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Forum: her2group 04-15-2010, 02:32 PM
Replies: 16
Views: 2,316
Posted By BarbM
Re: Hot Off The Press T-DM1

Whew!!!!!!.....two reasons to breath easier today..this announcement and I just had a thoracentesis......Good day! Happy me!
Forum: her2group 02-24-2010, 01:13 PM
Replies: 12
Views: 3,072
Posted By BarbM
Re: Ixempra? Any success stories/ experience

I have had the hoarseness with this combo, too. I also have had a shortness of breath. So, this past Monday (my 2nd every 3 week Ixempra) we dropped the Herceptin to see if it helps. Sure enough, the...
Forum: her2group 02-18-2010, 11:14 PM
Replies: 12
Views: 3,072
Posted By BarbM
Re: Ixempra? Any success stories/ experience

I've had one treatment of Ixempra on the 1st of Feb. My 2nd will be Monday. It hasn't been too bad. For about the first 7 days, I had small shooting pains throughout my body with just a couple days...
Forum: Herceptin / Tykerb 01-10-2010, 01:38 PM
Replies: 13
Views: 2,897
Posted By BarbM
Re: Tykerb SE's -OUCH!!

JML,
You sound like you had the same situation as I....I was on Tykerb/Xeloda for 6 mos and progressed. Went off Herceptin, too. I am adding back the Herceptin tomorrow and continuing the Tykerb. I...
Forum: her2group 01-06-2010, 11:15 PM
Replies: 70
Views: 11,047
Posted By BarbM
Re: Joy is at peace now

I am so sorry to hear this news....she was an inspiration to us all....sadness.......
Forum: her2group 01-06-2010, 11:11 PM
Replies: 9
Views: 2,131
Posted By BarbM
Re: Breast Cancer Gene Linked To Disease Spread Discovered

This is big news!!!! Maybe explains being stage 4 right from the start AND getting minimal mileage out of chemos. I would love to know....the drug to switch it off can't come quick enough!
Forum: her2group 10-31-2009, 01:16 PM
Replies: 8
Views: 1,616
Posted By BarbM
Re: An Open Conversation on Metastatic Breast Cancer

Wow! How exciting! I hope it's a cure in 5 years as well! Or sooner!!!!!!
I can't wait to catch the link when it's available.
Thx for the info,
Barb
Forum: her2group 10-19-2009, 10:36 AM
Replies: 112
Views: 11,886
Posted By BarbM
Re: ~Mighty Oak Has Earned His Wings And Halo...

So sorry for your loss and the loss of another to this terrible disease. You will be together again, I am sure of it..and, yes, he will be around you and yes, will appear from time to time in ways...
Forum: her2group 09-30-2009, 04:33 PM
Replies: 5
Views: 1,570
Posted By BarbM
Re: what next?

I have been on Tykerb/Xeloda for the last 3 months....my docs have said the next step for me is to add Navelbine to the mix. Hopefully, this will hold me until T-DM1 is available to the general...
Forum: her2group 09-30-2009, 04:26 PM
Replies: 24
Views: 3,129
Posted By BarbM
Re: Who else has a Power Port?

I've had my Power Port for over 2 years with no problems. Mine is in the same place as yours is. The only time it bothers me is when I want to wear a lower cut shirt. I haven't had any MRI's since it...
Forum: her2group 09-04-2009, 10:45 AM
Replies: 14
Views: 2,880
Posted By BarbM
Re: Update please on Joy

Still no news? Can anyone call her or her sister? Worry time......
Forum: her2group 09-04-2009, 09:19 AM
Replies: 14
Views: 2,046
Posted By BarbM
Re: HPV vaccine may cure BC

Hmmmm..had both the warts on fingers and near left knee when I was in high school...then the laser surgery for precancerous cells on my cervix at age 26....wasn't tested back then for HPV as I don't...
Forum: Herceptin / Tykerb 08-29-2009, 09:59 PM
Replies: 15
Views: 5,015
Posted By BarbM
Re: Xeloda and Tykerb tomorrow - side effects?

