve others' convenience :)
Forum: her2group 12-28-2016, 07:23 AM
Replies: 12
Views: 4,462
Posted By conomyself
Re: Stage 4, 4 1/2 year update - still stable/got divorced/dating with a port

Yes Steph, i feel that precisely is the key. Thank you for the reply.
Forum: her2group 12-27-2016, 12:18 PM
Replies: 12
Views: 4,462
Posted By conomyself
Stage 4, 4 1/2 year update - still stable/got divorced/dating with a port

Hi everyone, I haven't been on for a long time -- I have a lot of news I'd like to share.

A lot has happened since my initial dx - stage 4, *very* bad... I had so much cancer I went to see a...
Forum: her2group 12-27-2016, 10:03 AM
Replies: 68
Views: 30,987
Posted By conomyself
Re: Boosting Your Immune System - share your ideas

Happiness.

https://www.scientificamerican.com/article/how-happiness-boosts-the-immune-system/
Forum: her2group 12-27-2016, 09:55 AM
Replies: 40
Views: 16,341
Posted By conomyself
Re: 15 years stage IV - no drugs in 8yrs - still NED

Keep on rockin' Steph!! Thanks for being you and inspiring us!!
Forum: her2group 12-27-2016, 09:52 AM
Replies: 45
Views: 23,136
Posted By conomyself
Re: In Praise of Perjeta

I have been stable on Herceptin and Perjeta alone for 4 years. I also use medical cannabis, so maybe that is helping but there is no way for me to be certain.

I used to have chronic diarrhea also...
Forum: her2group 03-25-2014, 12:59 PM
Replies: 8
Views: 1,673
Posted By conomyself
Re: Steroids and sleeping

I know exactly what you mean. Everyone's different but for me Xanax did not put a dent in steroid insomnia, but also I only took a .5 gram dosage.

The first night it happened the Xanax didn't...
Forum: her2group 03-09-2014, 07:03 PM
Replies: 12
Views: 2,308
Posted By conomyself
Re: Hi I'm new

I would check it at home, and then if I thought it was high make an appointment with my primary care doc because the nurse takes blood pressure manually. That's the only way that I really trust.
...
Forum: her2group 03-09-2014, 06:46 PM
Replies: 14
Views: 3,047
Posted By conomyself
Re: Really scared please help

In January I spoke to a top notch breast cancer only oncologist, my second opinion specialist.

I am on Herceptin and Perjeta and it is keeping me stable. I have been avoiding starting Tamoxifen...
Forum: her2group 03-09-2014, 06:27 PM
Replies: 6
Views: 2,406
Posted By conomyself
Re: Herceptin and Perjeta

I get very slight flu like symptoms the day of infusion. Do you get premeds? I don't but I know my friend needs pre-treatment with Benadryl. Or maybe just taking a Benadryl when you get home might...
Forum: her2group 01-19-2014, 08:56 AM
Replies: 6
Views: 2,863
Posted By conomyself
Re: Occult (silent, asymptomatic) brain metastases in her2+ patients

Thank you Steph. I make sure I get brain scans, one way or another I do what I have to do to get the doctor to order them.
Forum: her2group 01-09-2014, 10:38 AM
Replies: 35
Views: 6,929
Posted By conomyself
Re: Tsh low -- what does it mean?

This is great Andi! And I'm glad you found an endo you like.

Love,

Rachael
Forum: her2group 12-13-2013, 02:23 PM
Replies: 1
Views: 1,269
Posted By conomyself
Re: Juno, Drs. Ridell and Press, Radioimmunotherapty

Thank you Karen! I'm so excited about this therapy - I think it's the biggest breakthrough out there!

I read in the article that they have plans to try it on lung cancer in 2014 and then other...
Forum: her2group 12-11-2013, 10:41 PM
Replies: 7
Views: 1,673
Posted By conomyself
Re: More Hope of a Cure!

Thank you Andi, for the link and for the compliment :) :) :)

http://www.upworthy.com/doctors-take-a-long-shot-and-inject-modified-hiv-into-dying-girl-the-reason-why-will-amaze-you?g=2

I think...
Forum: her2group 12-11-2013, 03:32 PM
Replies: 7
Views: 1,673
Posted By conomyself
Re: More Hope of a Cure!

Andi, wasn't it you who posted the video of a doctor who did a treatment on a little boy with leukemia? It was a lot like this, the boy passed out for a couple days straight and then woke up without...
Forum: her2group 12-11-2013, 11:17 AM
Replies: 17
Views: 2,757
Posted By conomyself
Re: Getting the ball rolling

This sounds like such an exciting and promising treatment, Penny! I think it will be just the thing for you!

Love,

Rachael
Forum: her2group 12-11-2013, 11:13 AM
Replies: 50
Views: 6,430
Posted By conomyself
Re: Hema is an angel now

I'm so sorry Pibikay. My thoughts and prayers are with you.

Love,

Rachael
Forum: her2group 12-08-2013, 08:51 PM
Replies: 7
Views: 1,673
Posted By conomyself
More Hope of a Cure!

This is amazing and exciting... I hope they start trying out this treatment on solid tumors soon!

http://www.cnn.com/2013/12/07/health/cohen-cancer-study/index.html

Love,

Rachael
Forum: her2group 11-23-2013, 07:08 PM
Replies: 189
Views: 32,385
Posted By conomyself
Re: NEDenise Has Died

Andi, that is an amazing, wonderful idea!!!

Denise said that she wanted to live to write a book..........well, maybe SHE DID!!!


Mtngirl, your post was so beautiful I cried (again).


Love,
Forum: her2group 11-23-2013, 12:28 AM
Replies: 35
Views: 39,743
Posted By conomyself
Re: ER-/PR- HER2 staging poll

Hi Astrid, sorry I didn't see the ER-/PR-. I voted, but I am triple positive -- maybe you can remove my vote? I selected the 5th option, diagnosed at stage 4.

Rachael
Forum: her2group 11-23-2013, 12:22 AM
Replies: 6
Views: 1,981
Posted By conomyself
Re: Stage IV and Metastatic members-do you have weekly or every three week treatments

Caroline, I am also on a 3 week schedule.

Here is the U.S. FDA Herceptin label, maybe there is one for your country too?
...
Showing results 1 to 25 of 100
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