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Search: Posts Made By: kk1
Forum: her2group 06-21-2021, 09:07 AM
Replies: 12
Views: 2,826
Posted By kk1
Re: Hello from Flori

Flori;


First, congratulations on the birth of your grandson! Second, thank you so much for posting today it is just the hope I need. After 10 years in remission and 18 years living with MBC I...
Forum: her2group 10-28-2019, 08:27 AM
Replies: 2
Views: 2,403
Posted By kk1
Re: Subcute Herceptin

Hi Jackie;


My center here in Miami just started subcutaneous Herceptin also. I am going to give it a try at the end of November. Please keep us posted on your experience. After 16 year of every...
Forum: her2group 03-28-2018, 11:53 AM
Replies: 16
Views: 12,579
Posted By kk1
Re: Anyone Stage IV De Novo With 10+ Years NED?

Next week I mark 14 years DX de Novo stage 4. Treatment history in signature.
Forum: her2group 03-21-2018, 09:35 AM
Replies: 5
Views: 5,002
Posted By kk1
Re: Chemo-Induced Osteoporosis:beating it naturally?

Hi;

I've been doing the Zometa every 6 months for ~ 12 years and it has definitely stabilized my Bone Density. Although I still unexpectedly broke a few ribs last year.

I was 42 when I started...
Forum: her2group 01-17-2018, 02:56 PM
Replies: 25
Views: 9,547
Posted By kk1
Re: Senior Member Check-In!

I have not visited this site in about 6 months and I am not sure why I decided to check-in today -- maybe it was a prod from Amy. I am sad to read of her passing I so admired her spirit.

I often...
Forum: her2group 04-03-2017, 12:08 PM
Replies: 10
Views: 5,710
Posted By kk1
Re: Heart Issues with Long Term Herceptin Use

Bunty;

I have been on Herceptin for 13 years without a problem until recently --- my last echo a few weeks ago suggested that I dropped LVEF about 10 points. I am normally in the mid 60% range. ...
Forum: her2group 09-12-2015, 11:46 AM
Replies: 8
Views: 3,156
Posted By kk1
Re: Pertuzumab not "cost effective"?!

where's the like button for mountain girl's comment! It is spot on in my opinion.
Forum: her2group 06-15-2015, 11:23 AM
Replies: 3
Views: 2,090
Posted By kk1
Re: Phase II MARIANNE trial results--T-DM1 treatment not superior to herceptin+taxane

Lani,

I am bit confused about these stage III Marianne trial results, and was really hoping for a clearer picture.

By progression free survival they report no difference between the arms. Yet...
Forum: her2group 03-18-2015, 03:59 PM
Replies: 22
Views: 6,010
Posted By kk1
Re: Stage IV. 3 years NED with Kadcyla/TDM1!

Congrats! you made my evening tonight reading that you are doing well.
Forum: Herceptin / Tykerb 02-13-2015, 10:57 AM
Replies: 3
Views: 7,078
Posted By kk1
Re: Does Tykerb + Xeloda cause headaches and GI issues

Hi;

From my experience with Tykerb and Xeloda at the same time, the side effects you listed are pretty normal as long as they are not extreme.

For the GI issues I found it was better to make...
Forum: her2group 02-04-2015, 12:32 PM
Replies: 8
Views: 1,902
Posted By kk1
Re: Sir-spheres on other lobe/suggestions needed

Penny,

Ask them to also put a support under the back of your knees, this will help relieve the pressure on your spine but the groin area will still remain flat as required.
Forum: her2group 01-21-2015, 08:09 AM
Replies: 13
Views: 2,696
Posted By kk1
Re: Ovaries are being retired...chemically. Need advice

Hi Europa;

I think you need more information on your ER+ status. You need to know the total score not just the 10% of cells stained. For example if 10% of the cells are very weakly stained then...
Forum: her2group 01-14-2015, 07:58 AM
Replies: 20
Views: 5,202
Posted By kk1
Re: Health Benefits of Tumeric

