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Search: Posts Made By: 11yr5xsr5r
Forum: her2group 06-01-2013, 10:55 AM
Replies: 1
Views: 1,158
Posted By 11yr5xsr5r
Thumbs up anyone on off-label camptosar?

Fighting left lung metz requiring every 3 week thoracentesis for reaccumulating pleural effusions, which is not fun but tolerable. Failed Kadcyla most recently, and Ixempra prior to that. First...
Forum: her2group 07-25-2012, 08:10 PM
Replies: 15
Views: 2,490
Posted By 11yr5xsr5r
Re: update and query

Don't have my history updated, but took TDM-1 on trial Nov 2010 as nothing was working on a cluster of peritoneal tumors. Was very pleased with not only the response, but how tolerable the drug. My...
Forum: her2group 07-24-2012, 08:11 PM
Replies: 6
Views: 3,361
Posted By 11yr5xsr5r
Re: Eribulin/Halaven - tell me about it!

Looks like we both have long "rap sheets". I just haven't kept mine up. God is good to give us life in spite of the chemo. It's an ongoing battle, isn't it? Sorry to see your latest progression, but...
Forum: her2group 07-23-2012, 08:59 PM
Replies: 6
Views: 3,361
Posted By 11yr5xsr5r
Re: Eribulin/Halaven - tell me about it!

Thanks for the encouragement! Since the drug is given in 2 doses 1 week apart, then a week off, when did the "few days of fatigue" bother you. Am trying to figure out a work schedule, even though I...
Forum: her2group 07-23-2012, 07:50 PM
Replies: 6
Views: 3,361
Posted By 11yr5xsr5r
Question Eribulin/Halaven - tell me about it!

Stage IV, 14 years now. God's not done with me yet! Recent lung tumors unaffected by 3 mos Ixempra. Starting Eribulin this Wednesday. Can you share your experience, helpful hints? Can I work through...
Forum: Clinical Trials 05-02-2011, 06:36 PM
Replies: 30
Views: 12,351
Posted By 11yr5xsr5r
Re: I am on the Vaccine in Washington would like to chat with anyone on same vaccine

Hi, I'm Laurie and am talking with U of Washington people regarding the possibility of a new clinical trial just starting in Seattle for HER-2+ patients that have been maximally treated and not...
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