Alice,
It leaves my feet orangish, but it fades pretty fast. It's also very drying, so I use a lot of moisturizer (Bag Balm & Udderly Smooth). So far, so good...and this is coming from someone that...
Forum: Herceptin / Tykerb 08-28-2009, 01:44 PM
Replies: 15
Views: 5,015
Posted By BarbM
Re: Xeloda and Tykerb tomorrow - side effects?

I boil 1/4 of a cup of water, then add 1/8 cup of henna to the hot water and stir with a plastic spoon (should be the consistancy of tomato soup or a little thicker), then pour into a small plastic...
Forum: Herceptin / Tykerb 08-28-2009, 01:35 PM
Replies: 9
Views: 5,104
Posted By BarbM
Re: Xeloda red hot feet!

Henna leaves my feet kinda orangish-brown...and fades pretty fast. Sometimes I soak my feet in a bath with baking soda and epsom salts. That gets rid of the color from the henna and makes my feet...
Forum: Herceptin / Tykerb 08-27-2009, 06:54 PM
Replies: 9
Views: 5,104
Posted By BarbM
Re: Xeloda red hot feet!

Leslie,
Check out the thread 4 or 5 below this one about "Tykerb and Xeloda, side effects"....I have had good luck with henna.
I am also using Bag Balm at night with socks....and take 300 mg B6/day.
Forum: her2group 08-22-2009, 11:43 AM
Replies: 48
Views: 3,837
Posted By BarbM
Re: Remarkable news...

Flori,
Wonderful news for sure! This is starting out to be a great weekend for positive news! Keep it coming!!!!!!
~Barb
Forum: her2group 08-22-2009, 11:39 AM
Replies: 27
Views: 2,542
Posted By BarbM
Re: Liver Met - Gone!!!!

Gives us liver mets girls lots to feel good about!!!! Thanks for sharing the wnderful news!!!!
~Barb
Forum: Herceptin / Tykerb 08-22-2009, 11:35 AM
Replies: 15
Views: 5,015
Posted By BarbM
Re: Xeloda and Tykerb tomorrow - side effects?

I order mine from www.hennacaravan.com (http://www.hennacaravan.com). Also, I order Jamila. So far, it's working! :)
~Barb
Forum: Herceptin / Tykerb 08-16-2009, 12:26 PM
Replies: 12
Views: 4,558
Posted By BarbM
Re: Tykerb side effects??? Help, please

Went to Whole Foods today. I was confused. Apparently, Suki has changed the formula of Suki Facial Moisture Serum. It still has carrot, but they have removed the sandalwood and myrrh. It now also has...
Forum: Herceptin / Tykerb 08-01-2009, 12:34 AM
Replies: 15
Views: 5,015
Posted By BarbM
Re: Xeloda and Tykerb tomorrow - side effects?

I've been using henna for the last month for my hand/foot syndrome while on Xeloda. It's working great for my hands and feet...and I know how bad it can be while I was on Doxil without the henna....
Forum: her2group 07-19-2009, 02:56 PM
Replies: 47
Views: 5,205
Posted By BarbM
Hi Jennifer, Looks like Joy has had some mixed...

Hi Jennifer,
Looks like Joy has had some mixed response to the taxanes, but perhaps Abraxane might work.
Will keep Joy in my thoughts and prayers,
Barb
Forum: her2group 07-16-2009, 09:13 PM
Replies: 24
Views: 2,846
Posted By BarbM
Yes, Cathy just posted in bcmets.org that Esther...

Yes, Cathy just posted in bcmets.org that Esther is in hospice and mostly sedated now. I am so sad........
Forum: Herceptin / Tykerb 06-28-2009, 11:43 PM
Replies: 4
Views: 2,155
Posted By BarbM
Thanks Chris and Jackie for responding to my...

Thanks Chris and Jackie for responding to my question! Most of my questions are answered well before they are even a question in my mind by all of the knowledgeable people on this site. Thank you!...
Forum: Herceptin / Tykerb 06-28-2009, 04:58 AM
Replies: 4
Views: 2,155
Posted By BarbM
Muga Scan for Tykerb?

I'll be starting Tykerb as soon as I receive it in the mail....my Onc said that I will continue to have Muga scans. Is this customary and if so, is Tykerb as bad on the heart as Herceptin is?
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