Debbie,
Sounds like a good recipe but I wanted to make a correction. Tumeric actually blocks the estrogen receptor it does not increase estogren, who ever made that statement must have been...
Forum: her2group 11-21-2014, 06:59 AM
Replies: 13
Views: 3,178
Posted By kk1
Re: Hey Steph and any others on Zometa

Thanks for asking this question! I have been on twice yearly zometa for over 10years without any problems, and did not realize the aff problem. I had thought it only applied to those taking it on the...
Forum: her2group 10-02-2014, 08:56 AM
Replies: 13
Views: 20,479
Posted By kk1
Re: "remarkable results" presented for adding Perjeta(pertuzumab)to Herceptin for Sta

Don't make those pictures smaller....they bring us all so much hope. You look so stunning on the right --it brings tears to my eyes knowing that after all you have been through you are able to look...
Forum: her2group 10-02-2014, 08:07 AM
Replies: 4
Views: 3,292
Posted By kk1
Re: Tykerb + Xeloda success stories

Hi;

I had good success with Tykerb, xeloda, and Herceptin as a triplette together. But at that time TDM1 and Perjeta were not around.

In theory Tykerb can cross the blood brain barrier. Note...
Forum: her2group 09-18-2014, 11:40 AM
Replies: 6
Views: 2,102
Posted By kk1
Re: Round 2 herceptin/projeta & quit my job..

Linn;
First I am so sorry to hear that you are stage IV but it sounds like giving your mind and body the space and time for the treatment to work is the right thing for now. With a stage IV DX it is...
Forum: her2group 06-22-2014, 04:05 PM
Replies: 52
Views: 8,632
Posted By kk1
Re: I'm NED

You Go Girl!! what a great graduation gift for all of you! Next mile stone your youngest's sons PhD!
Forum: her2group 03-27-2014, 12:26 PM
Replies: 4
Views: 1,411
Posted By kk1
Re: Next step

Maybe you should ask about adding Tykerb to the mix.

In regard to the scans might you be allergic to the contrast? Do you take and pre-meds (eg. steroids and antihistimine) prior to scans?
Forum: her2group 01-26-2014, 10:21 AM
Replies: 12
Views: 2,526
Posted By kk1
"I can’t go on. I’ll go on.” great editorial NY times

Next week will mark 5 years of continuous NED and and a month shy of 10 years living with metastatic disease to the liver...the article this morning in the NY times really struck a chord with me. "I...
Forum: her2group 08-15-2013, 08:29 AM
Replies: 3
Views: 1,617
Posted By kk1
Re: new review article on treatment of her2+ breast cancer by Dr Pegram

Here are the main points of the article

KEY POINTS
Level I evidence from multiple large, prospective, randomized, phase III clinical trials sup-
ports the use of trastuzumab in combination with...
Forum: her2group 07-16-2013, 06:05 PM
Replies: 40
Views: 4,460
Posted By kk1
Re: Brain MRI this morning

Just to clarify and expand (pun intended) on the issue of expanders versus implants and MRI-- Many of the expanders have special filling ports that are metallic so they are easy to detect (you...
Forum: her2group 05-31-2013, 08:06 AM
Replies: 7
Views: 1,189
Posted By kk1
Re: I have a plan!

Hi;

I'd definitely ask about weekly treatment versus the 21day cycle. As you can see from my profile I did the weekly treatment and was able to work the whole time and did not even lose all my...
Forum: her2group 05-10-2013, 12:19 PM
Replies: 2
Views: 1,299
Posted By kk1
Re: Neil Love's Research to Practice special edition on progress in trtng her2+brstca

Lani;

Here is the link
http://www.researchtopractice.com/sites/default/files/5mjc/5MJCSABCS2013/5/4/pdf/5MJC4-SABCS13_Downloadable.pdf

Anyone can become a member and get access for free
to...
Forum: her2group 03-27-2013, 09:36 AM
Replies: 37
Views: 4,763
Posted By kk1
Re: Question for liver metsters

Ann,

First I just want to say you're AWESOME. We have never met, but I love the way you write with such compassion, thoughtfulness, and intelligence.

So one thing I notice in your profile is...
Showing results 1 to 25 of 179

 
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