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Search: Posts Made By: gin-tx
Forum: her2group 09-20-2008, 10:35 AM
Replies: 45
Views: 3,986
Posted By gin-tx
Sorry I missed wishing you a happy birthday. You...

Sorry I missed wishing you a happy birthday. You have been a tremendous inspiration to me and hope you had a wonderful day and party.

ginkott1@aol.com
Forum: her2group 08-30-2008, 06:55 AM
Replies: 198
Views: 30,043
Posted By gin-tx
Smile Diagnosis and treatment

Dear Rhonda,

I tried to reply to your inquiry but couldn't get it to work. I have had bc twice, once in 95, had radiation only, then diag again in 2006, agressive Stage IV metastatic as it had...
Forum: Herceptin / Tykerb 08-22-2008, 05:35 PM
Replies: 689
Views: 290,148
Posted By gin-tx
Smile Reaction to herceptin

I am so sorry you had such unfortunate side affects to Herceptin and other drugs. I was diagnosed in 2006, second diagnosis, first in 1995, had lumpectamy and radiation, no chemo which I should have...
Forum: Herceptin / Tykerb 02-08-2008, 07:33 AM
Replies: 689
Views: 290,148
Posted By gin-tx
Smile problems with herceptin

Dear Kathy,

Am sorry you are having such problems with Herceptin. I have been on for 1 1/2 yrs, don't know how much longer I have for treatment, have not other drugs you were given so far. I...
Forum: her2group 12-26-2007, 06:22 PM
Replies: 198
Views: 30,043
Posted By gin-tx
Dear Rhonda, I was diagnosed in April 2006,...

Dear Rhonda,

I was diagnosed in April 2006, first diagnosis in Dec 1995. I was cancer free for over 10 yrs, then it came back more aggressive. Still getting herceptin with aredia (for bones) as...
Forum: Herceptin / Tykerb 12-14-2007, 06:26 PM
Replies: 36
Views: 15,093
Posted By gin-tx
Dear Debbie, Finally had to have port...

Dear Debbie,

Finally had to have port removed and a new high tech one installed by radiation intervention specialist, works like a champ. My dr has never been in a bad mood, must be someone...
Forum: Herceptin / Tykerb 12-13-2007, 04:22 PM
Replies: 36
Views: 15,093
Posted By gin-tx
Dear Anne, I have had problems with first...

Dear Anne,

I have had problems with first port, it was removed as they could not get labs, had to use a pump to do chemo. I have one of the new power ports and it works wonderful. Was...
Forum: Herceptin / Tykerb 12-09-2007, 11:15 AM
Replies: 36
Views: 15,093
Posted By gin-tx
Port problems

Dear Annie,

I had problems with port almost from beginning, couldn't draw blood, hard to do Herceptin treatments. Finally they only could get blood from my arm so I said enough, let's get it out...
Forum: her2group 11-05-2007, 03:06 PM
Replies: 36
Views: 4,052
Posted By gin-tx
I never got a prognosis of a 'poor prognosis'. I...

I never got a prognosis of a 'poor prognosis'. I was diagnosed Stage IV, but only had one lymph gland that was positive. and am only getting Herceptin and Aredia. I was Stage IV because of a tumor...
Forum: Herceptin / Tykerb 10-30-2007, 03:24 PM
Replies: 689
Views: 290,148
Posted By gin-tx
I have not had the brown spots on my ankles up to...

I have not had the brown spots on my ankles up to now but Herceptin and Aredia are the only 2 drugs I am getting. Yes I get an echo every 6 mo, last one was perfect. As far as other symptoms, it...
Forum: Herceptin / Tykerb 10-27-2007, 01:53 PM
Replies: 689
Views: 290,148
Posted By gin-tx
Dear Kat, I am not on tykerb, only...

Dear Kat,

I am not on tykerb, only Herceptin and Aredia. Therefore I have no brown spots at this time. All I know is my onc nurse called and said my echo was perfect, I do not know the numbers...
Forum: her2group 10-25-2007, 05:40 PM
Replies: 21
Views: 2,826
Posted By gin-tx
I hope that your husband continues to improve and...

I hope that your husband continues to improve and his test results are better each time. We are all in this together, so keep me informed.

hugs,
ginkott1 @aol.com
Forum: her2group 10-22-2007, 06:24 PM
Replies: 21
Views: 2,826
Posted By gin-tx
Received your e mail about communicating with...

Received your e mail about communicating with oncologist. I do not speak any other languages but English. Neither my dr or myself speak Spanish. And yes I take someone with me each visit to see...
Forum: her2group 10-22-2007, 02:47 AM
Replies: 36
Views: 4,052
Posted By gin-tx
I think you should sit down and have a discussion...

I think you should sit down and have a discussion with your oncologist. My onc is so good about discussing anything that's on my mind. I know in time I'll have probably more problems as this is my...
Forum: her2group 10-16-2007, 05:15 AM
Replies: 26
Views: 3,955
Posted By gin-tx
Dear Bonnie, What a good thought of taking...

Dear Bonnie,

What a good thought of taking someone with her to appts. I never go to my appts to see onc without having someone with me as everyone thinks of various things to ask. I don't know...
Forum: her2group 10-15-2007, 06:09 PM
Replies: 26
Views: 3,955
Posted By gin-tx
The most you can do for your friend and her...

The most you can do for your friend and her family is to be there for her. Family and support from friends is what keeps all of us managing with new diagnoses, etc. I know it's soon after her first...
Forum: Herceptin / Tykerb 10-14-2007, 07:33 AM
Replies: 689
Views: 290,148
Posted By gin-tx
Dear Kathy, I don't know why your onc...

Dear Kathy,

I don't know why your onc scared you so about side effects of Herceptin. It is one of the best drugs around for treating bc. I've been on it for 15 months with no problems. Just...
Forum: Herceptin / Tykerb 10-10-2007, 03:39 PM
Replies: 689
Views: 290,148
Posted By gin-tx
I do have some pain in back, worse sometimes than...

I do have some pain in back, worse sometimes than others, but I don't have the extreme side effects that you seem to be getting from treatment. Wish I had a suggestion, I did use pain patches given...
Forum: her2group 10-08-2007, 05:46 PM
Replies: 22
Views: 2,723
Posted By gin-tx
have never heard that before but my mother and...

have never heard that before but my mother and her sisters were all quite hippy. And I inherited the bc.

ginkott1@aol.com
Forum: Inflammatory Breast Cancer 10-07-2007, 06:09 AM
Replies: 54
Views: 41,401
Posted By gin-tx
I think everyone's pain level is different. I...

I think everyone's pain level is different. I had joint and back pain before I started treatment for bc so can't be sure they are even related. Have you tried any over the counter items. You might...
Forum: Clinical Trials 10-06-2007, 06:19 AM
Replies: 7
Views: 3,737
Posted By gin-tx
There are wonderful cancer hospitals in US, MD...

There are wonderful cancer hospitals in US, MD Anderson in Houston, TX, Sloan Kettering which I think is in NY, and others. Ask your dr to recommend a place if you want to come to US for treatment. ...
Forum: Herceptin / Tykerb 09-23-2007, 05:31 PM
Replies: 689
Views: 290,148
Posted By gin-tx
Side effects of Herceptin. I too am on...

Side effects of Herceptin.

I too am on Herceptin and have joint pain but have not had the other drugs that you have mentioned you were being given. How does your thyroid problems affect your...
Forum: her2group 09-20-2007, 03:30 PM
Replies: 10
Views: 1,994
Posted By gin-tx
Dear Caya, A very healthy and happy New...

Dear Caya,

A very healthy and happy New Year to you and your family. This is my second time having BC, first was in 1995, I never expected it to raise it's ugly head but it did in spring of...
Forum: Herceptin / Tykerb 09-16-2007, 10:09 AM
Replies: 689
Views: 290,148
Posted By gin-tx
Dear Joan, I have had slight nosebleeds but...

Dear Joan,

I have had slight nosebleeds but nothing heavy. I am only on Herceptin with Aredia so I'm sure my side effects are different. I have a lot of bone and joint pain, especially in hips....
Forum: her2group 09-15-2007, 05:21 PM
Replies: 10
Views: 1,994
Posted By gin-tx
A very happy and healthy New Year to you and your...

A very happy and healthy New Year to you and your family with good health and a cure for BC.

ginkott1@aol.com
Showing results 1 to 25 of 96

 
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